Yep ANOTHER day where I get to sit here and listen to my mother rock in her squeaky rocking chair all day while do nothing siblings get to go on with their merry care free lives. I KNOW I'll never REALLY get over the resentment I have for certain siblings, but how do you get past the Anger ??
Regarding being the martyr - I totally agree with the other posts. I do what I do because I have to and I can't just leave and go out like my brothers do. It gets my blood boiling that that is their suggestion to help me. NO - unless you all fill in, I have no choice. The option is not there for me like It is for them just to not do anything because they know their sister is taking care of the parents. I don't have that fall back!
Mad respect out there for all the caregivers. Not for the faint of heart....or the lack of one either
As far as resentment you feel towards your family for not helping out you can't be concerned about them. They will have to live with regrets once your mom passes away. You can not change them, only change yourself and how you react to them.
God bless you for bring there for your mom.
When I realized how long my mother might live, I started putting pressure on my siblings to help out. Not so much with physical tasks, but with trying to push my mother to be more active, go to the rehab prescribed by her doctor, manage her money better, use assistive tools to allow her to do more things independently, etc. In other words, I was realizing this was likely to be a long haul, and I wanted us to work together to try to keep my mother from becoming an overwhelming burden to us.
My siblings were not willing to get involved because it wasn't affecting them personally. Of course they said "Well, you came down here to help Mom. You wanted to do this." Which was true and not true. It quickly became not true, and they certainly knew it, but people who don't want to help will use any rationalization to convince themselves that they shouldn't have to. Another one is: "Well, Mom seems to prefer to have you do things for her." Well, yes, because needy people reach out to the person who's shown a willingness to help in the past. They generally won't waste their energy trying to get help from people who make themselves scarce. It's a perfect illustration of no good deed going unpunished!
When I first came to this site I was shocked at how long some of you had sacrificed your own lives and well being to care for your aging parents. It took me a while to realize that many of you had no idea how monumental your task would end up being when you signed on. I can be pretty thick at times :)
Your stories have helped me to enter into my own care giving choices cautiously. I am humbled and grateful and pray that each person here find the solutions they need.
One quick bit of wisdom I heard that really helps me. I can't even remember who said it but I think of it every day..."If your best is not good enough then stop and ask for help"
Thanks for being here.
My resentment is towards dad, who expects me to do all the work associated with his care & management, and then talks on and on about preserving "our" inheritance. No way will he consider changing the 50/50 estate distribution, as that wouldn't be "fair". Which has brought up a lot of old pain from my childhood, when "fair" was defined as exactly equal no matter how unequal the circumstances. I am dealing with this by a plan and a deadline for dad to move out of here into assisted living.
If you knew that you were putting your life on hold for more than 10 years, would you jump in and do it without even thinking about it? Yet in many of the posts I read on here, that's essentially what some do. No real plan, just jump in and do it, then realize that we may have bitten off more than we can chew.
I think when it comes to the point where we resent what we are doing, and resent everyone else, that opens the door to, shall I say, less than stellar care. It is an impossible job to do alone. Early on when the loved one has the ability to do more for themselves, we all think "we can do this". Later, when we are tiring out and our loved ones are no longer capable of doing much for themselves - in other words, we are worn out just at the same time that the burden gets heaviest - we really, really need the extra help. Whether that help is familial, or whether we have to hire someone, or move them to a nursing facility, we need to realize that the day is going to come and to prepare for it. Easy for me to say, right? We are 8 years into full time caregiving, after 3 years of part-time, and I'm afraid that we are going to wear out before she does. Some days the exhaustion is more mental than physical, but it's there nonetheless. And we have respite, I cannot complain.
These last several posts have offered some real insight into the issue of sibling participation.
TMB, your revelations are also very insightful, and helpful, especially the assessment you've done and determining what you will or won't do. I think it's an assessment we need to make, including me, because there are often times when I feel sucked in to a whirlpool and have to fight my way back to recognize that I alone am the one who can set the boundaries. In that sense, I have more control than I often realize.
Like any word,martyr, can be abused. So I agree Carla, it should not be used willy nilly but there are times it is appropriate.
I don't recall my brothers asking if they could help. At the same time I know that the brother living closest would be there if help was needed. They probably don't see the need, because I usually don't talk about the things Mom does when talking to other people. I want her to be able to have some privacy here without me talking to everyone about what she does. I save that for here where we are anonymous. Mom is able to showtime while the brothers are around, since they only stay an hour or two. They don't get to see the real problems.
I didn't realize how little my brother knew about what I do. His wife's estranged father recently died, and he was talking about all the mess his wife was going through tending to things. It was the same thing I went through when our father died, only a bit simpler. It was then I realized my brother had no clue about elder care and everything that goes into it. As caregivers, we can pull all the problems into a shell with us so that life can go on for others.
I have a feeling it might be different with sisters. I wish I had one or two of them. Men don't seem to tune into intimate family things beyond their own wives and children. Or at least it is that way in our case.
So no, I'm no martyr. I was practical when I got into this. Now as time wears on, it is becoming less practical for me personally. I see my life passing by with no end to the caregiving in sight. (My fault -- I need to find a way to "cast my bucket where I stand" as Booker T Washington once wrote.)
In many of these cases, there's no inheritance to speak of either, because elderly people who have assets don't need to rely on their children for help. My siblings all agree that "we" her grown children, have to provide her with whatever help she needs, since she can't afford to pay for help. The rest of them have all set up reasons in their minds why "we" does not mean "we" collectively or implicate each of them personally, but actually means me, individually. So there have been no offers to help, refused or otherwise. One of my do-nothing siblings also had the nerve to claim I was acting like a martyr while insisting in the same breath that I had to be the one to take responsibility for Mom. Isn't a martyr somebody who has a choice? Gee whiz!!!
Anger isn't always a bad thing...we always think of it that way because we are told its bad but in fact anger is a real motivator. Think how well you can get on and clean the house when you are steamingly angry for starters but on a more serious note anger is a natural reaction.
If someone else has royally p***ed you off then what triggers you to handle that? Yup, you got it, anger. It's how you communicate that anger that's important.
Hiding anger actually makes everything 10 times worse. You do nothing so nothing changes. And your anger and frustration intensifies.
If you are angry, and looking for a resolution to THE ISSUE you're angry about, then you need ultra super communication skills because in my experience there are none so deaf as those who don't want to hear (or do).
It is perfectly OK to tell them that since they do nothing, since they contribute nothing that is positive you would appreciate them not contributing negatively to a difficult situation. You should add that if they continue to be so unhelpful then you will be changing your telephone number so they CANT contact your mum except via snail mail. Whilst you may not isolate your mum (classed as abuse) you can PROTECT her from negative input. If you take that route you can almost guarantee it will get worse because you will have conveyed anger AT them, rather than TO them about an issue
Its really a very fine balance you tread and its truly not an easy one but I would suggest you direct your anger to the issue not the person and then address the person with your concerns about the issues.
SO for example....if they are saying oh you must get xxxxx (AKA you) to take you to the doctor it could be x, y or z and you should get that checked out...then you should tell them something like this
.........last time you spoke to Mum about her health she became very agitated - can you just check that sort of thing with me as I go to every dr's appointment and I probably know more and can remember MUCH more than she will. I just KNOW you're not getting the full picture which I why I am telling you this.....
note the word telling not asking but you are telling them to speak to YOU about health issues. Then because they clearly don't have a clue, tell them
..when Mum starts on about her various problems just remember she tells the same story over and over and even after we have addressed it she still tells it over and over ...... I find it best if I steer the conversation back into calmer waters....otherwise she becomes fixated which is bad for her blood pressure (doesn't have to be blood pressure but h*ll they don't know or possibly care so it doesn't really matter)
That way you are not addressing the person but the issue far less confrontational and possibly more helpful. I know you don't want your Mum in Texas with you but I have a very horrid feeling you are going to have her there for a long time - you might just want to prepare for the long haul or be prepared to make some very very tough decisions.
How many siblings do you have? What are their predicaments? How many of them have the room to take her in? How many can afford it? Do they work jobs where they are never home? Basically, I am wondering how many of your siblings are even capable of taking her in?
You mentioned that your mother is on a waiting list for a place. Will she be living alone in this place? If so, why is she okay to live alone but not okay to leave alone for you to leave for a day or two? I know you said she fell and broke an arm but that can happen to anyone. Healthy athletes sometimes fall and break bones while at home. If you would have said you came home and found the kitchen flooded because she left water running or something, I would understand, but a broken arm doesnt fully sound like someone who cant ever be left alone.
I am only trying to understand the circumstances better and maybe help you see them differently. Unless I know your circumstances better, I cannot say you are doing this, but it is very common for people to see problems as much worse than they really are when they get overwhelmed. Sometimes it is best to step back and analyze the problems from a different angle and see if you are making them as little as possible, or worse than they are.
If she is footing these expenses, then she has money to pay for a little respite. Hire someone to stay with her from a home health agency for a few days and go somewhere. Use daycare facilities if they are available in your area. Perhaps she could do some volunteering and get out of the house some. Maybe a part-time job?
p.s. A lot of times when siblings are involved in the caretaking, we aren't happy with what they have to say or do.
Lord give me the serenity to accept the things I cannot change
The strength to change the things I can and the wisdom to know the difference
I know that sounds trite but if you can refocus and consider how to manage your Mum in Texas I am sure it would become easier for her and for you. Clearly she is not easy to manage alcoholics are always alcoholics and your Mum sounds like she is quite high maintenance/narcissistic so it's not going to be easy in the short term but not doing anything will not change anything - firs to all either get her a new rocker or address that bloody squeak cos that would drive a saint nuts.
Then look into what care you can afford for her. Don't fret about your siblings - tell them the truth - I am cutting off contact because ......
Then work out a plan FOR YOU what do you need? What do you want?
Needs and wants are significantly different. NEEDS ARE MUST HAVES they are not negotiable and you need time off for good behaviour without a doubt - respite is not a want it is an absolute necessity if you are to remain sane.
I don't have solutions but I have processes to go through - and remember if you keep doing the same thing you will keep getting the same result - good luck xxxxx
As for your anger toward your siblings - you must let it go - if you are unable to get them to help you - not going to happen - the anger will consume you - as you said they are going on their merry little lives -- do not do that to yourself.
To get past my anger towards my non-helping stepchildren in caring for their Dad,
I pretty much got them out of my life (will email them if situation with him warrants but otherwise have stopped all other communication with them) and I took a three step stance,
1. When I start to get angry, I assure myself, I am the better person and move on -read a book, play a computer game, call a friend whatever you need to do to move on.
2. Forgive your siblings - they are what they are - accept that - know that non help is what you can expect from them and don't expect more - if you are going to continue to deal with them - let them know in a normal way how you feel - holding it in is not good for you and fuming over them while your Mom is squeaking away will eventually eat you up.
3. Include them in a prayer once a day - this has helped me more than anything, I ask God to forgive them and watch over them. Of course this is after I ask him for the strength I need to continue on.
Know that you are not alone, many many caregivers are in your same situation, you must take control and make it bearable for you - caregiving does not mean that you give up your life, health or happiness --- I will add you to my prayers as well and hope that things get better.