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Nothing you say is "trite" Gershun, please know that. You've helped me cope w all this (all of you) in more ways than you'll ever know.

I slept better last night and took nothing in the way of even a Tylenol. Pure exhaustion is more potent than anything I guess. I'm ready to face another day today, so I woke up to do so.

One day at a time, I guess, although some days it's more like 1 hour at a time.
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Lea, I am more of a listener than a talker. Sometimes I don't have the right words to say so I don't post anything. Just know you are on my mind and my prayers daily. I get happy when reading about the improvement of your symptoms, yet I hold my breath because I am so afraid to be disappointed. At the same time, I am amazed at your honesty, strength (and weakness.)

Bless you Lea. You are a child of God.
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"...but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." Isaiah 40:31 NIV

That is my prayer for you today after a rough evening, that the Lord will renew your strength, so you'll be able to run and not grow weary, walk and not be faint, and that soon very soon you'll be soaring on wings like eagles.
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PB, many thanks. My weakness right now seems stronger than anything, I hate to say. I so want to know this will resolve, but all I'm hitting lately seems to be roadblocks and Who Knows? Now with the referral for a 2nd opinion at UC Health. So much confusion and misinformation w regard to "insurance " it's maddening. Literally THE last thing I need right now.

Thanks Alva. You say, "I can't believe that in the midst of all that you brougtht to your daughter this moment on her 30th BD that she will NEVER EVER EVER forget, especially that it was an agreement you and her dad made, and that there is great peace between you two now. This is a gift she has forever, and I don't just mean the jewels."

How I honestly managed to pull THAT rabbit out of my hat is a miracle. It makes me question how on earth I can make jewelry bouquets and vases when my ability to function at ALL is this compromised. I guess I won't borrow trouble on that matter right now since today's goal is to keep the waterworks turned off and DRY🙄. Small goals seem more manageable right now.

Amen Funky. From your lips to His ears today.
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Yes, our system's insurance into the mix is a nightmare. They make it so bad that the illness itself fades to the background (rarely).
Kaiser here has no retina specialist (yes, in SF, no retinal specialist) so they are farming their patients (N. being one now) out to another group.
They will pay. But he has to go to THEIR hospital for the procedure and already being warned to get ready to cough up 40K by the non-Kaiser hospital while Kaiser waves it's hands saying "No, we'll pay". What do you bet the bills flood in? It's how it is.
And YOU are truly way too ill to have to handle that, so I hope DD and Chuck can do it.

It is so tough right now for you, Lea. I don't even know what to say. Seems just so tough right now. Everything uncertain and in flux while you pray for just moments of peace and feeling comfortable in your own skin.

I will stay tuned in again today.
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Sorry the symptoms have returned. But glad u will be seeing this new doctor earlier than u thought. I keep forgetting to tell you I have seen these jewel bouquets. They are gorgeous. I even donated a few of my Moms costume jewelry pcs to use in one. Have you seen the Christmas tree pictures done is costume jewelry. So pretty. U can see them on the internet. Just put in "Christmas tree pictures done is costume jewelry"

Cold here today. Thats what u get this time of year in the Northeast. The temps just go up and down. Them bam its 85 and 90 and humid. Not a Summer person. Lilly white and don't tan, just burn.

Looked up ur Swarovski mini animal collection. Love them! I have a David Winter cottage collection and I collected dolls. Have given some dolls away to a niece and donated to the church for auctions others. The ones I have kept my daughter gave me and a few my Mom. I use a makeup brush and an artist paint brush to dust them. Yep takes a while.

BIG ((HUG)) for today 💞
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Lord,
We pray right now in the mighty name of Jesus for our friend. We may not have ever been in the same room, but she sure is our friend.
Lord, we are begging for mercy here. The side effects are disabling Lea, and all our hearts are breaking for her.
We all just want her whole again.
Please, dear Lord, the floodwaters are up to her neck and there is NO ONE to help. No doctor with any wisdom.
But in your Word says that YOU are mighty to save. YOU are the healer. YOU are the one we can call on when we need wisdom. Your Word says that if we ask for it, you will give it.
So, we are relying on you you to give that wisdom.
We are relying on you to save.
We are relying on you to heal.
We ask this in the name of Jesus.
Amen.
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Lealonnie, if I were your neighbor, I'd come to visit you and bring a laptop so you and I could look at this site together. We both like jewelry! Since that isn't possible, go to this jewelry site and enjoy the eye candy: www.pippinvintage.com
I often take a look when I want to lighten my spirits. Enjoy! :-)
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Lea,

Sending my support and love to you today and everyday.

Every time I receive a dime in my change from a cashier, I say another prayer for you.
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Sending a prayer and a hug.
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JoAnn, I've made quite a few vintage jewelry Christmas items.......wreaths, a 3.5' Styrofoam tree that weighs 20 lbs, an antique framed jeweled Christmas tree on velvet, etc. I even made green pine (faux) wreaths one year w jewels and vintage glass ornaments all over. I put them all up every year and the house sparkles.

Thats a good idea how you dust the cottages. I have to wash the Swarovski animals in soap and water individually from time to time, which is tricky. That'll be one job I'll put off for awhile lol.

Fawnby, ooh, ty for the site! Ever since I was a kid I've been obsessed w jewelry. I even have (literally) dreams of creating a line of my own pieces but then the designs disappear from my mind when I wake up.

I wish we had a photo spot here on AC to share pictures, wouldn't that be fun?

Cxm, your prayer for me threatened to turn on the waterworks again ova here! 😁

Alva, after K said no referral is needed to UC Health 3x, they backtracked and put one in 2 days ago..which will take 2 weeks to approve 😑 UC Health is trying to get me seen asap after it's HOPEFULLY approved, although if those dimwits try to deny me a Medicare right, I will appeal.
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Bandy, no appointments today or tomorrow, Neuro i videoed w rescheduled me w him in person on Monday across town. UC Health couldn't get me seen w melanoma specialist tomorrow bc of not getting the required referral from my insurance co.
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I echo Polar, Gersun, and Barb. I check in every night before I go to bed. I often have no words, but always, always lift you up in love and prayer.

You have the weight of the world on you, sister, and the red tape probably feels like a freaking anchor added to everything else.

Your time with DD is so touching and I guarantee that you thinking of her and doing that for her in the midst of your trauma meant the world to her. A mother’s love can be boundless, and she has felt yours.
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Pecan, I pray all the time. There is no crisis of faith here on my part, but a quest for answers from the medical community.
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Lea,

How are you feeling this a.m.? I echo Hopefloats, in that I am but one of many of us who check in every a.m. and every night to hope you feel better. Between those checkins you so often come into my mind.
Count me as one more hoping that there are answers out here that can help you.
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Good morning!

I would love to see all your jewel projects. I bet they are beautiful. Me, I am not artistic. My girls are but that's the the Dad side. I do crochet but not like I used to. This is my old Flicker Page. Read the captions because everything is not mine.

https://www.flickr.com/photos/15772172@N07/

Hoping this is a good day for you. ((Hug)) 💞
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I'm feeling at a 6 dizzy level after increasing the prednisone back to 80mgs. Mentally MUCH improved so Chuck has a smaller chance of me tearing his head off with my bare teeth. 😑 Level 6 out of 10 still blows but beats heck out of 9 where I was Weds evening. Nothing much has changed and I'm finding some work arounds to be more independent. God knows when this will end, so......

JoAnn....cool Flicker page!

Pecan I just lost a long post too.....what a PITA this site is. 🤐 I do appreciate your research efforts on my part, too. Bless you.

Hope, you of all people have had THE best most comforting words for me. Nobody "knows" what to say in times of crisis, but compassion and empathy are always well received. I don't need guidance on how to pray or what tenets to believe in, just a kind word of understanding and support is best. Of course, links to good medical info and personal experiences also go a long way in my book. 😁

Today we're going to try guided walking w Chuck holding my hands and the walker wi reach, too. I feel compelled to see what I can or cannot do, which has been practically nothing this whole time. Last time the guided walk was attempted, it was a disaster.
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Good evening!

Do let us know how that guided walk went! 🤞

I also would love to see your jewelry art!

Praying for you, tonight, that despite the steroids, you’ll sleep well. 🥱😴
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So glad for the improvement in dizziness.

“Even when I walk through the darkest valley, I will not be afraid, for you are close beside me.” Psalm 23:4a
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The guided walk w Chuck was exactly like walking on a floor of jello. 😑 Took me from a 6 to a 7 in short order. This sob is hanging onto me for dear life, that's for sure.

I'm trying to figure out how to add links to see photos of my Christmas jeweled pieces. Anyone have an easy way to do that bc I'm having a brain fart?
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Lea: Do you have your jeweled Christmas pix in an Http link that you can pull up similar to what JoAnn did?
A dizzy level of 6 is sure tough to bear. Sorry seems so trite to say, but it is heartfelt. I've been there when my presyncope comes into play. Hugs.
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Lea,
I am hoping that the weekend shows some--even if slow--improvement in your symptoms, and you will get rest, build strength for the week ahead.

It is difficult when you get to the place where it is uncertain whether you are dealing with the illness or the treatment of it, and of course medical science is, as my oncologist always said:
"anything but an exact science" (not terribly comforting but true). What they know pales in the face of what they don't yet know.

I hope, whatever next week's tests and consults do, they give you some answers; not knowing "what" or "why" makes enduring double difficult.

Rest and soak in love, and try to get respite from it this weekend; some funny movie or something. Whatever might give you time to surface, float.

I'm thinking of you so much. Your "walking on jello" kind of made me chuckle, because of my balance. I don't feel it in my head but my body kind of goes every which way, no matter where my brain wants to go. Feather in the wind with a floor of jello below. I have to wonder what would happen if I still did drive and got stopped for any reason. Walking a straight line is no longer an option. I practice it with sidewalk cracks sometimes. My doc thinks it wonderful that I walk as often and as far as I do. My telling her it is never in a straight line seems not to impress her. "Take Tai Chi" says she. She's no idea how quickly I would bounce off the floor in THAT class. So, yeah, I walk a lot, but you can never tell where I will end up.

Again, I hope that this weekend is one of building strength and restorative rest.
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With 2 hours of sleep last night, I had plenty of time to think. I came up w a gratitude list instead of dwelling on all my issues.

My brain is working and has been all along, thank GOD. It's not been affected w this reaction I'm having, which tells me it WILL pass at some point.

The floater bugs are still hanging around but my brain has mostly tuned them out.

The hearing loss comes and goes based on me paying attention to it.

I CAN get relief from this dizziness by lying my head down. It's not, therefore, a 24/7 issue to deal with, TG.

I am grateful for Chuck and the friends and family who've stepped up for me here. Some people live alone and struggle to hire help, etc. TG that's not me.

My head now looks like a big punching bag balloon (thanks to steroids) BUT, lots of wrinkles and laugh lines have smoothed out. Like a free Botox treatment!

There are other things on the list too but these are the top takeaways.

Idk how much "confidence" I have that the Neuro will figure out answers for me on Mon. But, he can eliminate some concerns I do have like the severe stenosis in my neck playing/not playing a part in this. I have faith he'll explore ideas that weren't as yet.

The wind was SO BAD yesterday it blew a bunch of shingles off my ROOF! Roof issues give me extreme anxiety so now I'm like UGH. I'll call insurance on Mon and hopefully they will cover repairs. Meanwhile, I'll get practice holding my head UP to look for roof leaks 🙄. Fortunately this is a semi arid climate here w no moisture predicted. Fingers crossed it won't turn into a bad situation.

Llama, I have no idea what I'm doing w these stupid photos yet I can post and upload pics to eBay all day long. The one I have of my wreath is too large to use on AC as an avatar. Screw it all.

Alva, somehow the thought of taking Tai Chi sounds absurd.
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Just came THIS CLOSE to losing that post! 😣 Thank you for your loving words, too, I appreciate it Alva. You can nurse me anytime.

Geaton, I read your scriptures and posts daily, so ty for keeping the lights on.

Chuck has a bone density test here shortly and April is ALL appointments for both of us bc Mayo is doing their 1 year virtual follow up with him. April 29th is his 1 yr anniversary of being given new life! We never did hear back from the letter of thanks and gratitude he sent the donor family but that's to be expected. We are forever grateful that their loss and sacrifice gave my dh a new life. We are all organ donors in our family and whenever possible, everyone should make that commitment.

I hope we all have a good restful weekend.
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Tai Chi is the absolute BEST for balance issues. It is ALL about balance. I would love to take it but I don't much do anything with others. I don't go places where there are two or more people. Hee hee. Kidding, but not really. My bro did Tai Chi. He had notoriously poor balance too, and it really helped. It looks dreadfully silly to see anyone do it out in public, to my mind. But there you are.

Amazing. We are almost to Chuck's one year anniversary. He has done so well. Remember that person--we thought a guy--who always had the diagnosis for everyone on Forum, Lea. We used to laugh about him (we were pretty certain a him) and wonder if he was medical or not. Gone now, happily as he used to have us going nuts. He would LOVE to get hold of you, Lea.

The botox thing. Lordy. Talk about having to search out the bright side!
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I know Alva.....the bloke who considered himself a "champ" medical and psychiatric doctor/expert who insisted Chuck wouldn't survive the liver transplant and or major complications would arise. There are always naysayers who choose to come out of the woodwork whenever suffering or issues arise, assuring us of our doom and gloom or passing judgment on what we're Doing Wrong while trying to keep our heads above water.

I asked Chuck if he recognized me this morning when I came stumbling out of the bathroom after looking at my distorted reflection in the mirror. God love the little liar, he told me how beautiful I am.
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Fawnby....lovely jewelry site! A few years ago I went to an estate sale where the ENTIRE master bedroom was covered in vintage Hobe (and other mfgrs) pieces. The necklaces were $4, rings $3, earrings $3, bracelets $3 and pendants $2. I loaded up a basket of amazing pieces for $110 including a 14k gold and diamond pendant ( they missed it!) and that piece sold for just under $400 on eBay. The Hobe pieces ( which your website favors) fetched quite a bit too bc they are SO unique and fancy. I wound up making a lot of money from that purchase which is such fun!


Thanks for sharing!
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LL I know Hobe well. What a great experience that sale must have been. For a number of years I made multiple strands of necklaces with primarily vintage beads I would mix with newer semiprecious beads I would buy in the wholesale jewelry district in NYC. I sold them in stores and did custom orders. Also made them for myself,daughters,half sister, mother and stepmother. They were anywhere from 3 to 6 strands. It was hard to get the 6 strand ones to line up but I was a perfectionist. I so wish we were closer to each other. I adore vintage costume jewelry and know many of the signed manufacturers.

I wish I could see your works.
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"An umbrella cannot stop the rain but allows us to stand in the rain.

Faith if God may not remove our trials but it gives us strength to over came them."

This was a meme on Facebook and I thought appropriate.

Just checking in and giving u a ((HUG)) ❤
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