Is there anyone out there besides me who wishes their mother would die? This miserable woman has lived with me for 5 years and I don't know how much more of her I can take. She is constantly trying to start an arguement with me. I don't get it. She has 3 other children who want nothing to do with her, I take her in and I get all the crap. Someone, please, just tell me you understand...all I want is a little sympathy and understanding for someone!
I will be standing in your corner cheering for you!!!!
Although I'm not caring for an aging parent I understand completely where you are coming from. I just wish I could be as strong as you have...I have been told the real person I need to stand up to is not my father in law, but my wife & her mother.
He is under hospice palliative care close to a year now. Twice in the past 3 months they decided he needed to be hospitalized (once for MRSA infection, the other for blood being too thin) they said he really needed to be treated in hospital because HE COULD DIE if not. Isn't this what we are waiting for?! Let the man die. He is miserable!
We figure close to a million dollars of medicare money has been spent on the care of my father in law. $1,000,000!
With reasoning such as this you can see how medicare expenditures could bankrupt our country.
God has been calling this man home for years, but we keep pulling him back.
But listen, you have got to go on that vacation. No, Mom will not understand. But you just have to go, somehow. And hubby has got to be back in your life again, somehow. Occasionally, an elder with dementia will recognize an unspoken truth, that the person caring for them cannot totally be taken for granted...it takes an action though, not just words they will not remember, like reducing visiting if they are in an ALF, or shunning/bring non-verbal while caring for them if you cannot safely step away when being abused.
Human parents are not supposed to eat their young, though, and it does not necessarily honor them if you let them. Some of our parents might be selfish enough that they would not care that we give up our own life and future to cater to them; others would be appalled if they truly realized what was happening. It sounds like yours is one who would be appalled at herself if she really understood the depth and degree of the hurt she was inflicting. My mom once said to me "Well I'm sorry but I am just worried about everything" after she brought me to tears for bringing her shoes in to her to the therapy area one day. For some reason she was embarrassed about having someone bring her shoes and called me a stupid idiot in front of everyone. I'd had a bad day and just broke down and cried, and staff saw what happened and helped me out.
What I am trying to say is..its HER, and her dementia. Her reason is going or gone and therefore she will not be able to be reasonable. It's Not You.
I don't agree 100% with this poem, (especially the line "when they no longer serve the land", for me it is more "when they no longer alive even though their heart still beating") but I really think it contains some truth.
I hate the men who would prolong their lives
By foods and drinks and charms of magic art
Perverting nature's course to keep off death
They ought, when they no longer serve the land
To quit this life, and clear the way for youth.
- Euripides, 500 BC
OMG! Tonight she was a little pissy about something and decided that she is not going on the vacation I've been planning for months and looking forward to. I deal with her ever changing moods, accusations and endless repeats of the same questions / comments and then she acts like I'm just picking on her when I ask her not to feed the dogs that smelly, greasy cat food - and leave the open can in the middle of the breakfast table. (I asked nicely.) i have to thank her for every f'ing breath she takes but she feels like I'm just such a bother.
I don't want her to die, but tonight I sure wish I could! I'm tired of this non-life I'm living!
My aunt became ill with cancer. My mother criticizes my cousin-in-law for not taking the aunt in. The truth is that my parents had two spare bedrooms in their house and could have taken her in. My mother wouldn't help care for her sister, but criticizes my cousin-in-law for not doing it.
So even though she didn't owe anything to my father's or her parents, my mother feels I owe her. Strangely, she doesn't feel like my brothers owe her. Only me. I guess I'm special. I've always wished I had some sisters, instead of brothers. I bet it would be more fun.
Did you ever think about talking to Mom's Doctor(s) in private & tell them the whole story, sometimes they can help point you in the right direction and get her in an Assisted Living OR Nursing Home.
You have to remember that you are #1 & have to take care of yourself first ! I just joined this site today, so I do not know the whole story. I wish you the very best, but can truly understand where you are coming from !!
Taking care of an elderly parent, means trying to provide what they need not necessarily doing it all yourself.
Years ago, sick and old people just died. Sometimes I wonder why people who claim to belive death is just a door to a better life are so hung up on extending this one. Sometimes we extend dying not living.
The symptoms you've described all pretty much clone my own. And I am sick and tired of feeling sick and tired.
I'm so glad that you're over all that, CC. I'm really happy that all that mess is just gone from you, and that you can enjoy good health now, and thank God your heart is now ok and normal. *hugs* Yes, I've had the tests on my heart done, now it's just a matter of finding out the results. I hope it's nothing major either...
And you are absolutely correct....you will, for good or ill, find out what you're really made of when you do this, as you said, seemingly endless job... And CC...thanks for the kind words. I've always considered myself awful, evil, listening to mom....glad I finally proved her wrong. On some level I knew she was wrong, but....demons raged in me for my whole life. I wasn't sure I'd ever banish them. They're gone now. Thank God.
Raven, what I gained doing this job I couldn't have gotten without doing it, although I wasn't looking for anything... I found MYSELF, who I am, what I am, and to me personally, growing up in a house, locked in a cage with the monster that is the narcissistic personality disorder, you can't understand how much finding ME meant. So yes, there can be a whole lot of gain in care giving. I'd go to hell and back countless times for that, because I'm a better person for it, who I was always meant to be, but couldn't be.... and that's worth everything to me...and it almost cost that much to learn it..
Anyone watch/read Game Of Thrones? If you do, you'll get this...
I woke up, sitting straight up in bed in a total black mood and panic this morning...In my dream, I got a phone call from the facility where mom is at. The lady told me that my mom would be discharged the next day... In the dream:
Me: What do you mean, you're discharging her tomorrow?? You mean she's coming HERE, back home???
Lady: Well, she's scheduled to be taken to Qarth. Do you know where that is?
Me: Qarth?? You're sending her to Qarth??? O__O
And I woke up....in a black, dark pissy mood, and totally freaking out... *snickers*
Have a good one, everybody... Stay strong...
**sends everyone good vibes and karma**
Have you ever heard the saying.."No good deed goes unpunished?" That is what has happened to you, you were the only child to step up and agree to care for Mom, so what do you get in return, a lot of grief. I know what you mean to be blamed for everything or talked to rudely or just not appreciated for all that you do. Everyone reaches that point where they wonder if it is all worth it. We wonder why we are doing this when we have nothing to gain from it, we did it out of the goodness of our hearts, it was an act of love and now we feel like we are being abused.
You are not alone here, you need rest, you need to get away from the situation for a while and renew your spirit. I know your siblings want nothing to do with Mom but if I were you I would either call and ask for them to come and spend a period of time with Mom or I would hire someone to come in so I could leave.
We all do understand where you are coming from, many of us have been in the same exact spot.
God Bless You! Get some R & R!
I realize that you are scheduled for some tests related to your heart. I meant to tell you a day or two ago that there are so many things that can be done for you now days that will help you to feel better. About 20 years ago (@ 39) I had to have a heart valve replaced with a mechanical valve. Up until the replacement, I used to get bronchitis at least twice a year, sometimes three. Just before having the valve replaced I could hardly function. My chest would hurt and my lungs would begin to fill with water and I felt like I was drowning. Coughing constantly. After the valve replacement (they've made a lot of progress in this area) my heart returned to normal size (it was enlarged) and I haven't had bronchitis for 20 years. I have to take a blood thinning medication but monitor it regularly and am careful to watch for symptoms of bleeding or a change in the sound of the valve.
All that being said, I have had a wonderfully healthy life since that time, with no complications. I do praise God for that because I know that He keeps me in the palm of His hand.
I have been caregiving more intensely for my Mom for the past 5 years (although she has lived with my hubby and me for 35) but now she is steadily declining. My job isn't as hard as yours has been since my Mom only has mild dementia, she is generally cooperative, but our relationship hasn't been as close as I would have liked which has been a bit painful (she gravitates more towards my older sister). Can't hardly hear or see and is so physically frail that it seems she will hardly be on her own two feet much longer.
But even with all the positives for my Mom, it still feels sometimes that this job just wont ever end. I too pray for a gentle and easy passing for my Mom. I guess we go through these things sometimes to help us find out the stuff we're really made of and based on your post. It sounds like you're made of some good stuff.
Hang in there. Take care of yourself, make sure you get your tests and get the help you need to make yourself well. It may actually be something very simple and very treatable. I hope that it is.
I know that sounds really awful. At first, I really was happy that they had saved her life, that she was alright and stable, and she finally looked and acted alright, much more 'normal' for her stage of alz... it was a relief.. at first.... Don't get me wrong, it's not that, on some level anyway, I wasn't happy to be able to be there for her... I was. I'm glad that I'm big enough to give what my mom would never give, to anyone, for any reason... Her relatives took care of her mother in her declining years, when she had cancer and was totally blind... Mom was here in the states. I remember my grandmother fondly... Anyway, yes, I'm happy on some level that I was big enough to dig deep enough to find what it took to do what it took. I was determined that my mom would be comfortable, clean, well looked after...I tried my best the last couple years she's been really bad to do my best for her, just because she's human...
But....
The toll.
The toll.
The toll....
OMG. I can't describe the toll this has taken on me personally, and I mean literally on all levels. Yes, I have learned some lessons on this journey that are priceless...but the price to my health, in all ways, was almost as great...
I am in a deep, black funk right now. It's just worries and worries and more worries, that never seem to stop. I do have some issues in my life worked out, but then it seems like new issues pop up...
I feel an almost desperate need to start...doing something... I really want to get further educated and start working... I feel such an intense need to do that, but.... I can't. Not now. I'm in this godawful LIMBO.. I can't make a single solitary move until I know for a fact what I'm going to have to face, possibly in the near future, concerning my mom.... Some lady called, talking insurance stuff, and my mom might have to come back home. Every single time I think about it, I shudder...
I am totally and completely enjoying this time, and no, I don't feel guilty, not one single iota. Not for that joy. I won't feel guilty about it.
I've learned that there is indeed such a thing as giving too much... Giving is good. It always will be. Maybe in RL wars it's alright to give your life for your country if you've sworn to do so ahead of time... But no one on the planet has the absolute right to every single bit of you, down to the damn marrow.
I do not owe my mom my LIFE, down to my last freaking breath. .
Sean, my son, and I had a discussion. I told him straight up that I could not, and would not, look after my mom in this house another single minute, ever again in this lifetime. I told him honestly that I just, literally, wasn't healthy enough myself, that I just couldn't even begin to imagine, that minute, trying to dredge up the damn energy to deal with my mother yet again... I want to curl into a little ball and start begging for the torture to stop.... Hers and mine..
I am drained dry in every single way there is to be drained. I did my best. I did so damn well that I feel I was, and could be still, on my way to a rather early death..
NO. The end.
Do I wish my mom would die? I've asked the One to please, please, make death happen softly for my mom, in her sleep, hopefully on some good drugs to keep her peaceful and calm, never knowing what hit her...
...but make it happen. Alz is a long, ugly slow ride into death. It's ugly, and those who deal with it get it. I'm weary to the bone of it. I feel like I could sleep for a year..
I've been surrounded by death, and pretty much isolated in this house for years, with no real contact with the vast majority of the outside world... I'm dying, too.
I've asked the higher power for two things for myself... Peace. And just a few good years of life and health, it didn't have to be that many, but.... a few good years without my mom in my life seems like a nice reward from God for a job well done...
When I was a teen I told our neighbor Sonja that I would never be free until my mom was 6 ft under. I didn't realize at the time how literal that really was going to turn out to be...
I don't hate my mom, all that mess is pretty much gone now... but... really? Her life isn't really a life anymore... So yeah, sometimes I do wish that my mom would just quietly pass... for all our sakes...
She's been going on for some time about coming to see my house (which is 10 minutes away) but I always managed to put her off as, like always, it would be a nightmare "ewww, what a dump, you need to do this, you need to do that" which has been her attitude wherever I've lived. Well, it may not be Better Homes & Gardens but I came to this country with 2 suitcases, $100 and a roof over my head for a week and I worked 2 jobs for some years to become established, doing it all by myself. Three months ago, trying to hide her vitamin drink on top of a wardrobe, she fell & broke her hip and is now wheelchair/bedridden. She'll never walk again so at least she can't physically come after me.
I've started driving transport for dog rescue. Two weeks ago, just about to pull out to do my leg of a transport, she called and berated me for doing it "You shouldn't be doing this, it's your time and your gas, you have 2 dogs you should be spending those hours with them blah, blah, blah". Supposedly she's always been a rabid dog lover - for the last 12 years of my father's life she slept in the spare room with her dog in the bed, my father slept alone - and she begrudges these little puppies a chance at life?? I was livid to say the least!
A couple of days ago she called with "I've been thinking I should get a little house like yours. When I said it was impossible as she couldn't manage, cook or clean she started screaming at me that she could and I hung up on her. Later she left a weepy apologetic message on my machine. That evening she called again and we had a total screaming match. It ended with me telling her that I would ensure her finances were in order, her bills paid and I'd pick up any extras she wanted but if she ever called me again I'd change my phone number and make it unlisted.
It takes me a couple of days to get over the upset of these shenanigans and I've totally had it. It's time to get on and rebuild my life. From here on I'll do my duty but personally I want nothing more to do with her.