Has anyone ever been told by their parents PCP that it is harder to get PetScans and procedures done on patients over 75? My Dad is 80 soon to be 81 next month. He has been diagnosed with dementia and has diabetes. My Mom is 79 and has Parkinson’s and Dementia that is causing a lot of issues. A least she still knows who I am. I asked her PCP if she could schedule a PetScan for Mom because her Mom died of Bone cancer and my Mom has been in so much pain she hardly gets off the sofa these days. Her doctor told me no she couldn’t because it is frowned upon to do that on someone her age. I was struck speechless. And that was the end of our conversation. My Mom is a one year survivor of breast cancer. So what the heck? Does Medicare stop paying for somethings after 75 years old? I am their youngest daughter and caretaker. The medical world frustrates me!
Mom was advised to get a heart valve replacement. I kept asking if it was a good idea for someone her age, 91. The surgeon told me sure, they could do it. I wanted to know if they SHOULD, not if they COULD. I believe the procedure and medications have advanced her dementia, so now we have a 93 year old with no memory but a good heart.
Adviocate strongly, loudly and persistently with doctors and insurers to get the best results.
The questions that we have been asked when one of our loved ones has been considered for one of these expensive diagnostics have implied an age bias of sorts, but in an appropriate way. They were variations of these 2 questions: Will the patient want to pursue treatment if the outcome indicates a treatable condition? and Will the patient survive the treatment if it is indicated? I think these are valid questions. It would be unfair to the elderly not to ask them.
Perhaps you misunderstood. It is not that Medicare quits paying for some kinds of tests or procedures, it is a matter of whether they are really indicated for the very old. It depends entirely upon whether the patient could endure the treatment, if indicated. Strong, robust persons in their 80's and 90's do sometimes get these tests and survive the treatments for the conditions revealed. More often there are enough complicating conditions that treatment would really be torture, without promise of either extending or improving life.
In my mother's case, she has opted to not accept surgical options for current and future medical issues. She is somewhat frail and experiences a fair amount of pain as part of her "normal" existence as it is. She would rather take comfort care than extend her life. In various ways we, her daughters, support her decision. We have differing attitudes, but support Mom's right to choose her treatment options. Her doctors are pretty good about explaining what the results of tests might mean, medically, and what options would be presented. If she is not interested in any of the treatment options then the doctor(s) normally suggest she simply not take the test and just see what happens. If she were to say that she would want treatment, they would recommend the tests. She has been doing this for more than 10 years now. She has prescriptions for as much pain medication as she wants, though she doesn't take much. This has been a good option for her, though she has confided in me that it is taking a bit too long to die.
For me, I no longer take mammograms, though I do get a colonoscopy every 5 years. Reason? I would not have a mastectomy, but the colonoscopy does remove polyps that might become cancerous. I am open to office procedures, but probably not major surgery. I had 2 knee replacements a few years ago and I love the new mobility that I have. When they wear out in 15 or 20 years, though, I doubt that I will do it again. I will retire to an electric scooter and a senior residence. That means that, since I have no intention of redoing the surgery, there will be no CT scans when the joints start failing. Why go to that expense when it will not change the outcome? It will be somewhat related to age, but more a matter of a wise use of limiting expensive testing to those who are ready to undertake treatment the tests indicate.
I believe that these realities are easier to accept for those of us who are getting up there in years than they are for our children, whose lives are still wide open with possibilities. My sons, not quite 50, do not want to see me leave them, but I understand that the time will come. I was in their position 20 years ago. I understand.
My hubby is 88 almost 89 with Alzheimer's, we recently decided not to do more testing on his hearing. What they would be looking for is a tumor in his brain. If he has one, we aren't going to do anything about it anyway, so why do the test? I don't do mammograms, or CAT scans on a mass in my chest which is benign. I have had it so long if it was malignant I would be dead. I also am not going to do any more PAP smears.
I used to be 5'9" today I am 5'3". I am in constant pain. I am seeing a Pain Management doctor. We are starting off with the least invasive procedures, which is Physical Therapy. I suggested it, it isn't working, but I wanted to try the lest invasive part first.
this has got to change! Why shouldn’t an 80 yr old have a scan? Who is to say one life is more valuable than another. Shame on US...
Ruling out one possibility ought to be the start of a conversation. Not the end of it!
Don't ask family dr about these things, ask the specialist. It may also be time to find a geriatric doctor.
The tests can also be stressful for someone with dementia. Some tests require anesthesia, which can exacerbate the dementia.
Why take a test to find out that your loved one has a disease that requires painful and stressful treatments or surgeries? Why would you put your loved one through all of that?
And, why prolong the inevitable?
My thoughts is if your in the Hospital there are way too many Tests and Procedures done that isn't necessary.
Usually older people do not get operated on unless it was an emergency because their is more of a chance that they would die from the operation than what is wrong with them.
Also tests, MRI's, Cat Scans, PET Scans, ect are too hard, uncomfortable and stressful for the Senior and is useless because nothing would be done from what the Tests may show anyway.
You already know your mom has Parkinson's and Dementia and she is in pain.
Even tho Insurance Companies including Medicare will pay for test the Dr's think are necessary. You need to know what would be the use of taking them.
If your mom shows to have Bone Cancer, it's not like they're going to operate and at her age I'm sure she wouldn't want to spend her last days being horribly sick from Chemo and Radiation when the outcome would be the same, and that's death.
Ask the Dr if it's time your mom should be on Hospice Care or something else.
the main thing is to try to make and keep your mom comfortable.
Even Arthritis, which everyone gets is painful.
Just talk with her Dr and have her meds checked and adjust the pain Meds.
Hopefully she can spend her last time of life in her own home and not in a Senior Home where no matter how lovely it may seem when viewing, if you put her there, it will make her feel unloved, lonely, depressed, scared and she will lose the will to live and eventually die alone.
Praters for all
For example. Your mom at 75 with Parkinson's and Dementia.
1. It would probably require having to put her under anesthesia or at least a very heavy sedation for any test. the resulting sedation can make dementia worse for a while and her cognition may not return to pre test condition. AND if the test came back indicating any type of cancer would it be worth it to put her through treatment? And if you did put her through it would she understand why and would she again have to be sedated to get chemo or radiation? (I am not sure I would want to go through that and I don't have Parkinson's or dementia)
If you wanted to push this you could contact the insurance and ask if it would be covered and get approval. But I do not think it would be wise to put someone with dementia through tests like that. Would you want them to have a colonoscopy? That was a test that my Husbands doctor asked me about and I looked at her like she was crazy. My Husband was 68 at the time and I said there was no way I was going to put a person with dementia (and me) through the prep and the sedation for a test like that. If it came back indicating cancer, I would opt to not put him through surgery.
My dad had a primary doctor for a very short while who was very young and did have an ageist mentality. Way before my dad got really sick, his then primary decided that dad was 'too old' to worry about and that his time was better served with younger patients. Now let me say that my dad passed away at the age of 72 and it was several years before this that his then primary decided that since dad was retired he should just 'enjoy his last days and not take up the reserves of the doctors'. (he didn't say those words but something to the effect of a couple of dad's underlying medical issues weren't really worth addressing because he was as 'old' as he was). That particular doctor was reported to the practice and is no longer there but is probably still practicing.
On the other hand, sometimes doctors have to put their foot down with some patients for their own good. (not saying that is OPs case). My FIL will absolutely jump at any medical treatment, especially a surgical option. He seems to believe that there is some magic treatment for the damage that years of uncontrolled diabetes, living at over 300 pounds, no physical activity, and a myriad of other diagnoses that can reverse all signs of aging and disease. Compounded by his narcissism, because he can't possibly have anything to do with his current nearly immobile status, he is always looking for some way out of it. And his doctors have stopped ordering unnecessary tests or treatments, much to his chagrin. His latest is that he needs knee replacement. He is 86 years old, 300 pounds, generally unhealthy, non-compliant with rehab, his philosophy is 'no pain, no pain'. But he is so angry that his doctor(s) won't even entertain the idea. They have told us he won't likely survive the anesthesia or the surgery, and even if he did, he would likely never walk again because the recovery would take a lot of work on his part that we already know he is not willing to undertake. His last stent in rehab for a minor fall found him discharged from the rehab at skilled nursing home level and deemed 'not rehab-able'. This was also borne out in the fact that his home PT, OT, bath aide and nurse time were extended due to COVID and he actually LOST some mobility due to his non-compliance.
So I do think that some doctors may limit what they are willing to do for those over 75 (my 94 year old grandmother had hip replacement several years ago, so it really depends on a number of factors), but I also believe they have to choose their patients wisely for a number of tests and treatments because they have to have a good chance at the expected outcome being positive to even warrant it in the first place. Sometimes a treatment can make things worse than they were before (we've been there with FIL as well).
I do think there should be something to help them with pain, that one should be non-negotiable where it is within the doctor's power to address it. That level of pain can impact so many other areas of your life!
Medicare still pays. There should not be a problem.
Take your mother to another doctor,
Then I read one comment below that said Parkinson’s and Dementia are both terminal illness so what is the point. The point to me is seeing my Mom in pain and in so nauseous every day she eats like a bird.
BUT--they are very expensive and a dr wouldn't order one up just b/c a patient has a random pain. During my cancer TX I had so many tests--the PetScan just being one of about 8.
Also, I walked down the hall after the PS and had a mammogram. Both scans show different tissue, I thought the PS would cover all the bases, but it didn't.
Her insurance is Medicare Kaiser HMO. She does not have Parkinson's or dementia.
Is your Mom able to follow the directions for the test? There is a lot of not moving so that normal activity doesn't light up on the test.
If the pain and the lack of mobility are what have you worried, ask about that.
Don't leap to a cancer diagnosis (and there are lots of tests to do for THAT before you get to a PET scan) without ruling out the more mundane causes.