Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
Jewel 2017 HAS changed the way you think. In2016 you thought she was being a pain - now you KNOW she is! xxx
Let me add it's perfectly acceptable to have the feelings you do. It's okay to share with trusted friends. As caregivers many of us go through difficult times, we don't like the situation. We need people to talk to. It's important for our own mental health, and you must always take care of yourself. Never, ever feel guilty about your feelings, taking care of yourself.
We have to take care of ourselves so we can be there for our kids as well.
Things at home have been stressful for other reasons not due to my mom and I keep asking myself "is this because I am not seeing my mom?" "Am I being punished in some way"...I realize the guilt does this. My aunt has remeasured me many times this is not the case. I am so relieved that the stress is not coming from my mom. At least there are times I can laugh and smile. When I was seeing her on a weekly basis, I was so depressed from the negativity. If my mom had not been like this all her life, I would say, oh it's the disease. It's her! The disease has just caused it to be seen by others not just family. She was so good at hiding her meanness to others and how dare if I ever "spill the beans". She could and still can manipulate like no other. I am just glad it's not me anymore. I do feel very sorry for those that take care of her. At AL I found out that they weren't giving my mom a schedule of activities and the girl over the schedule stated that my mom won't come out for any of them and she complains when she does. I had to speak up and say "Actually, it is my mom's choice if she comes out" it is up to the activity director to give her a schedule. See, they don't even want her out...how sad is that. I so worry since they have a new director, they may put her out for being so hateful to the staff. Then what?!? I try really hard not to think about that.
My mom takes antidepressant and anxiety medicine. She did, this past summer, stop taking her meds and ended up in the hospital from anxiety attacks. The director at the time took her meds and started giving them to her. I think the new director have given her pills back to her to be responsible for-since it is AL they only assist and don't hand out their medications. Without the medicine it is even worse.--if you can only imagine that.
Thank you again for listening when I get things on my mind. I think about each of you and your struggles--they are real. Be bold and stand up for what you know is right--right for you!!
Lastly, momsonlychild, your mother is only 75. I am 64, and I cannot imagine expecting my children to take care of me like that. Unless she is house bound or very ill, etc., get going with your own life! She'd that guilt and fear--get hep if you need to. There is still lots fo time for you, and don't waste any more of it than you have already. I wish you freedom and joy! You are entitled to these!
That's when I started looking up npd. Here's the funny thing about growing up with dysfunction. You only notice it when it happens to someone else. Seeing how she was reacting to my step-father made me realize "this is wrong. This is.... sick."
She refuses to wear diapers, refuses to admit she sabotages herself, has "convenient memory loss" when it suits her needs (my step sister took her to a doctor who declared her memory is just fine. I told her it's her "manipulation" that's getting rusty.) I ask my step-dad what he needs, and she pipes up "I could use a bottle of water!"
So as I head over today to empty the trash, clean the cat box, and take the trash cans to the curb, and then mop up her feces (again) and relay plastic from the bedroom to the bathroom (again), while trying to determine how my step-dad is holding up, wish me luck. I've been setting many boundaries lately. Consequently she's now posting "I love my daughter" on Facebook. Does having your npd parent publicly claim something they've NEVER said TO you make anyone else's skin crawl?
Thanks for listening! (Did I mention she drank my first 13 years of life, and has been sober for almost 45 years. Gotta love a "dry drunk" npd!!)
I mean really. Cleaning up her sh*t? Literally? Why are you paying the price for her refusal to wear protective undergarments.?
*****WHY????????????*****
She will continually test your boundaries - so set them very tight and hold to them. Not next time - but this time. "next time" is a threat not a boundary, and she knows it and suspects you will not keep the threat and will test it. Dont threaten a narcissist - just set the boundary quietly and firmly and offer her other solutions, again quietly and firmly.
Boundaries have consequences, like - if you do not wear diapers, I will not clean up your poop. If you don't want to wear diapers, I can help you find someone who will clean your poop at your cost.
With Bill so ill will there be visiting nurses coming to the house? They or her doctor could be helpful in assessing that your mom needs outside help and a neuropsych evaluation, You can list your concerns to her doctor in writing and give it to him. Good luck and let us know how you do..