Where do I start. Mom is 89 and Dad is 91. He still drives, but shouldn't; he has told us (three siblings) that even if we take away his license he would still drive. Dad is very very mean; no this did not become of lately, he has been mean all his life. His way or the highway. This has become increasingly worse. He is VERY independent and does not like when you explain to him you want to help, Dad will take it as he is weak. Yeah he is weak, he is 91. But in his mind he is 51. Most of the times I can let things role, but yesterday broke the straw. My husband and his brother planted our garden with everything Dad wanted. Every row is marked with what it has in it. Dad was already planted over the carrots and yesterday he planted right over the okra and beans. He wanted his OWN role of okra, so with no regard to my husband and his brother, he planted his okra. I know all of you will say it is just a garden and to be glad he can still do it, BUT this is with everything. He breaks things constantly around the house. We have "old-aged" proofed it, but things seem to find him. When he breaks our stuff he hides it or tries to fix it (always looking horrible). He never apologies and will never replace it. I have had it up to my eyeballs. I am wanting to move, but I will still be the one taking care of them. My older sister has a husband with bipolar, brother has a wife that is, well not stable, and my other sister just lost her husband and has her daughter and three grandchildren living with them. So I am in a pickle. I feel guilty about not wanting to help, but I am being honest. My poor husband deserves the gold metal for having patience with them, but he is able to walk away from them more than I can.
My heart goes out to each and everyone of you. This is not easy and until someone walks in our shoes, they do not understand. I am glad I found this site where I may vent. I cannot talk to my siblings cause they have their own problems and I do not want to burden them with more.
Thanks for listening. Have a wonderful day.
Jett
I'm sick of waiting hand and foot on someone that doesn't seem to care about my feelings. OOOH now it's all about me, but it hasn't been about me for at least 5 years and I'm just feeling DONE.
My mother just died this summer, leaving behind my father who has Alzheimer's. Now, he is very, very dependent on me. Insisting that I fly 3,000 miles to take him to doctors' appointments when I cannot afford to do so. I have one child in college and another in high school and my husband often travels for his work.
My father has stated that he wants to move in with me, but his rages are entirely too much. He harbors various paranoias about people stealing from him. Though he certainly has means, no one has been misappropriating any funds. But he'll call me on the phone, raging over the $30,000 my mother's funeral cost. "No, Dad, her funeral did not cost $30,000; it cost $10,000." "You're lying to me!" "Dad, I'm telling you the truth! I watched you write the check to the funeral home myself!" Just too much anger and distress and craziness.
My father's grandfather had Alzheimer's and my father always feared that he would end up this way. Just very, very sad for all of us. I pray to God that I never burden my own children in this way. Without abundant resources, the burden on the family is completely unsustainable. It truly becomes impossible to care for children and seniors with dementia at the same time. And I'm not really sure that society can afford to bear this burden through Medicare either. Those who bridge the gap are saintly grown children who are willing to sacrifice their own lives in service of those elderly who are only too willing to take, take, take. Is this really God's plan??? If the answer is yes, I just feel truly distraught.
You can, however, control your own actions. And that turns out to be a pretty powerful ability, if you do it with some thought.
You can say, "I am available to take you to appointments between x and y. If you need appointments outside of that window, please make other arrangements." AND STICK TO IT!
You can say, "I am not available for telephone calls between x and y. If you have an emergency, please use your lifeline button." And you can check caller ID and DO NOT ANSWER HER CALLS BETWEEEN THOSE HOURS.
You can leave her alone for a while at a family event. You've already heard all her bowel and pill stories -- let her find a new audience.
You can realize that if she freaks out at your reasonable behavior, if she goes ballistic, if she gets sarcastic, if she is unhappy ... the world as we know it will not end. Her unhappiness is her problem, not yours. (Repeat the "Not My Problem" mantra as needed.) She gets unhappy when you will not take unpaid time off for her benefit? You are in control. You make your decisions. You cannot control her reaction. She doesn't like it? Tough cookies!
You can let her handle her domestic help as she sees fit ... and to suffer the consequences of a very high turnover rate. You can realize that this is Not Your Problem.
Yes, your life is VERY stressful! And as far as I can see, there is only one person who can change that. You! Your autistic child cannot reduce your stress level. Your boss and your banker are unlikely to reduce it. You mother most certainly is not going to care two figs (or even one fig) about your stress level. So if you want less stress, let go of all the MANY things that are Not Your Problem but that you are so fussed over. Set boundaries with your negative mother and ENFORCE them.
What I'm suggesting is a huge change for you, and changes are often very hard. Perhaps some of the time you are going to no longer devoting to your mother's unreasonable demands you could get some counseling to support you in taking charge of your life.
PS ... give your sister's advice serious consideration.
I know it is hard for you to make changes, but it is the only way anything will get better for you. You have to say no, suggest alternatives and stick by your guns. Your mom's thinking is so screwed up. You are her daughter who has an autistic child and another child with ADHD and you are their soul support. But she thinks that it looks bad if you and not taking care of her. What looks and is bad is that your mom can make other arrangements and give you space to tend your children and keep your sanity, but no that doesn't work for her. Well, that is sick thinking. Please don't buy into it. You know better. No one but you can act on what you know is right. Your choice. Sending you hugs, Cattails
Since your mother is financially set, she can afford to have people do her yard, housework and laundry. If she runs them off, then her yard, housework and laundry will not get done. That's her choice and she can live with it.l
If you want to do her grocery shopping, then you do it once a week when you do your own shopping. She can make a list and give it to you over the phone. One trip per week, that's it. If she wants more than that, then she should hire an agency care giver who will run her errands and do her shopping mid week or as often as she likes. She can pay them for their time.
How is it that you can take her to all her doc appointments without losing time from work? Since she is mentally sharp and there's not much wrong with her at this stage, is it necessary that you be there? Again, a caregiver can take her.
I think you have to tell her that your doctor says that you have your own health issues and you need to put them at the top of your priority list along with your children. Of course, she will not like this because she does not seem to care about you or your well being. Again, that is her problem, not yours. If she says her condition is worse than yours, tell her that your children do not have another mother to care for them, so you have to take care of yourself. Don't debate it with her. Give an honest simple answer and be prepared to stand by it. End of discussion.
I know all of this is easier said that done, but what other choice do you have. None. Set a time on the weekend to come and see her. Stick with that schedule. No more than a 2 hour visit on the weekend. You and your kids have a life and a house to clean and laundry to do and homework that needs to be addressed. Your children need you to see them and participate in their lives.
I'm not saying you can't go over a cook a meal once a month and have a family dinner with her. Maybe you can even get your sister to join all of you if boundaries are firm, but you have to decide what works for your life and stick by it.
In the process, agree with your mom that if she falls and can't get to a phone, then it is likely she will be on the floor for some time without assistance. It would, therefore, be in her best interest to use the life alert system. Again, her choice.
You can throw however much kindness into this as you feel from time to time, but you must make a choice about your life also. Just like your mother, it's your choice. If you can't be an advocate for yourself, then you are doomed because no one else is going to do it for you.
Stop worrying about being a burden to you children and start being part of their lives. I am hoping that you do not have a serious illness, but I can't control that and neither can you. This should be a wake up call to you to enjoy the health you do have and that you must find ways to keep it. That again is your choice.
I know this sound harsh and blunt, but I don't know what else to offer you. If you want change, you have to make it happen. Your mom will be unhappy and angry, but that is nothing new. She can afford to get the help she needs. You have to provide for your children. Maybe you should also consider counseling.
Sending you encouragement and best wishes. Please let us know how things proceed. I hope you can learn to reclaim your life. Hugs, Cattails
I can not figure out how to send a private message so I am posting here.
You words of encouragement made me take a second look at what is going on and I am in the process of getting myself help.
Very often the isolation of these situations is dangerous and I have to thank you both again for taking the time to write.
I will figure out how to use this site as I want to know more about other folks challenges so as not to assume I am so alone.
Wayne
Their personal fulfillment is not more important that yours.
Look, you are a good, compassionate, talented man. You have dug a big hole for yourself and now it is time to start climbing out of that hole. Please call your local Area on Aging and your local Department of Social Services. Find out what resources are available for your folks. You do this, you are a smart, creative, patient man. Get to it.
It's better to meet with people face to face whenever possible. Please start taking some steps to get your parents placed or get them the in-home care that they need.
Start looking for jobs and get back into the world. Life is out there and it is waiting for you to believe in it.
This will be a journey for you to reclaim your life and live it for all it's worth. Don't give in to despair. Please stay in touch. Sending you lots of love and hugs and wishing for your happiness. Cattails
WHAT?!
In the first place, what on earth do you mean that you don't have a life? You don't have a wife and 2.3 kids and a cocker spaniel so your life doesn't count? Who told you that? That is just crazy.
Twelve years ago you agreed to totally and completely give up your life and business and savings and identity. WHAT?!!
Wow! Where did you get these ideas that your are not a valuable unique individual with a right to a life of your own?
Well, never mind where you got them, because they are WRONG.
I don't know who these people are who expect that you should sacrifice everything for your parents, but believe me, it is NOT "everyone." What kind of parents expect this kind of sacrifice?
Here is the good news, though. You don't need to end it ... you just need to change it. And that will be a LOT OF WORK. Working to change things will be your life, at least for a while. Are you in counselling now? I can't imagine taking on the hard work of turning your life around without help and support.
You may have another 30 or 40 or even 50 more years to discover/build/celebrate your own life. You matter. You count. Your life is important.
Please, please post again and tell us that you are going to start down the hard but rewarding path of reclaiming your life.
My story in a nutshell:
I left my business (was an Architect) and moved back home when my drug addicted brother got cancer and instead of him surviving the 3 to 6 moths the Doctors said, he lived almost 2 years.
I took care of him and made sure he was in want on nothing which kept me from working the whole time and essentially brought my life's savings to ZERO.
Well, after my brother passed my Dad asked I move in with them (my Mom had a stroke in 2000 and is totally unable to take care of herself- paralyzed and in diapers). Although I had spent most every weekend taking care of my Mom to give Dad a break, I was familiar with what he was asking- to totally and completely give up my life and business and savings and identity...
So I did it.
And now I am in a torrent of depression and bankruptcy and close to wanting to end my own life...is this what one owes ones family? Really?
Unfortunately I am a gay man, 49 years old, and everyone expects that since I do not have "a life" or a family of my own I should sacrifice everything for my parents.
Is this what it comes down to?
I am shocked how life has unfolded due my inability to say "no" to my family.
I am ready to end it-
My story in a nutshell:
I left my business (was an Architect) and moved back home when my drug addicted brother got cancer and instead of him surviving the 3 to 6 moths the Doctors said, he lived almost 2 years.
I took care of him and made sure he was in want on nothing which kept me from working the whole time and essentially brought my life's savings to ZERO.
Well, after my brother passed my Dad asked I move in with them (my Mom had a stroke in 2000 and is totally unable to take care of herself- paralyzed and in diapers). Although I had spent most every weekend taking care of my Mom to give Dad a break, I was familiar with what he was asking- to totally and completely give up my life and business and savings and identity...
So I did it.
And now I am in a torrent of depression and bankruptcy and close to wanting to end my own life...is this what one owes ones family? Really?
Unfortunately I am a gay man, 49 years old, and everyone expects that since I do not have "a life" or a family of my own I should sacrifice everything for my parents.
Is this what it comes down to?
I am shocked how life has unfolded due my inability to say "no" to my family.
I am ready to end it-
If your mom has dementia, then we can give her some slack as it is a real disease and she can't control that as much as she or we would like her too.
Nevertheless, you might be better off spending less time in a setting with her. A pedicure on one day, the oral surgeon on another. Of course you might feel it best to do the marathon and be done with it for the week. Not sure what your daily schedule with your mom is or what you want it to be.
I'm sure you will do the right thing for your mom, but in order to have some peace, you need distance too and time for your family.
In 2009, we visited my cousin in Wales. During one day, her husband received 33 phone calls from his mother. She threatened him that she would call social services if he did not call her back. She had and continues to have dementia. She was 92 when we were there. You can't reach her because her illness prevents it. She was well advised that he would not be available during our visit. She had in home care and meals, but it didn't matter.
Its sad what so many of us have to endure with our parents. You are doing your best so be kind to yourself and appreciate that you are only human and your mom is not in her right mind.
I posted on your wall. Sending love and white light your way. Hugs, Cattails.
THE world of NPD, A VERY REAL SITUATION people can find themselves in. Know that you are not alone, that this "sorry you will never please me" malady is real and can be futile to fix or fight! Study up on it to release yourself from that guilt demon. Some guilt is understandable and healthy but the false guilt you have been programed with as control mechanisms is just part of narcissistic personality disorder your parent could have, with in your case plenty of invalidation as a side. Bad side order, send that one back too! Tough love is what you will be forced into here for self survival of your marriage and children. Do what you need to to cover your loved ones, there is a time to reap what has been sown, even for a beloved cantankerous parent.
Anne, I think you hit on a really key point. We are raised with the "honor your mother and father" and we think or believe that it means taking the abuse that is purposely dished out (not by those who can't help it).
I have come to live with I have honored my parents by taking care of them in the assisted living. I could not do what many of you do 24/7, but the emotional drain has stolen enough from me. I have honored them by putting them in a nice facility and not thinking about what I lose financially. Their care is most important to me. I have honored them by protecting them from the nuts in their lives that cause more harm than good. Regardless of what my parent's think of me. I know that I have done everything possible, legally, financially, and emotionally for my mother and father.
We can't think of honoring our parents equating to being a doormat for them. Sometimes tough decisions are made to do what is the best for our parents. It isn't always easy when you hear family or outsiders complain about things, but know that we made choices as well. Choices that regardless of how selfish our mother or father is, we can hold our head high knowing we did what's right regardless of each of our situations.
God bless you all for your daily choices!!
Someone in another post mentioned growing up walking on egg shells...I thought that was my house. Those were the words we used.
But going back to the original 'original' thread...no, we are tired, and we don't want to do this anymore. But we need to cope because It isn't going to go away. The good die young and the selfish will watch the sun burn out. and we will be dragged behind them trying to make their lives better, because that is really why we are here, because we want to help. Or we wouldn't. We'd be eyeing their furniture.
I am sure that not all realize their own selfishness, at some level. Than you have those with cognitive deficiencies, etc. Illness, stroke, etc., and various other diseases cause it. Take dementia, for instance. That parent literally cannot help themselves. They are rude, demanding, prideful, sharp, bitter, angry, whatever... But it is not always by choice. My Dad has Advanced Stage Alzheimer's. He went through and angry and threatening stage. Now he's only angry if provoked. He doesn't realize what he's doing. He can't help himself. He gets lots of grace and forgiveness and compassion.
My Mom, on the other hand, is Queen Selfish. An only child, coddled by doting parents. ME, me first, I want, is her mantra. My sister and I both suffer. Talk about dysfunctional. And Mom and Dad fought all the time. She wouldn't take care of her husband, and she rarely even went to go visit him when he was close by in a Nursing Home. It outraged me. I lived 200 miles away and saw him more than she did. But whenever she wants something, she expects me to give it to her, because I'm Conservator and Guardian. Her pets, and her this, and her that, and I get the grief. If I don't do what she wants, she yells, "Abuse!" That is pure unadulterated evil selfishness! I hate it.
At the same time, I am required to provide for her needs. Both legally, and by God. Love our "neighbor" as ourselves, and honoring our parents. Now you can argue, "give honor unto whom it's due." But, I was commanded to love, not just the easy ones, but the hard ones, too. I have to be careful to provide for her needs, not wants. Though, sometimes compassion makes me give more. I also have to be careful, because Mom is genius at taking advantage of my compassion.
I struggle. Their financial lives are a mess. Their physical home is a mess. I don't have time to go do it for her, and she makes everything so difficult. Won't let me throw away broken TV's, etc. It's a total nightmare at times. My sister does nothing but criticize me. Talk about selfishness! My mother will not clean up the mess. Someone has to. Yet my sister wants the goodies (inheritance). She wanted to take the seats out of her car and get some furniture when Mom was hospitalized. No one will make my sister help her mother, but they will make me split the estate in half in the end. After all the work I do to help the parents who raised us. It is evil, wicked, selfish, and just plain sin! (How we try to soften it by calling it selfishness.) It separates, divides and destroys. And it hurts.
OK I vented a lot.
Well said and you are correct our frustrations are there in care giving. God never promised life would be easy. Wish he did but that not going to happen. We grow through our trials .I believe he is probably crying with us. Neither, did he say we would be perfectly made. I beleive some times we forget that life can give us these blows. How we handle them is up to us and our choice. God doesn't tell you you or youur parents what path to take he just guides. Which when we look at this way we can then determine what path to take whether frustration , or mad or upset or one day at a time or the servant hood of Jesus .We have those choices to have these feelings and make them what they are. Again, we make those choices. I have a child with special Needs and I tell him you make your chioce not God. He shows the road. Our parents
did not get the way they are over night they too have had pain and frustrastion
through their lives and the way they have handle I beleive materialize in time.We will be tested over many trials. With their attitudes the way they are from there choices they made. Truthfully, in their heart is the only way they can fix it.We can not fix it becuase it is their choice. So these husbands that say don't try to fuel the fire are correct. My mother is ugly to me but she makes that choice. Whether it hurts me she doesn't care she knows she does this and so she lives in the path she takes. Frustrated and mad at the world .So in prospective they are not taking it out on just us but the world around them.
I think the cause of some of this generation to act this way is the paths they took along the way and whether they left the Christian life or not was their choice .Now they try to figure it all out and it is hard to them and they are still frustrated as we are inside in time time maybe God will reach them and maybe not . Hopefully we realize that we don't want to be this way while caring for them. The important thing is we see this in our parents and it hurts truthfully all the way around. We just have to remember we don't want to be in this state when we are their age and continue on the right path now matter what with God by our side.
prayer make life allot more easier and trusting Him. He is all knowing sometime we just have to sit back and watch what he does. Even people who are not Christian have to do this take one day at time and wait. What choice they may is their choice.
I found out a little too late in life that my "good Christian" home was dysfunctional as all hell. Since all this happened, I have had to deal with all these different hurts on all different levels due to mom's disease of selfishness. What makes is worse is the stigma hearing the word "Christian" associated with dealing with these hurts because then the usual "Christian-ese" isn't too far behind. Yes God heals, but anyone one of us still has to get through the pain of this latest mountain of crap to climb. It's a pain in the butt and then to hear how God will heal us. Sometimes God wants to teach us as well, not necessarily heal.
For me personally, what I will say through all this pain, hurt and anger, I have watched God do some miraculous things in the past 6 months. When I can step back and breathe for a minute, I thank God for all His provisions and the lessons learned. It doesn't stop me from getting mad, frustrated, etc, but it helps me grow past all those hurts.
Jesus can heal, but that's for anyone He chooses not just those on the "right path". We, as believers, still have to do our part in forgiveness, letting go, and learning from these miserable of circumstances (whether by our doing or not).
My path looks like its a little more extended, but I can rest assure you that in order to deal with this horrible disease of selfishness, you can't get blood from a stone. Go about getting through this and try and find the forgiveness for those that do hurt us. Find something each day to enjoy. Don't let what has destroyed our parents, destroy us.
In the mean time, I enjoy the vindication that God gives me when it comes. I love the fact that my mom complains of how fat she is when she used to give me grief over my weight gain. It was priceless. When those chubby little cheeks look at me, I just thank God for His justice, not my brand of justice and then I can move on to the next level of healing.
Thanks all for your support!! Anne, I'm always around in some form! Being a realist helps the humor move forward (twisted as it may get)! LOL