First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
I know someone who refers to her daughter as "Chef Girl." Well, I want to refer to your stepson as "Chef Man." And Chef Man needs to keep sending you meals so we can all read about the delicious food he makes!
You are being so well loved-on and taken care of at this time of your life! My prayers for you will continue.
"Whoever dwells in the shelter of the Most High
will rest in the shadow of the Almighty.
I will say of the Lord, 'He is my refuge and my fortress,
my God, in whom I trust.'
Surely he will save you
from the fowler’s snare
and from the deadly pestilence.
He will cover you with his feathers,
and under his wings you will find refuge;
his faithfulness will be your shield and rampart."
- Psalm 91
Lealonnie, I just now saw your post. I am so so sorry to hear this awful news.
I do believe in the power of prayers. I will say a prayer for you and Chuck each night, my friend. ((((Hugs))))
Hang in there, sister.
everyone on this forum is not just rooting for and cheering for your healing and recovery - but BELIEVING AND KNOWING IT - with faith. Please rest, and let the people around you care for and love you - let others reciprocate the caring and empathy you always show to others ... it is your time to receive now- blessings and strength - xxxooooo , Laura
We all say how awful it would be to lose our mind. Hey, do you feel mom was aware of her diminished cognitition when she asked you how your parents are? Being unaware of something means it does not exist, for all intents and purposes, especially in this case. God bless your mom and keep her as she is now, blissfully unaware of what's going on, until He comes to take her home. I'm so glad she liked that prayer.
Sorry Alva, I'm sharing none of this amazing food and try to touch my heating pad and you'll draw back a nub 😂
Amen Barb
Hospice reports her vitals remain strong but the infection gets bigger and smaller, back and forth. The cognitive issues are really getting worse.
You deserve good health and I hope with all my heart it is restored to you. Your good wishes have always meant a great deal to me.
I don't know how long a journey we have left. She can change greatly each week but it is never good. At least she is fairly calm amidst the confusion. Keep getting better.
As to stepson it sounds like he should be in a catering business. I cannot imagine all this good food.
I hope they are babying you real good, and it sounds like they are and that you are allowing yourself the comfort, warmth and love surrounding you.
You are so in the thoughts of us all.
May God heal you soon, body and soul, together with others who suffer illness.
And let us say: Amen
Thank you Geaton and Send. I am waiting for the Lord to strengthen me, yes.
Peace, I am having no side effects from the treatment as yet. Thank you for your kind words! 😁😘
Are your kids able to visit? Are you up to it?
Praying as you come to mind.
Check In when you can.
“But they who wait for the Lord shall renew their strength;
they shall mount up with wings like eagles;
they shall run and not be weary;
they shall walk and not faint.”
-Isaiah 40:31
LL, I think of you every single morning.
I’ve been off the forum for several days and just saw this. You certainly have my prayers for your healing and for Chuck to continue to do well. I read that you now have less pain and understand that side effects are minimal right now
Alva said it best: “Your strength and your courage have ALWAYS been a beacon to us all”
Thank you, Lord, for this mercy!
I can also tell thru your words that you're a very spirited and resilient person - and my prayers for you are to continue being victorious for the Most positive outcome! Amen.
So happy to hear that the pain in your sides have subsided. I hope that you won’t have any major side effects.
Hang in there! You have angels watching over you and an entire forum praying for you.
I read a post by a poster here who's dying and bitter about it (Which I can empathize with). He's saying not to give him any prattle about God. I understand a lack of faith, too, not everyone has it. But for me, I feel like prayer and faith is getting me THROUGH this overwhelming ordeal without a lot of bitterness and crippling fear. I have more acceptance in my heart for whatever He has in store for me. I'm grateful for that. I wish everyone, including our fellow poster, could find some level of comfort from God and/or faith. There's nothing else to hold onto in such a situation BUT faith!
Geaton, another timely scripture du jour, thank you.
Send, do Carry On with your prayers for all of us here on this thread 😁 I think its splendid!
All things are possible, only believe!
My friend, I look forward to hearing how The Lord God Almighty moved on the scene.
Continued prayers for you.
"Because of the Lord’s great love we are not consumed, for his compassions never fail. They are new every morning; great is your faithfulness."
Lamentations 3:22-23
Good morning, prayers for your healing. And for Chuck. Some rest and respite for you both. God knows your deepest needs.
I decided to pray for everyone posting on your request for prayers today, a Saturday.
The British say, "Carry On". I like that. 💟
That little question has talked me off MANY ledges over the years.”
Brilliant. I had forgotten about this bit of wisdom that you have shared, previously.
I may just make a poster-sized version!
Hope you sleep well, tonight!
I've always thought of you as a super-star....someone with great intelligence, clarity, strength and positive energy - and wisdom. You've helped so many on this sight with your guidance and insight.
I am sending you my heartfelt prayers and positive energy for continued strength and great health and healing - I hope this will all be behind you soon for brighter days and the most positive outcome for a full recovery and the very best of health. We're all with you in spirit and praying hard!
Sending love and hugs ~
I believe that your positive attitude and faith are going to pull you through this difficult time.
It is shocking when we get news likes this. When my husband received the test results that showed his positive cancer results, he couldn’t even talk about it and asked me not to tell anyone.
I respected his wishes and kept quiet. Later on, after he was able to process the information, he spoke about it with others and said that he didn’t mind me sharing it.
I am glad that you are able to share your feelings. Maybe men deal with these situations differently. My husband overall is a private person so it didn’t really surprise me that he reacted the way that he did.
I wasn’t going to push him. I wanted him to do whatever was best for him at the time that he found out about his cancer.
Catching cancer early makes a world of difference. I have known people who were in stages three and four though and beat it.
I believe that if it isn’t our time to go, then we won’t.
That little question has talked me off MANY ledges over the years.
GG, everyone's always 'ready' for an azz kicking until it happens. Then we're crying like little girls, right? For today, all is well. Thank YOU for being a part of my newest journey. I wish it was a funner one to share, though.
I still have a clearer-than-usual head, for some reason, so YAY.
Golden, ty for the info about the heated mattress pad; I will check it out on Amazon b/c ALL types of heat or ice help my pain. My son bought me a heated vest which I wear every time I leave the house or when I'm going over to his house to see my grandson b/c it' gives me 4 hours more of the ability to sit and interact w/o needing to go into the bed. Most times.
I join in todays prayers for you!
🫶🫶