I posted this in another thread and members there kindly suggested that I start a thread... Thank you to those members! I appreciate your recommendations... so here goes... I'm not sure if this is the right place for this conversation but I need to vent and perhaps solicit some suggestions for my mother - 87 years old and she's very angry and frustrated with me that I don't quit my job of 37 years - which I dearly love - and need for my own sanity (financially and otherwise). I've tried many times to hire caregivers for her and she fires them or refuses to allow them to come into her apartment (she refused to stay in Assisted Living facility - so we gave in and moved her into her own small apartment with the condition that she would get 'home help' when the time came). The time has come and gone...helpers are 1)Lucky to get in at all 2)Get fired soon thereafter. Yesterday was the last straw; I took her to the grocery store - before she could even get out of the car she wanted to tell me that she'd been thinking the night before and had come up with a solution - she'd figured something out - the something she'd figured out was that the new caregiver, T. who my husband had met exactly one time - and passed her info on to me (she works for a local elder care organization and was looking for new clients - yeah!) was and I quote 'having the hots for my husband!) She's always suspicious and says that this one 'has eyes for me' or that one is asking questions about me or my husband, etc. etc. That there is always a 'sexual' intent to sneak around and have a relationship (nothing could be further from the truth as my husband and I have a very happy/solid marriage, besides we're 71 and 64 years old - so shopping around for a 'good time' are just not on our agendas!!) It is a ridiculous conversation to have and I refused to engage in that discussion with her. She accused me of 'not wanting to hear the truth'!! Really? Well, I got her into the store and I stopped in next door for an appointment that lasted only 1/2 hour - back to the grocery store I found her and she exclaimed that's she'd barely gotten started - I said I've really got to be getting back to work - I thought she was picking up only a few things - well obviously a misunderstanding here as she'd come to buy up lots of stuff to 'stock up' - however the caregiver was supposed to come over and clean out the (stuffed, filthy refrigerator) and packed freezer - and she's buying pork roasts, sausages, 5 quarts of creamer, milk, etc. I asked her to wait until after caregiver gets the fridge cleaned out - that was the second time on this trip that she started yelling at me - making snide remarks about 'why don't you just do what I'm asking you to do for me!!!'. Refused to let me help her to the car; refused to let me help her put her credit card in the machine at the check-out. Made a real scene. I finally got the car loaded in the pouring rain (at her insistence that we not wait any longer for the rain to pass - since I'd rushed her to wrap up the shopping - because I had to get back to work). It was a lunchtime mid-day outing - but she forgets that only the day before I'd taken 4 hours off work to help her order some flooring/window treatments for her apartment - two days in a row of being unavailable at work is pushing it. My boss is very understanding, but will only tolerate so much of my absence. At any rate she was so angry on the way home (10 minutes) she spewed so much hatred at me - incredible, disappointing and saddening. She brought up everything she could think of in those ten minutes to tell me how awful I was, how I should get in to see a psychiatrist because I must have schizophrenia (my sister does) and other insults hurled at me until she was out of the car and headed back inside her apartment...basically told me not to come back and she'd never go shopping with me again...ugh...she fired the caregiver who was scheduled to come in today to clean out the fridge; called and cancelled all the improvements we'd ordered. I have no idea what to do about her now. She lives 3 miles away....I have a full time job, a home, pets, husband, etc to take care of, so life goes on - but not sure what to do about her and her anger issues... I think her mental state is declining and I've called her doctor and left messages but he will never call me back. Instead he asks her about me - and then she tells me ' I think my doctor is 'sweet on you'. He's never met me! I'm at a total loss today as to what to do, if anything. I'm burned out and exhausted after the last two days of dealing with mom...I guess I'll go bury myself in work, etc and wait to see what her next move will be - maybe she'll get someone to come in and help her. I could have someone contact her (from local caregiver organizations, but I'm completely out of ideas)...
I quit my job about three years ago to be more of a companion to my mother, who was suffering from depression and anxiety. My circumstances were different than yours; I was ready to leave that job, but if not for my mom, would have started seeking a new job. Things have worked out okay for us, and my mother is essentially a reasonable, kind human being. But I do think that having me around constantly was not an unmixed blessing for my mom. She became more dependent on others because she was not compelled to do more for herself. She had a serious stroke late last year, which has left her with some cognitive issues. Fortunately, we now have in-home care for her, but in the first few weeks after the stroke, she would yell for me every night, multiple times. Sometimes it was that she needed to use the commode, but other times it would be something along the lines of, "There is a rope around me (not in reality) and I want to take it off." Now we have caregivers at night, but she still yells for me, I think more often than I realize since the caregivers are very kind to me as well as to her. My being available round the clock when she was well set her expectations, and now that she is disabled, those expectations are a lot more difficult to meet. This is just a long-winded way of saying that you'll only make things worse, not better, by giving up your work that you enjoy.
She's been to our home many times and always says the same thing - why don't you SELL this place and get a nice ranch - all on ONE level! You know you're going to have trouble with those stairs yourselves (we're 64 and 71, and so far are able to navigate the stairs just fine). She's even gone so far as to tear out those magazine ads for the 'chair lift' - why YOU should get some of these on your stairs so that YOU can get up and down...huh? Why would we spend $1200 on each of those chair lifts? We don't need them...but she DOES!
Basically my husband just put his foot down and said 'No Way' is she ever coming to live with us - when I told him of her request. It's not that they didn't get along either - at that time it was her incessant talking - mostly about her ex-husbands and the mess THEY made of her life.
I've discussed all this blame-game previously - but every mistake she's ever made was in response to someone else's decision to move, not to move; go, don't go, eat the wrong things, not exercise, not have surgery (although she had great insurance being married to an auto worker for many years)...it was just one reason after another - and now her health is poor and she's on many meds (btw, she gets all her Rx's mailed to her home from Humana - wonderful company that takes care of all of that). Her doctor is a Visiting Physician and comes to her home as well - so that was two things I got right when we first moved her to our state - so we could help look after her (when I say 'we' it's just me and hubby - her son-in-law)...no other siblings.
The criticism of me and my home - once she was here and told me 'your house is like a museum' - everything in place...(unlike hers which is a disaster area)... Told me that I was 'too picky' and 'prissy'...everything so perfect...snide and sarcastic remarks.
And then when she says 'You don't want me at your house' - do you wonder why? I don't mind when she comes to my home, but she complains the entire time; my stomach hurts, I can't get up those stairs to the bathroom - couldn't you set up a portapotty or something there in the kitchen/dining room area that I could get to easily? (Are you kidding?)
We made a decision back in 1995 to purchase this place (with the stairs) - while she lived in another state and long before any thoughts of her needing my help. I just sit here and shake my head at her audacity to ask such a thing of us - we're just middle class folks- not in a position to be buying/selling our home and starting over somewhere to suit her...
As far as giving up my job - I think that's right up there with not selling our home to accommodate her. I'm so worn out when I spend time with her - I go home to my job and my solace (I work alone) and thankfully have a loving and supportive husband who understands my mental condition after time spent with my mother - he's aware of the mental beating I've just endured - and that this time was the last straw. I'm not going back over to her apartment - I'm not calling her. And by the same token - she hasn't called me...ok.
As far as getting her any help - that train has left the station. I'd make some calls, etc. but all of the agencies that I've looked at on-line want information about me - and I'm a non-participant at this point. She's played her last card with me as far as I'm concerned. She can call someone for support/help if she wants to - otherwise the last person I'm going to discuss this with (as far as getting help for her is concerned is her doctor). She's abused and discarded everyone who's ever tried to help her - and now she's done that to me too...if I sound angry - I am...but I don't think my reaction to her is out of pure anger - it's been coming for a long time - it was just a matter of how much of her abuse I was going to take before I said, enough.
I noticed with my parents, I had to change my lifestyle in order for my parents to continue on with theirs. Like taking Mom to 3 different grocery stores because each one had special sales. It took hours of my time for Mom to save $6 on groceries. Even if I went out and bought groceries, Mom would want me to take back an item because I was overcharged by 10 cents. Eventually I decided just to give Mom a dime from my wallet and pretended to have gone back to the grocery store... I made some scribbling notes on the receipt to make it look like I had been there. Then I discovered Peapod on-line grocery which had home delivery.
Before I found the Aging Care forum, I didn't know that I could actually say "no", with a lot of practice.
My mom is 69 (I am 49, with a 16 year old daughter) and we live in the same house (bad bad mistake on my end!). My mom still works a full time job, but she still wants me to change my hours so that I am home in the daytime with her (she works in the evenings). There are some cognitive issues going on with her...the fact that she is a drinker is not helping with them. Right now, she is at the point where she can't find stuff, yells at everyone to not touch her things and we find her stuff in one of the many bags that she throws things in. The "piece de resistance" now is that she cannot find her 2015 taxes (that I did for her but she didn't file), but I am suppose to stop everything and look for them, even though she said don't touch her stuff. I responded back with "if you can't find your stuff, LOOK HARDER".
Your mother has lived her life and made her mistakes with it. You and your husband need to live yours so that you can "fill the glass" so that you can help others. Can't help anyone else from an empty glass. Hugs to you, sis!
I would like to add my vote to the DO NOT QUIT YOUR JOB club. Someone on here said a long time ago that we are entitled to our lives just as much as they are. Just because they need more help doesn't mean that we should put our lives, hopes, dreams on hold.
In addition to this site, a local caregiver support group gave me the strength to set & stick to boundaries. Good luck!
I hope you get paid back for the money you are spending toward your father's care. And I hope the darling golden boy brother is also contributing!
"She finds things that it almost seems she wishes I had-IE she has bad veins in her legs and she's looking at mine, which are fine and telling me I have broken down ones....one of many picks."
Yes! My mother does this. I'm supposed to listen to her endless complaints and she says, "Just wait until YOU are old!" And she asks me, "Are your hands arthritic yet?" She picks and pokes at me if I have so much as a bandaid on.
Most pensions are set up so that the vast majority of your pension money is earned in you last few years of working. Leave early and you lose. After 28 years work, my pension would have tripled had I stayed just another 3 and a half years. ) I honestly don't know what I could have done differently, as the situation was untenable, either way. My being retired just let him think he was free to harrass me even more. And the misery continued to just get worse, untill (as others have mentioned) a crisis put him in the hospital, and the social workers there got involved, and I was able to place him in a nice dementia care facility. (Be forewarned, placement does NOT end the stress and work and harrassment. It just changed it, but gave me peace of mind, that he was safe, and the ability to walk out, when the verbal harrassment went over the top.
I wish you well.
My mom is not manipulating as yours is but she has dementia and might be in stage 6. She's still active which gets her in trouble. She kept ESCAPING the facility so I have her back in her home.
My huge aid and discovery is Council on Aging; its nationwide in the United States. Find one near you and get a list of all their amenities. Mine has dementia daycare!! A bus picks up my mom (complete with a nurse on it) keeps her mind and body active; gets lunch/they drop her back off at a MUCH MIRE AFFORDABLE PRICE than home caregivers. Plus she is "offset" from her former routine of being the boss in the house. She fought me, at first, but now looks forward to the bus ride and the day. It's just weekdays but I can get so much taken care of without her here!! the program is about 5 hours, so when I was working I had a caregiver service greet her and take care of her for a few hours before I returned. They have lots of practical help at the COA; worth checking out to find out everything. If your senior is in their home they offer many cleaning services for a small donation (carpets/windows). Be centered in your decision. If you are not near retire age (I was) keep the job.
I did wind up quitting and moved up here to care for mom; knew no one in town. I hadn't played flute since high school but took a few lessons and the teacher said I should join the community band. I bring mom with me as we practice for 2 hours each week. They love her! I found community!! I'm actually getting better at playing and it's become a surprise joy!! Music is so healing. There IS an answer that could bring blessings and surprises amidst the pain of decisions.❤️
She too suggested I stop working and care for her. She too would tell me things like, why don't you just listen to me.
I did exactly what the first response suggested, stopped doing so much for her, ignored her when she mistreated me. It has really shaped her behavior towards me. Now, my brother and his family support her s lot more than I do.
I know you love her but, don't give up your life for her. You'll regret it and believe me, she won't appreciate it.
Don't quit your job! I hope you walk away from this mess and let the chips fall where they may. She's done this to herself. Protect yourself. Sorry you are going through this but glad you made a great life for yourself despite a nut parent.
I hate to think of my mother as a narcissist, however there were so many things that could have been prevented before all of this happened. She ran herself down as caregiver to my father who has dementia and would take no suggestions from anyone before everything hit the fan. It's left me very confused and for lack of a better word, angry. I'm now expected to walk in and correct all of the stuff that's going on....the problem is just so big that I really just want to run away! Throw in her criticisms of me (her only concerns seem to be about my brother) and all that she feels that I've done wrong, starting with moving into a condo which we did for our own sanity as every day for the past seven years had us running here and there and we couldn't do anything for our own home. She finds things that it almost seems she wishes I had-IE she has bad veins in her legs and she's looking at mine, which are fine and telling me I have broken down ones....one of many picks. I'm so very tired of this crap!. So I say to you, do NOT quit! You aren't going to help the situation for yourself in the long run. All it will do is cause more frustration for you. My mother has been depressed the majority of her life....never wanted to face realities. Funny, I'm the one doing that now.
I work from home and love my job, and even though my mother thinks that means I have more time for her, I do not. My husband retired 3 years ago and we also help take care of our 3 year old grandson, which we love to do!
Slowly but surely, you need to establish boundaries with your mother and keep your priorities strong. Don't allow her unreasonable demands and demeaning comments to take over your life.
My mother didn't like it when I finally stood up to her and established and kept my boundaries. But she realized that as her only child I'm all she has and now allows a trusted family friend to take her out in addition to what I do for her. I have also had many private meetings with her doctor for the day when I need his assistance to allow in more skilled help. She could have that help now, but she's stubborn, so she has to live with her decisions, which I remind her are hers and hers alone.
Whenever she tries to guilt me into more care, I remind her of all of her options, and that I am doing what I can do to help her. I love her dearly, but if I allowed her to, she would take over my life with total disregard for anyone else. Each situation is different and difficult in its own ways, and I wish you the best!
I also agree with pamz - I love my job; need the health insurance benefits for my husband and I; am building up my retirement fund so that I won't be a pauper in my golden years; and I'd like to hold off on SS as long as possible to obtain max benefits. My job is challenging enough to keep me interested and keep my mind active. Even though I'll be 64 next month - I'm no where ready to throw in the towel! It's the best job I've ever had - the people I work with are great - the work is interesting - and best of all - I get to work from the comfort of my home. That being said, though, it does require me to be AT HOME for the majority of the day. I have a lot of flexibility but don't want to take advantage of my employers generosity (in allowing me to work from home) or abuse the privilege. There's also a directive in our organization's SPG - no employee shall be allowed to work from home where there are small children or elderly people are present who require the employee's time/attention. In other words if you're working from home, you'd better be working - not attending to the needs of others. I can toss in a load of laundry or put something in the oven for dinner; but I have to remain focused on my work and available to my managers when/if they want to discuss or work on a project. All of my work is project based fortunately, so I get paid on a salary and not hourly...but getting the projects done on time and accurately is the ultimate goal.
Too many outings with mom or assuming responsibilities involving her care would negate the arrangement I made with my employer - so as it stands, I'm choosing my job over my mom's care. And you're right - with my job I feel appreciated, valued and am well compensated for my efforts. With my mother I feel demeaned, unappreciated and downright resentful of her preposterous assumptions (about other people) and the mess that she considers the 'norm'. I get nervous visiting her because it smells bad, it's filthy and in a state of disarray and disorganization from one end to the other - I feel compelled to clean, wash dishes, vacuum, take out trash rather than sitting there visiting with her...
So I guess, for now since she hasn't called me and I haven't called her...we're going to maintain some distance. I really can't take any more of her caustic comments now anyway.
My hope is that she will reach out to one of the many care organizations that she's had in the past to see if one of them can be persuaded to return to her home to help her. Talk about burning bridges - she usually leaves them with such a poor impression of her - with her complaints and that overwhelming mess she makes - that I'd be embarrassed to call any of them if it were me.
I'll contact the doctor with my abbreviated comments via their email patient portal. Hopefully it'll result in some action on his part. I'll keep you posted.
Sit with your 8 pages and a colored pencil (if this is printed out, or do it online). On the first pass through, take out all the details that frustrate you but which are not necessarily signs of mental illness. For example, she blames your father's genes for you getting cancer. While I agree that is crazy, it is not certifiable, if you see what I mean.
Then go through again, and take out all the mentions of problems in the past. What she did in her previous home could be a supporting detail, but not a main point.
Are you ready for a third round? After having read and re-read this, what are the main points a doctor should know? Maybe something like this: (Just an example ... you'll do better)
I am concerned about my mother's mental health, for the following reasons:
1) Mother needs help with activities of daily living and she refuses to accept any paid help.
2) Escalating anger, making scenes in public
3) She frequently imagines sexual scandals on no basis
4) She is living in unsanitary conditions
After you've settled on the main points, add BRIEF details, picking not necessarily the details that are most annoying, but the ones that seem most related to mental decline.
Keep in under a page if at all possible, and in bullet points, not paragraphs.
I think this is worth doing, and an evaluation by her PCP would be worthwhile. Perhaps some aspects of her problems (such as depression) could be helped with medical intervention.
On the other hand, this has been a life-long problem. Your mother is and has been mentally ill. Unfortunately, there is no cure or treatment program for npd.
The fixable problem, in my mind, is totally under your control. You need to detach from this sick person -- emotionally and not just physically. And after a lifetime of this dysfunctional relationship I suspect you are going to need guidance and support to do this. See a therapist who has specific experience with children of narcissists.
She wants you to quite your job. Don't quit your job. Don't discuss it. Hang up or leave if she persists talking about it. She wants a ride to the grocery store. Say, "No. Wait until your fridge is clean." Just because she has crazy ideas doesn't mean you have to go along with them.
I think a period of physical detachment is a good idea, too. Perhaps after some counseling you'll be in a better position to visit her without being emotionally exhausted by it.
And keep reminding yourself -- this is Not Your Fault.
I don't know why the doc isn't getting back to you if the HIPAA paperwork is on file. I'd send him a written dossier and ask if he's considered an inpatient assessment of her mental health.
I reminded her recently that her apartment down South was a nightmare - with clothes piled so high in front of the closet door that you couldn't even get the door open! Everything was filthy; clothing mixed up - clean and dirty - floors covered with debris; every surface of the kitchen was filled with empty jars, dishes - both clean and dirty; old food in pots and sitting around here and there; a bucket sitting on the kitchen floor filled with coffeegrounds, eggshells and old food - for the compost (in an apartment again - where it's not welcomed to be putting out rotting decomposing food)...I cleaned that apartment for days - before moving her into assisted living - and finally just got enough of her stuff out to make her comfortable - her clothing and personal items - and locked the door. I had worked for days to remove personal paperwork that had stacked up for years - so that I could safely dispose of it - bags and bags and bags of paperwork. Every medical receipt, every EOB, every piece of paper that had ever come in...was still in that apartment.
Today her apartment is essentially the same kind of mess...and there's no hope for getting it cleaned up..because I refuse to go over there on a daily basis and clean it for her...things have returned to the old normal...Last Summer I had two surgeries and didn't feel like much - for the entire Summer...and am just now starting to feel human again and have tried to help her...and you've heard the rest of the story. I will try to take care of myself (exercise, proper eating) and take care of my home, husband, son and pets - and all the other stuff that comes with life - while I work fulltime - at my job I love and hope to keep until I get too old to do it...hope that's a long time away.
So if you're worried and want to get in touch, don't wait for her to contact you, just carry on regardless.
Um. She is completely barking, no? You can't get anyone to consider forcing a mental status assessment on her?
Oh well...I regress. This is a lifelong pattern with her - conjuring up bad things about people she doesn't even know - she's done exactly the same thing with her neighbors where she's at now - in her apartment - sits and watches the neighbors come and go - this one is crazy - that one is a liar; the other one's children come to see her EVERY DAY - but not her daughter - who is worthless and doesn't help her own mother...
OMG, if I had a nickel for every time she's said that, I'd be a millionaire!
I will take your advice and stay away - until she calls me or until someone from a healthcare concern (ER, Hospital, etc.) calls me - and then I'll advise them of the situation. I have gotten my mother to sign HIPAA paperwork that allows her doc to discuss her care with me - but still my phone calls went unanswered.
Her mental status declined sharply around February this year when she said she had a UTI - was given an Rx for Bactrim and it made her sick. She felt like she was having some kind of strange experience - couldn't remember anything and couldn't carry on a conversation with me on the phone - not sure what was going on - the doctor went there and sat with her - and told her she'd be okay - apparently it wasn't a stroke or any type of life threatening reaction, but she keeps telling me and everyone else who will listen that the medication she was taking 'blew out her mind' - I tend to agree. Something happened at that time that caused her mental status to decline and now she's fearful and angry and confused; has trouble remembering anything except the past...and her tolerance of me and anyone else trying to help has diminished.
I want to express my deep appreciation for this group - for your kind words. Knowing there are others who are going through a similar situation (some worse, some better) has been helpful. I was able to get through the day - but barely a minute went by that I didn't think or worry about my mother - I hope she's okay. I've done everything I can for her - but I refuse to be a victim of her abusive behavior. When she's ready I'm hoping she'll call a caregiver - she certainly has enough cards and brochures from all the previous organizations I've contacted to come and help her (Home Instead, Caring Hearts, Right at Home) She's aware of Visiting Angels but I've not contacted them - and various independent ladies who she dismissed for one reason or another because she just couldn't stand them being in her home - some moved too fast, others too slowly; one scrubbed on her toaster with a brillo pad and scratched it...she had told me about that every time I've been there since it happened (about 8 months ago)...I finally ordered a new toaster for her...it's sitting there in the box - she won't open it until she gets rid of the moths (an occurrence that was due to storing bird seed in her coat closet that was infested with moths) - I took all her coats to the dry cleaners and hired a lovely quiet lady who came in and scrubbed the walls, floors, vacuumed, cleaned until there were no more moths - and now they're back! I told her to call apartment management and have them come and spray for bugs - she has moths because they're feeding on all the crumbs and food debris she has all over the place - banana peels, egg shells, coffeegrounds (these are being saved for the compost - in a tiny strip of land just in front of her deck, there's just enough soil for a few flowers - now all sunflowers which she cannot take care of)...but she insists on saving all the compostable items to add to the soil - which I believe will draw unwanted pests; everyone in the complex received a letter last year informing them not to feed birds, animals of any kind because they're getting into the roofs...and it goes on and on...
Bless you all for being there and listening to me...thank you for your kind words and thoughts.