She is 84 and had a stroke a couple months ago. Although she can maneuver fairly well with walker assistance, she is no longer able to live by herself. I am a single mom, and my son will be moving out within the next month to a place of his own. I was looking forward, at 55 years old, to finally, for the 1st time in my life, taking care of just myself, enjoying time alone (which i love and crave), and this happened. Now im mentally devestated. My mom and i are extremely different, yet we get along fairly well because i do what i have to make it that way. She has another daughter and a son, but they live too far away to be of assistance. Mom is not financially able to live in assisted care, and refuses to be anywhere than with me. Im having a very difficult time being a shell of an existence. My mother did not raise me, yet we have been close most of our lives. I just to know how to find a way to accept my new responsibility, knowing that it will change everything about what i was looking forward to. I know this isnt how my mom had hoped to be either. She is a beautiful lady, and i would never say anything that would hurt her feelings. Telling her how im feeling is not an option. It would destroy the level of calm that exists now between us.
Please don't sacrifice yourself for the sake of your mother. If she was truly thinking clearly, she would not ask you to do this. Don't underestimate how brutal this will be on your mental health. You are already getting intuition that it isn't right for you, please heed your internal cues. I didn't for so long, and it brought me to many breaking points, before I insisted what I needed to do. Once she moves in it will be much harder to change the living situation, so please avoid that unless it is something you truly *want* to do.
Wishing you luck and know there are many of us out here in the same boat.
She spews negative comments, can't get a button undone, hurts all the time, and it hurts me to watch her slowly dying. I left home, for college, at 17 years old, I'm 57 now. I've survived breast cancer for 3 years now, am on disability for the pain, and chemo brain. I thought it was fate that brought us together, her needing me at a time I was forced out of work.
It's been 2 years of complete togetherness. I've nursed her through stroke, ileus, severe arthritis. Fixed her cars after her wrecks (no longer drives), fixed her condo after water damage, sold her condo, moved her in, moved her stuff into storage, set up her legal, doctors appointments, her injections, her meds, and am trying to get senior activities started at the county park hoping that someone there will drive her and take her away for a few hours....please!
My husband and I have little couple's time, our friends are few, and vacations even fewer. When mom was hospitalized the week before our prepaid vacation we had to beg, fly my brother in, pay his salary for a week to get him to stay with her at the hospital. Turns out she came home the same day we did.
I have gotten in-home caregivers help, in order to take a weekend off ($300-$500), or to take her to the nail salon, (4 hour min.- $60) advance notice required. Have to train each person that comes to "help", things don't get done anyway.
Folks tell me that I will forget all the bad parts when she's gone. I had to see a psychotherapist now. I don't have children, I'd never do this to them. Please buy long term care insurance before it's too late!
You use the phrase "take care of a loved one" as though it's a foregone conclusion that we love the person we're caring for, but in many cases that's questionable, or just not true. In my own case, I've proven beyond a doubt, both in my failed marriage and my caregiving history, that I'm simply incapable of loving in captivity. Being backed into a role and a set of expectations you don't want can turn a relationship sour very fast. And once the relationship is sour, the sense of imprisonment becomes all the more noxious.
Some people can make this work, and more power to them. I once read a story in which an elderly mom was lamenting the burden she was placing on her daughter, telling her daughter "I'm stealing your life!" In response to which the daughter lovingly assured her "No, Mom. This is my life."
I think that's lovely. But it's not my mother, and it's not me. I don't get the impression it's the OP either.
What I would suggest is #1 develope patience (I mean to the extreme) and #2 plan some specific alone times for yourself, whether daily, weekly, or whatever you need. If she doesn't require a lot of care, then planning the alone time won't be too difficult. It might require some physical changes to your home to give you more privacy there, so you wouldn't have to leave the house to be alone.
I agree that setting boundaries with her now is essential. You said you can't talk with her about how you feel, but can you talk her about exactly what each of you expects of the situation? Use leading questions such as "what do you think a typical day living at my house would be like?" Or "If I spent several hours in my room (or other area) by myself, would that make you feel neglected?" If her answers are alarming, then you may need to think of some option aside from her moving in with you. On the other hand, it may open up some good communication and perhaps this responsiblity won't be as dreadful as you might expect.
Even if you need to write out the pros and cons. If possible, have her do the same (or if there's anyone she trusts, a friend, doctor, or someone else have them go over it with her).
In any case, just don't jump into the situation.
I hope things go well for you!
I would look into senior centers where your Mom can go during the week days, to give you space, and also to build some friendships - as it's a fact that seniors gain from being around other seniors. that should be a MUST before you agree to take her. I recognize the issues around finances, and agree that you should look into qualifying her for Medicaid, and learning the system of options regarding how to get her into a Medicaid community. That should also be a condition for allowing her to move in. It is absolutely true that seniors who are isolated live a shorter life, but more importantly being around other seniors gives them a sense of belong, a sense of purpose, and a sense of intimacy. You can't give them that. I've seen it time and time again that seniors thrive in communities.
Just get to know the system for long term care in your area. You have to build a Plan B.
Find a helpful support group in your area. Try several of them - caregiver support groups. Build in time for yourself, ie, when your Mom is not with you. Plan a regular date for yourself each week. But you will learn these things in a caregiver support group.
Good luck.
Good luck
First of all, two resources we are using: VA Aid and Attendance. If your father is no longer alive, and they were married when he died, and he served even one day in an authorized war, Mom is entitled to this, to help her pay for AL etc, or to get help in her home if her doctor deems she needs any kind of help with her activities of daily living....moving, dressing, toileting, eating, cooking, shopping, driving etc all come under this. If she has a medical condition that precludes her from certain self care activities too. My Mom has Alzheimers and is forgetful about meds and cannot drive anymore, so even though able to do all her own ADL stuff, she is qualified. Dad was qualified, as a WWII vet. Then, the next thing is Medicaid, for which everyone is qualified, and in most states there is an option for payment for helpers in the home. Basic qualifiers include $2000/mo in actual cash coming in, after medical costs and certain other allowable expenses....and only assets being a house and a car. So if there are extensive investments still left, Medicaid doesn't pay until those are spent down. There is a 5 yr look back period as to how money was spent to assure there were no gifts given away to others to make a person eligible faster. If there was, there is a matching penalty period, but still, eventually Medicaid will cover costs to some extent. Each state takes the federal guidelines and puts them together differently. Then, there are resources through your local Council on Aging or Senior Assistance. With having a stroke, there may be some assistance you can find through a stroke association or such. And there are day care programs in most cities, for seniors, where they are picked up and have daily activities for approx. 6 hr/day...fed lunch and cared for while socializing with others, and then taken back home. May be some co pays for that in some places. So IF you determine she must live with you and not on her own with some care giver help or day care help etc, even Meals on Wheels....THEN, in the situation you describe, I would recommend not even starting it without an agreement that there was going to be some kind of caregiving helpers coming in so it was not YOU 24/7!! You will be crazy in a month. I have a mother as you describe yours.....perhaps worse. I could never bring her in to live with me...besides I already have a hubby with Parkinson's so I have to plan to be there for HIM first! My recommendation is to pay to consult with an eldercare attorney or a geriatric consultant or social worker who could help you determine what options there are to get supplemental money for care...and if that would allow for helpers in her own home or for AL before looking at bringing her into your own home. IF your home is the only choice, then you need caregiving help somehow. NO ONE can do this type of thing 24/7 until death, even in the best of circumstances, very easily. Just read all the others postings on here. FEW are able to pull it off, and those who ARE, become increasingly stressed and have it affect their own health, well being, and even their future retirement securities due to having quit working etc.to do it.
Even if the other children live a ways away they could be scheduled for one weekend a month to come and do errands and take her to the hairdresser.
There are some creative ways to reduce expenses and free up some income to pay for support to come to her.
Have you considered moving to a place where she could live in the same building as you but you could have your own private space? That could be either a Condo Complex, Senior Apartment building or even a small duplex or home with a Mother In Law Suite. There are so many issues with living together like, how high the heat is set, how loud the TV is, who like to eat what.
I will be facing this issue with my Mother soon and I already know she keeps the house 86 degrees and the TV on the loudest setting. I could not stand that day in and day out.
We are planning our next house with a Mother In law suite that is at ground level, no stairs and has it's own heat and air conditioning control as well as a sitting room and kitchenette so that we don't have to be all in the same space all the time.
I know every one does not have that luxury but often having two apartments in the same building gives the caregiver time to be in their own space when they need to.
Good Luck.
I also realized many of the fears I had that made me angry were about death and dying. Were about aging and illness and loss of ability. I was witnessing my future and it terrified me. I also had to live in a space where the conversation of death is frequent and casual, which can be depressing if it doesn't seem to be the immediate reality of your life.
Then I got the opportunity of a lifetime to get my doctorate in another town. This meant moving to a smaller living space and entering into a demanding program. We moved and have been in this place for three months. It is challenging--there are somedays when I think I'm not going to make it. It is those days when I look for my community that knows what I am going through. Reaching out pulls all the doubt, anger, impatience, frustration and exasperation you can easily apply to your parent, away from them. Because it is not their fault they are old, frightened, forgetful, obsessive, hard of hearing, slow to move and stubborn as heck.
They're going to fight, you're going to fight back within reason and not in anger. They're going to push as hard as they hold on. They're going to wake up, oblivious to how angry they made you the night before. They're going to accuse you of lording over them, your youth, your memory, your agility, your life, pushing buttons you didn't think could still be pushed, or that you thought therapy had helped you to remove.
What I do know is that it is a partnership and is one of the most exasperating relationships you will have with another human being. I also suspect that what keeps me going is that all of this, will seem like nothing when I no longer have to do this. All of this is what I will hold on to, once this dance is over.
How do I get myself to mentally accept my Mom living with me?
"we get along fairly well because i do what i have to make it that way"
It sounds like you bend over backwards to make sure she doesn't get mad or upset. Not good. You think you will be able to do this day in and day out. Believe me, u will end up making yourself sick. Checkout some things that have been listed. If you can't find the services she can afford than she may need to get Medicaid and be placed in a nursing facility. If the "daughter" has POA, she will need to do all of the paperwork. Don't get sucked in out of guilt. Again harsh, but she chose not to raise you. Be there for her, help when you can but don't bring her into your home. Because you have carried the responsibility of raising a child on ur own, its your time. You know yourself. If I had a choice, Mom would be in an AL facility where I could visit daily. I have always been the one who did for my parents. Two brothers not near to help. Raised my girls and babysat Grands when small. Tired of taking care of people. Want a life where I can do what I want when I want. That means my quiet time.
You don't sound like you want to do this and it doesn't sound like you have any support. Neighbors tend to think it was your decision to bring your parent home so why should they offer help.
I had a relative that actually enjoyed assisted living after not wanting to go there. Like others said it would be much harder to change your mind once she is in your home.
Lots of good advice and viewpoints on here. Hopefully a good solution will come to you. I wish you the best
My situation; I'm 55, widowed, one year from losing my husband, still raw with grief, my dad falls terribly ill and moves in with me, no help. Two years in now taking care of dad in my home, he doesn't want to go to nursing care, and although dad takes several hours every day to take care of, I still have somewhat of a life of my own, have plans for my future and I can see the possibilities. My life changed when I was widowed, I had no idea what I was going to do with my life or how it would be after I lost my husband, but after two years of caregiving, I know when my caregiving job is done, I'm having a life for myself, the sun will shine and I'll be ready for it, I savor ever moment of my life more because of the caregiving I've done and the loss I've seen in my life. I wish you well, and much strength in the road ahead of you.
I took care of the ladies in my life over a four year period,; assisted living, hospital, at home, hospice etc. They all passed. I sold my condo and planned to rent an apartment.
My son was having shoulder surgery and I offered to help during his 2 month recovery period by driving him to therapy,yard work drive grand kids volleyball, wrestling etc. I moved in temporarily, (I still planned to have my own place) that option would prove to be excellent planning.
The decision was a terrible one. The honeymoon period was great (one month)
We some how do not realize that after living in control of yourself and your environment for an extended period (50 plus years) you develop a life style that is unique to you.
Additionally, all the customs, rituals, privacy and sense independence are
suddenly under attack.You are surrounded by new; rules,dinner schedules, food,
and the emotions of a new family environment. I lasted 2 months.
I guess its true you don't know someone until you live with them. It was not an upbeat happy family environment. Too many new rules, tension etc.
Being fair, in my case, I needed to " nest" , find my own space. I also had a lot of pent up emotion from my previous challenges/monsters.
LADY GAGA: Loneliness, Anguish, Depression, Yearning
Grief, Anger, Guilt, Anxiety
Just be careful when you assume the responsibility of caring for someone or living with someone.......its a delicate balance requiring many compromises and adjustments
Proceed with caution.........Road Block Ahead
Enhanced Community Options Program (ECOP) offer care and non-care supports to individuals in their homes but ECOP is targeted towards individuals with a higher level of care needs. http://tinyurl.com/owjgr5b
Services are centered around helping individuals live in their homes or helping families care for loved ones in their homes. Benefits range from adult day care to home delivered meals to chore services to medication assistance;
A very wide range of support services for seniors, their caregivers are provided can include any of the following: services are determined on a case-by-case basis.
Adult day health care
Alzheimer's / dementia care
Companion services
Food shopping
Home health aides
Home health services
Homemaker services
Meal delivery
Meal planning and preparation
Medication assistance
Minor home repair and yard work
Nutritional counseling
Personal care services
Personal emergency response services
Respite care
Skilled nursing care
Transportation assistance