Two years ago, my day had liver and kidney failure suddenly. I was with him for the last 3 days when he came home under hospice and I sat with him for the last 3 hours until his death. At the end I saw his skin mottle and go grey, his breathing speeding up and then he suddenly breathed his last breath. It was a terrible awful 3 days. The last 3 hours were horrible. I can see you all have been through much worse, but it really affected me. After that I felt so detached for a long time. It was like the world was foreign to me...like I wasn't connected to it anymore. It took me a long time to get over this.
Then this past weekend I was visiting my mom (who is 84) who hasn't been doing well. As I was sitting across from her I saw the skin on her left hand suddenly change color in the same way I saw my dad's skin change just before he died. That lasted for awhile and then lightened a bit. I had an immediate panic attack. I had to go into the bathroom and calm myself down. Then when I came home I am experiencing all that detachment and upsetness all over again. I thought I got over this...evidently not.
My aunt is living with me and will probably die here at some point...maybe in front of me.
I am not cut out for all these elderly people dying in front of me thing. I am so stressed out with all this. I am such a wreck since last weekend when I saw that sudden skin mottling in my mom. I know people get old and die but this is too much for me to have them die in front of me over and over.
I can't do this anymore. How do you get over this? Everyday I am waiting for the call from the place where my mom is saying she has died or maybe going downstairs and finding my aunt dead. I feel like my life has turned into death row.
1) Grief is not a sign of weakness nor a lack of faith. It is the price of love.
2)The Lord is close to the brokenhearted and saves those who are crushed in spirit. Psalm 34:18
We don't wear outward signs of our bereavement and somehow we seem to also have lost the concept of a period of mourning, or of being fragile. Your husband's father died a month ago. You had to participate in end-of-life decisions. It was a very traumatic event. Of course you aren't your normal self! Be gentle with you.
It sounds like it might help you to talk about your feelings. Why not hook up with some grief counseling and see if that helps you?
I, too, was scared I'd never recover. Not true. We each go through the process in our own ways. It takes however long it takes. But recovery is the norm.
We're with you in your pain the best that we can be,
Carol
Thank you.
I can identify with what you are writing. I too am normally the person that fixes things. But seeing my dad a couple of hours before his death has been very hard to process for me. Everyone has tried to give me the right words, very comforting words even, but I still can't seem to wrap my head around what I saw and the finality of my dad's death. I too am trying to get my more help through reading, counseling, support groups, whatever it takes. Take care and please let us know how are you doing.
Watching someone die is a very dramatic experience for most even if you are expecting it. I don't know if it would help or not but I feel knowing what to expect in different circumstances might help.
If possible having something to do to help rather than sitting by the bed waiting for the inevitable afraid to touch your loved one in case you do something wrong. Little things help so much, moistening the lips, applying lip balm, putting a cool washcloth onto a hot brow. When the awful bubbling in the chest happens, and it does not always often turning the patient on their side lessens it. There are also meds that can be given to dry up secretions. Even if the patient is unconscious or can't swallow they can be given rectally just like a suppository or even slipped in the mouth between the teeth and cheek. it is best to moisten the mouth first with a damp swab.
Feeling that you have helped your loved one pass peacefully can help with the grieving. Feeling paralyzed after a death is perfectly normal your brain just has too much to process but if it does not improve then you probably have a form of PTSD which you may need professional help for.
Most Hospices have grief councilling available which anyone can attend. Your loved one does not have to be a hospice patient for you to be welcomed.
You do not have to be present at the bedside when a loved one dies and often the patient will wait till they are alone and pass then. When you sense the end is coming make time to say your goodbyes and tell them whatever is on your mind. Don't feel guilty is you were not actually there, you were there in spirit and thinking of them.
"In the beginning, the waves are 100 feet tall and crash over you without mercy. They come 10 seconds apart and don't even give you time to catch your breath. All you can do is hang on and float. After a while, maybe weeks, maybe months, you'll find the waves are still 100 feet tall, but they come further apart. When they come, they still crash all over you and wipe you out. But in between, you can breathe, you can function. You never know what's going to trigger the grief. It might be a song, a picture, a street intersection, the smell of a cup of coffee. It can be just about anything...and the wave comes crashing. But in between waves, there is life.
Somewhere down the line, and it's different for everybody, you find that the waves are only 80 feet tall. Or 50 feet tall. And while they still come, they come further apart. You can see them coming. An anniversary, a birthday, or Christmas, or landing at O'Hare. You can see it coming, for the most part, and prepare yourself. And when it washes over you, you know that somehow you will, again, come out the other side. Soaking wet, sputtering, still hanging on to some tiny piece of the wreckage, but you'll come out.
Take it from an old guy. The waves never stop coming, and somehow you don't really want them to. But you learn that you'll survive them. And other waves will come. And you'll survive them too".
I know you are talking about the trauma of watching your loved one die, but I think that the trauma and grief go together. It is awful. I see this is written 6 years ago and I hope things have improved for you now. Maybe you could update people on what helped you?
I don't know what to say to someone going through the same thing other than to let them know they are not alone in this life trial. I hope you find peace as I keep looking for my own but I know it will take some time for both of us.
I hope that one day I'll be able to picture the happy moments of my life with Mom instead of the sad ones before she passed. May 9th will be two years since she died.
As a nurse, I've watched more people die than othets in the general public. Each one is different but they all result in the end of life of the body.
I believe that all people have a soul, making each person uniquely different. I also believe that the soul is immortal and lives forever. The body is designed to last only so long but the soul lives on in a spiritual realm. This comforts me, knowing that the special part of my loved one continues on. The hard part is that there is no connection between the physical world and the spiritual world. That part is done on faith. As hard as it is to loose your loved one, they live on in a realm where we will be going when it's our turn.
Counseling will help make sense of this confusing time.
If you don't believe there is life after death, you have to keep really quiet about this and just think positively for them.
But once you are alone, this is the moment to give way to every emotion in the book, from rage to panic to helplessness. This is you being angry with Fate or Destiny or whatever. If you are with a grief counsellor or sensible friend, you can admit to these emotions. For the rest of the time, when in public, pack away your emotions and feelings. Time passes, and while time does not remove or dim your the emotions, with time you will be more master of yourself.
I think the main thing that has helped me deal with death, is that I know that I did what any prudent nurse would have done.
The other thing that helps is to know that dying is something we all must do.
I truly believe by your short post that you have done everything possible that you can or did do, and in a loving spirit.
I will tell you a story that happened a LONG time ago, that whenever I am reminded that patients die, this comes to mind first and foremost.
It was about 0300am in the ICU. My new admission was a man in his 70s. His lady friend was with him, as was her nephew, a patrolman in uniform.
I hooked him up to the monitor, put on his oxygen, and was starting his IV.
I could tell by his cardiac monitor and his vital signs that he was dying. I asked him, "Do you want me to call the Chaplain?" He did not say "No."
He said "H*ll, No."
Then he died.
This has disturbed me more than any other death I have witnessed, even my husband's death.
I'm a nurse too. I understand how you feel. I've felt sad for those who profess no belief in a "higher power" (God, as I refer to Him). Their deaths seem so final and empty. Even though we are the highest life forms on the planet, we all have a Creator (IMO).
I have prayed with dying patients (their idea or open to it) and I believe it has benefited both of us. How sad that he sounded so angry for his last words.
I respect (and even envy) people who believe they are going to heaven. I am not religious and it's pretty much impossible to convince yourself to believe if you haven't been raised that way.
My Mom passed away on June 10
She want to remain at home...and that wish was granted.
Her final week was a nightmare. The horror of that final day will haunt me for a long time. Nothing prepared me for the reality of having to watch my Mom go through that ordeal while I did nothing to help her. I understand that there was no longer anything to do that was going to make anything better....but it is still hard to live with.
My only ray of comfort is the belief that she was not aware of what was happening. But, I have to live with knowing everything.
Hospice was only visiting maybe an hour a day. They are not there at the end...they only get called after the caregiver has taken that journey alone.
My sanity was saved by the incredible home health aides. Two ladies Took turns being daytime aides for my Mom for the last year of her life. They were with me during that last week.