Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I went to see my mom today, well, debbie downer showed up. The visit from last Sunday was great after I said my spill, then today she wasn't hateful to me, but it was my fault she was there (assisted living). She went on and on as she was crying..."you brought me here", "I begged you not to bring me here (no she didn't)", "you told me I couldn't stay home anymore"--(that I did, not alone anyway), so much cannot put it all here. I really became frustrated, but didn't let it show. I asked her not to blame me. She did say something relatively smart though--she stated there was something wrong with her brain and she don't know what happened to her. I try not use the term dementia (she has frontal lobe), I just agree and tell her I am sorry this has happened. She cried and the negativity started all over again today. Complained about everything. She started complaining that some of the girls (workers) that used to come in her room don't come by very much anymore, well debbie downer, can you blame them? She is always woe is me, poor me, look at me, what about me, what if you were me....WHAT ABOUT YOU!!!! Sorry, I really want to scream that at her.
Looloo: No you will never make her happy. I am seeing that with my mom. She does look for me to do that, but it can't happen. I have tried literally everything. She says the same things no matter where she is. Long story short, my mom sold her home of 18 years--started complaining of the neighbors, getting paranoid, HAD to get out of there__this was pre-diagnosis, post retirement. I didn't have a clue where we were headed. She found a house in another county on a golf course--did I say golf course? yes, my mom hated golf..Ha ha. She bought a brand new townhouse on a well manicured golf course must I say a beautiful place. TWO WEEKS after move in, my mom complained about the neighbors, was paranoid no one liked her, oh, I think I heard an echo. The same exact thing as before. She put it up for sale and 6 months later, I moved her back to the county she just came from --she even tried to buy her old house back. oh yes, she did. He wouldn't sell it to her. She bought a newly built home and moved in. ONE week after move in: I hate it here, I got to get out of here, the neighbors are crazy, the movers stole my jewelry, this place is awful, the air/heat wont work (well, you get the idea). She stopped showering, wouldn't eat, and stopped driving. It was like a light bulb went off in my head. I called her sister and told her I think I know what is wrong. DEMENTIA: I called a clinic that is renowned for this type of illness. It took 5 months to get in. in the meantime she was calling 911 in the middle of the night to get her out, several things. Luckily we got in and they put her in the hospital, then rehab and I moved her to her mother's home close to me for one year of hell.--you guessed it, get me out of here, I hate it here, the dogs bark all the time, the neighbors constantly mow the yard, on and on. Then now she is in assisted living and hating it once again--Pete and Repeat!!! This all sounds so fast, but it has been a long, long journey that is never ending. I try to remind her of everything, but she denies so much of it..well, maybe she really doesn't remember.
Now my mom lives in assisted living with two storage buildings full of furniture that came from a 2800 sq. foot, well manicured home. This is all just stuff, but she is struggling with what is wrong, so depressed, and so sad. Sad it is, but this is her new life. I hope for her sake, she doesn't have to suffer for a long time. My wish for her would be she could truly forget things and maybe she would forget how miserable she is. With frontal lobe she may never forget because like MaineMom stated, it affects reasoning skills, personality, decision making, senses, planning and short term memory.
We are all in the same boat and let's keep paddling together and the shore shouldn't be that far away.
My mom being 68 always makes comments about the other ladies and gentlemen that live in the AL. She will ask me, "have you ever talked to an 85 or 90 year old woman?, they don't know what you are saying...Really, mom? Some of those 80 and 90 year old people know more than she does at 68. She tells me over and over it is like a nursing home. Hardly!! It is a nice place (building) but her mind is an awful place to be.
Trust me. And allow yourself to BE on vacation when you get there.
Happiness is the best revenge. Happiness is a really healthy break from the normal guilt/stress/anxiety of all this. You'll get used to this feeling and will stop allowing other things to take away from it on regular days.
My mom did/does the big guilt-trip when we travel as a family without her. When she lived in another state, it was hilariously outrageous that she would expect us to go down there and get her first. We're 1800 miles away! Now that she is here, she expects to go along on everything - especially if it's a trip that would make no sense to bring an incontinent dementia patient along with us. Like hiking around Lake Superior. Or sitting in a hot beer tent for a weekend for a music fest. The answer is just a big fat unapologetic NO.
You take care of yourself and your family. Stop depriving everybody else because your mom might get her nose out of joint over it. You are all adults, so you get to make the calls these days. She can just lump it.
I mentioned to mom once that I do not recall any of our family vacations where we brought her parents along. Ever. We didn't ever go out to eat with them. Ever. So why does she expect to be the third child in our family?
Make those plans and don't look back.
Enjoy your music fest in your hot beer tent...you will have a blast!
Feeling torn between just doing whatever I want and feeling like I could take her somewhere today. I need quality time alone and exercise. She talks non-stop and is so annoying, insulting, or such a brain drainer. If I hope for a fun time, a quality conversation, of course I am disappointed. Doesn't happen anymore. Ok. Time to call her. It's 10:30.
Tactic 1 worked. She already took a short walk, doesn't feel good but wants something to do later.
Tactic 2: Fine. The freedom bell is ringing. "I'll pick you up at 1:30 and we can go to the dollar store and places like that." success! She ilked that idea and I could go for a short hike!
I discovered a new short hiking trail, had my quiet time with God and a few of his insect friends, got home, made a big salad and then took my happy mother to a new thrift store. She was delighted at the surprise. We took our time, had a lot of fun. She was happy looking on her own while I wandered on my own. I kept checking back with her which she appreciated. We ate out at a buffet place on the way home an had a really wonderful day!
emjo: It is difficult when our days are scheduled around "them" even when we aren't really doing for "them". My mind is consumed day after day. I do feel some freedom now she is in AL. It has only been 4 months since my mom's move and I am hoping I can get less and less discouraged through each day. I hope my mind gets less and less consumed with what needs to be done for her.
juddhabuddaboo: You are welcome, I hope when I write it helps others understand they are not alone because coming to this site, so many others have given so much encouragement. It helps me to write it all down (even if it all doesn't make sense) it helps me and if it helps someone else in the process, then I am even happier. I am so glad your day went as planned or maybe better than you expected. Now, you can enjoy the evening in some sort of peace and face tomorrow without looking back.
Good night friends.
I pray every day I never get like that!
These people have such under-developed senses of self they rely on the outside world to validate everything. Some even fret that if they are not getting constant, non-stop narcissistic supply they might stop existing. This is something I personally can't get my head around. I'm not going to stop existing because I'm alone in a room. But, this certainty of mine is not true with the NPDs.
It's very existential. They have a physical self, but not a "soul" as I'd call it. We would think that if you need constant praise, attention, and validation, shouldn't you be nice to the people you want it from? These folks don't know how to do that because "nice" requires that you recognize the other person has feelings and is worth some level of human dignity. If you can't recognize that the other meat-bags standing around you in a room are people too, then you really don't have a foundation for sincere niceness. You can learn to fake it and force it though if that serves a purpose.
Remove that narcissistic supply and you get raw, pure narcissistic rage (google it). And we all know what that looks like.
I am so happy to see you and your sister are starting the process of making amends. Peace is a life necessity. When we have to hold in so much it is like drinking poison. Slowly it is eating away at your mind, body and soul.
Take the books and read them yourself, enjoy and get the last laugh. When I went yesterday to see my mom and do what I think is "right", a man came to visit his mom. My mom said there he comes. He comes EVERYDAY. (I told this already, but....) He didn't stay but 10 min and left. She was disappointed I saw he didnt stay long. I asked one of the workers later and he does NOT come everyday. My mom makes herself miserable believing to herself he comes everyday and I don't.
Father in Heaven, I pray to You to watch over each one of us and keep us safe from the afflictions of dementia and keep us healthy in our minds and our bodies. I also pray that You will also make our land of afflictions fruitful. --In Jesus name I pray, Amen.
They don't get how they affect people, and make up what they want to in order to explain why others stay away. Narcissistic supply indeed. That is what mother is after with her current hunger strike. I would have thought that the psychiatrist would get it. She is refusing food - or was last I heard, but is still drinking and taking her vitamins. It is almost laughable. She said she was taking control. Of what I am not sure. It is an attention getter. One of these days she will go too far, but she has survived her own self created crises for 102 yrs so I suppose she will survive this too.
You are right, loo - it is all or 99 % transactional. I have a very few memories of a "normal" healthy interaction with my mother and fewer with my sister, A couple of years ago I admired a bracelet mother was wearing -a narrow bangle of gold and mother of pearl. She took it off and offered it to me saying she had another identical one. No strings attached, no undertones, no you owe me now - she just gave it to me in an rare act of generosity. I treasure those few memories. They help.
Her answer: I don't care. I won't be here.
Another time I asked her why on earth would she not work with me on future planning her old age? Why do you insist on making it as hard on me as possible?
Her Answer again: I don't care. I won't be there. (She always insisted she'd not ever need care and would simply drop dead in her house.)
Nice. So there it is. If there's nothing for her, it doesn't matter. I don't matter. The inconvenience to anyone because of her doesn't matter. That was when I realized I had been carrying around a big bag of resentment for a really long time. And I had to work on that, not her. I'm a long way off from being done working on that big bag.
I feel like I am starting to sound like my mother. Shut my mouth. I do NOT want to sound like her, be like her, or even look like her.--(even though I do look like her) I hear her voice and I cringe. I can see those looks she gives over and over in my head. When I think of something fun to do or when I wonder what life would be like...I see her face all soured up and those eyes piercing right through me. Oh do I hate the look/looks. The look of "you should feel guilty" "what are you thinking look" the look that says "I could choke you".
Today I have had to tell myself, she is ok, stop thinking about her and her misery. She makes me miserable and I haven't even talk to her since Sunday. WHY I ask myself.--because I let her--because we let them. STOP!! NOW!!
Sounded good anyway. Ha!
Good night all...
When mom would get her facts all mixed up and start demanding I make sense of it - usually quite angrily- instead of doing that, I just respond with "we are all just doing our best to get by." Over & over. You don't have to rationalize anything. It's a response we've had since birth, to explain ourselves to parents. But that isn't a good idea most of the time anymore.
Then I immediately jump to "It's going to be OK. You are going to be OK. Your job is to just relax and stop worrying." I realize this is a ridiculous statement on my part. Relax is not in her vocabulary. Never has been. Anytime there was quiet time or we were supposed to be on vacation, she would just sit there, wringing her hands and holding her breath. How long can a person hold their breath? Apparently 77 years is one answer. I have never seen anyone else in my life do that.
Today mom started Seroquel to calm down. No amount of prozac and anxiety meds were doing the trick. She may be 5 feet tall and 200 pounds, but her low center of gravity can hit you like a truck. I'm curious to know if she has side effects, or if it will help.