For the past 8 years I have been the sole family member caregiver to my mother. I was the POA and executor of her estate and healthcare POA. My brother and sister did nothing. I have been grieving the loss of my mother during this time while also enjoying a new aspect of her personality. She became less bossy and more funny. More appreciative. At least in the middle stages. The last couple of years I was on a constant death watch, even though it did not come for two years. I am so relieved to not have this constant 24/7, 365 day stress in my life and at the same time I am a bit lost with nothing to do. The people I saw every day, her caregivers at the facility she was in, the other family members who gathered at the lunch table to feed their care receivers. The meetings with management and nurses to go over my mother's progress, or lack thereof. These were all daily routines. Reasons to get out of bed. A sort of self motivating and self congratulatory way of life. I did not ask for it, and I am ambivalent about whether I would have given it to someone else, but it leaves me with a sense of loss I have never experienced before. Yes, I have lost or quit jobs, but I always knew I would have to get another one. But now at 60, having not worked for 8 years and having received a bit of an inheritance, I find myself alone (not married and no kids, no religious affiliation and in a town I don't want to be in) and not wanting to burden those around me with my grief, or feelings of guilt to want my mother gone. I think I will seek out the hospice counseling that has been offered. It has taken me a while to get to this place of need of counseling because so many feelings are starting to arise. I was just wondering how others have coped.
Best of luck & my sincere condolences for your profound loss, dear woman.
My deepest sympathies and condolences. I am very sorry for your loss. You are an amazing person for caring for your parent. I hope the hospice counselling will help.
I can totally relate to your post. It's been one year since my father passed and I am still struggling a bit with what to do with my time. All our wonderful friends on this forum have given so many kind suggestions and good advice. I think it will be a lot of trial and error. Please be kind to yourself and know that you are not alone in your thoughts and feelings.
Take care my friend. Wishing 2018 brings you comfort and peace.
I have never been through such an experience. I am very grateful to have been able to fulfill her wish. There are many times I don't know how I did it, but I did it. No regrets. The greatest gift to mom was to keep her home. Her greatest gift to me was all the life lessons she continued to teach me through her struggle with Alzheimer's.
It's hard to describe how I feel right now other than to say I feel very lost. I still have my job but I don't feel like I belong there. I lost my friends over the past 5 years and I'm trying to reconnect but it's been difficult. I'm trying to be kind to myself as I go through the grieving process but it's been a challenge.
Absolutely take advantage of the grief counseling offered by Hospice. I will be doing the same.
I am just taking one day at a time, just as I have the past 5 years. I am making appointments to get annual testing done like a mammogram, colonoscopy, etc that I have not done in the past few years. I will be sitting down and coming up with some sort of plan for the new year, but I also know nothing is written in stone.
So, be kind and patient with yourself. We will figure this out. But I do feel that we need to allow ourselves the time to feel sadness, cry, laugh, do nothing, remember the good memories and just be. I believe caregivers are angels on earth. We will thrive in the years to come because we deserve to do just that. And we will. We just have to give it some time to sort it all out.
I wish for you this new year a life filled with joy, compassion, fulfillment and peace. That is my wish for you. Take care of yourself, my fellow caregiver.
It is change, the no longer having our WHOLE lives be wrapped up in: what does Daddy need, what do we need to get for daddy what do we have to not do, do, where do we have to go, what would be best for him as the money oozed away to the nursing home he lived in for the last three years of his life, my mother "does not believe in being paid by family for care" She said this over and over, while I did the bulk of the care. Being close to the man who would leer at me and make suggestive comments as both adult and child.
Yes, I am still angry, resentful and broke. My mother and aunt will split the bulk of what little is left of his money and I am still trying to get social security disability. I heard my aunt wonder in aggrieved tones "how much the grandchildren will get...?" There are five of us. Even though my brother lives here I was the only one responsible for grandpas care. Eventually, I got a monthly gift of two hundred dollars. What I may get now will only be enough to take me off food stamps for three months.
Yeah, I am angry and bitter and resentful and it will take some time for these feelings to pass, if they ever do. I have a therapist and group I go to and I think about going on vacation. I used to wonder what would happen if I stole his credit card and took off to Paris. I don't have to conscience or guts to do things like that. Some people just get walked over by life I think and I am one of them.
I am not sure what kind of person you are or what your values are. I say VALUE yourself. You are a good person and did a very hard job alone. You deserve a vacation and a good life! Find what you like to do, or try something you have always wondered about. Get involved, make new friend and acquaintances don't let yourself become down hearted, even as you mourn, see the loss as an inevitable part of life and that YOUR life starts now. You don't have to do it all at once, I know the odd feelings of day to day reality of, My life is no longer wrapped up in this other person! What do I do now. It is scary, it is a major change. Part of it, your mothers death, was not something you had any control over, but the rest is up to you. You may want to just coast for a bit, give yourself time to grieve both the loss of your mother and the loss of the, less than ideal, but very real life you have lived for almost a decade. Maybe it is like they say an empty cup can be refilled. I say look at that cup and all it held and be grateful for the good things that were in it, sorry for the bad bits, wash it out, and put it on a shelf and go find new stuff to put in it. New people, new experiences new places and things to fill it up for the next part of your life. I am 47 this year, It is not 60, but I feel I have hit an epoch myself. There is all that came before and what's next. I am hovering between resentment and genuine agency if you get my meaning. I won't say there is nothing stopping me as there are real life issues at play here, but my life is wide open. He is gone. All that came before, came before and the rest , how ever long I have, the next bit, is up to me. If you have faith, turn to it, if you have hobbies you once loved but dropped in the constant daily care and focus of caregiving pick them up again. Old friends, renew the relationship where it is possible and take up new interests and make some more. It is all up to you, hard as that can be to believe. In some ways I feel I was safer having to "live my life" for someone else. That was like a giving up for me, a dodge, a reason not to try. I guess I can't hide any more... Life happens, there is so much we have no control over, but where we have control, where it really counts, ask yourself, What is important to me and what do I want my life to be. In this new quiet, this open stage of your life, the answers will come Believe in yourself and give yourself the love and care and focus you once gave to your mother. That's how I see it, if it helps any. Take good care of your self, I hope 2018 is a wonderful year for you! Jen
I know what you are going through. I lost mom in September and I can't even think about celebrating anything. Like you.. I was "it" for mom with no help from my sibling. I am also having financial difficulties as a result of all this, so much so, that I am trying to get a second job and may have to be late with this month's rent as a result.
I cry a little everyday because I miss mom terribly. When I do though I tell myself she was unhappy being sick and her only joy was seeing me and knowing that I was her voice, her anchor, her soldier and her friend. I haven't sought grief counseling. I'm too busy trying to figure out how to sell or donate things, get that second job, pay the bills etc. I meditate each morning and before I go to bed at night and it really does help to keep you focused.
I hope the new year brings me love in my life. I am tired of being alone. Yet with all I have to do and working two jobs, I hope to make that possible. If you have your faith and you were as close as I was to my mom, know that you really did everything you could have for her. Know that she loves you and is with you and will be... You will see her in everything you do and feel her support as you endeavor to go forward in your life.
Time to take care of you now...
For me, Hospice was so very helpful. But i didn't realize they had a help program for after i lost my Mother, almost 2 yrs. ago. I DO know, that time Does heal. Say that over and over again. There are different ways for different people to get thru this. I was depressed and missed fixing my Mom's little afternoon treats. I felt guilty of not doing more. I also was the only one of my siblings to take care of her. I'm 70 now, and Did get another job...part time, and that has helped me a lot. I hope you take advantage of the help from hospice, and God Bless you for loving your parent enough to make sacrifices, and help them get thru the last days of their lives. Go forward, one day at a time. And come Here, if you need more support.
What I read is that you don't have the feeling of being needed now that your Mother is gone.
I also read that you enjoyed being there with other families too.
Go to a therapist if you truly feel that it necessary, nothing wrong with that.
What I also read is that you have...a life now and don't know what to do now.
You said that going to hospice gave you a reason to get up everyday etc. You can still do that!
Talk with the facility manager about becoming a permanent visitor. There are many people who do not have anyone to care. You can be that person who cares.
You may just find someone just like you and who knows what life will bring your way.
It just may turn out better than EHarmony.com😁
Coming 2 mos. since mine passed, been on such a roller coaster ride of emotions! Still not wanting to make her mad, a lifelong "thing".
So many posters here who share aspects of your situation (SO many!) Adding my name to the list of singles/no kids. And now what??
Finding myself anxious to delve into everything I had planned for back when I quit my job to start something new in life. Had no idea what I was starting was a ft+ unpaid job of tending to Mom and her needs, whether they be perceived, or real.
For anyone reading and wondering, if you can stop yourself from quitting your job, please do so.
Friends are looking at early retirements now, and I'm wondering where I'll begin working, and for how long.
To the OP, maybe give yourself some more time for your thoughts to clear, and open up as to how you can now fill your time, for you. Its probably been so long since you were able to do that, it may just feel foreign now. Why I asked how long its been since she passed.. it will take some time. Can't say how long as everyone is different.
I still agree on an old addage: Don't make any major decisions for at least a year. Although some times life can take away from that, too.
All the best, and hoping you find peace and comfort.