Up until two weeks ago, Mom was able to get herself up, dressed, to the bathroom, down to the dining room at AL, to events etc. Although she was weak and unsteady she was pretty much independent. Then she stood up and fell. She bumped her head a little so they sent her to the ER. Although she didn't really hurt herself, she spent the night there, and fell again there. I'm wondering if she didn't have an "event" which caused it all. After that she was so weak she couldn't stand on her own and couldn't stay in AL so for the past 2 weeks she has been in a nursing home. We thought she might be able to be rehabbed and return to AL. But she fell again there, and hit her head requiring stitches this time. She has practically stopped eating, tries to get up every five minutes at night and sleeps on and off most of the day, saying leave me alone, and pretty much out of it (they have to give her a tranquilizer to keep her from being agitated so I suspect that is why she is sleepy). Is this the way it progresses at the end? I'm praying she is not suffering and isn't aware of what it happening. I sit there for hours with her, but she barely knows I'm there and five minutes after I leave she doesn't remember.
Any suggestions are greatly appreciated. Praying for all of you who are also going through this horrid situation.
Confused about this. I emailed the doctor but no response yet.
paradise - absolutely - our LO with dementia of any kind have brain diseases from which they will not recover and they will decline. These diseases are terminal. Of course that does not mean you do not look out for things like UTIs and other ailments that affect behaviours. Mother has vascular dementia and is loosing mobility. Some are saying - she is not using it so she is loosing it, and I say no. She has walked a lot all her adult life and she would be now if she could. She is loosing it due to the effects of the vascular dementia on her brain.
Gotta laugh once in a while too. Tonight she called 911. A friend of mine on the police force went by to see her. She told him she wanted a ride home from college. Hoping she doesn't make that call a habit.
She has in the last two weeks been refusing to let them shower her, sometimes she won't even allow them to change her when she is wet. They tell me they cannot force her, which I understand. Over the last ten days, she gets delusional, mostly at night, and starts calling me and my sister to come get her from college, that she doesn't want to sign up for another semester. All sorts of crazy stuff like that. It is so hard to explain to her that I cannot come and pick her up. My stepdad stays upset, worrying about her. He is living with us and has been ill, so he hasn't been able to visit in a week. Her physician wants to up her Xanax, and has mentioned mood altering medications ???? (which I know nothing about).
At what point can you involve Hospice?
I asked about hospice because I was wondering if she was put on that, whether her Tricare health insurance would pick up some of the cost of the nursing home. Its awfully expensive.
They took x-rays and a CT scan of her head when she fell about 10 days ago. She seems to be improving over the past few days and eating a little. Its hard to know with her. They tell me she is very very stubborn. At 101, the doctor has advised she is not strong enough for any surgery and we have a DNR and DNI. Of course we have authorized she be given antibiotics, etc for illness but no extreme treatments. The woman in the room with her is also 101. She has been there for a year. She lies in bed and makes noises and jabbers all day, making no sense, not seeing any of us. We don't want Mom to end up like that.
My best to you and your mom.
Years ago a friend of mine who owns his own house had an attic that he only visited once in a while. There was this handrail that was not properly installed, and he used this handrail to pull himself up the rest of the way into the attic for about 25 years before it suddenly detached, sending him right back down the ladder, and hitting the floor below. Of course he was hurt in the fall, and yes he was a little up in age. I used to visit visit him at night, and we used to visit for about an hour. However, right after that nasty fall, he was only able to visit for about 30 minutes because he started going to bed earlier. One time I went to visit him and he was surprisingly on a walker. Something inside told me that he was going to die, but I kept fighting it off because I thought it was just in my head. Lo and behold, I went to visit him one night and the door was locked but all the lights were on. The car was in the garage and the garage light was on. I called him and left a message on the answering machine because there was no answer. I waited for quite a while before finally having to go home for the night. I made a few calls inside while waiting because I figured he may have gone out with friends or family. Little did I know, he really did die just as something inside told me was going to happen. It wasn't until I finally saw his obituary in our local paper that everything clicked, it was God telling me that my friend was going to die and it was not in my head after all. I then went on to pray to God about lucid dreams that people have about their loved ones after they died. At first I didn't believe in lucid dreams because I thought it was all a big wives tale. Lo and behold, one night I had such a dream where I was visiting my friend at his house, it's possible I may have very well been in the spirit. My friend was as he always was and he said that he was allowed to come back for two weeks until he had to go back. We had our usual half-hour visit before we closed. In closing of our visit, he did his usual habit habit of going to the kitchen and he was by the fridge. I was starting to leave before I came out of the experience. Upon awaking I had a piece about me that the world just cannot give, this was God's peace. I don't recall what my friend said during this encounter, but whatever he said let me know he's OK. I did confess to him that I took him for granted because I didn't want him dying without Jesus, this was during that encounter after he died. For quite a while after his death I found myself riding my bicycle past his house when I felt the strongest emotion to go past there. I would ride up and turn around right by his house and coast back down the main street. What bothers me most is he's in the ground while all of his stuff is now in the process of being dispensed. It bothered me that he's in the ground with nothing, and I forgot that his spirit which is what really matters is actually in heaven with God forever.
My Mom first fell and broke her hip 19 years ago...they did surgery and she lived on her own for 17 yrs.,and drove her car for 11 years after that Then she fell 4 years ago, broke her wrist but was able to return to her home after that and used a walker. Then a year and a half ago at age 91 she fell again this time breaking her arm and she could hardly stand or walk after that. It progressed within 3 months that she lost all ability to walk or stand on her own. Even with a transfer she would begin to go down and a lift machine had to be used. She has been bedridden in my home for a little over a year now and on hospice for 6 months, so falling can just drive the situation down or they can recover. Check the meds and for a UTI first.
This source will provide the stats for falling.
My son in law in Palm Beach lost his business partner to a fall in the kitchen,He was 55.
I always caution anyone walking on stairs to use the banister (quoting some of the stats) as they continue on.
I had the maintenance folks install shower grab bars in my new apartment. Falls lead to other serious outcomes.
The hidden cause could be depression, which is under diagnosed in the senior population. Late-life depression can be a subtle cause along with other life changes. Tests are available to determine status GDS , MMD have your doctor order the tests
My father is too proud to use his walker in public, so we are on pins and needles every time he goes anyplace - figuring that it's just a matter of time...
I can tell you that my aunt fell in the nursing home several times, and she still lived about two more years.
My cousin is in a Memory Care assisted living and I observe hospice teams there providing support to the patients. They are not employed by the facility.
Maybe others who have had direct experience with an actual Hospice facility will chime in.
We had a family friend show fell a couple of weeks ago and fractured his hip. He hasn't really been communicative since. He won't eat, drink, etc. I'm not sure which route they will go with him. He was having dementia like symptoms right before his fall.
It just seems to me that they should be able to give your mom some medication to help relieve her anxiety and discontent. I can't imagine them not being able to do that.