Hi All,
I'm glad I found this site!!! I've read some of the postings and (WOW)you start to wonder if things will ever get better. My mom is driving me crazy. I find I spend less and less time trying to have a conversation with her...it's too much work! And then I think to myself when she's gone that chance will be gone forever, so I try, it's very hard but I'm trying. I finally joined a local support group in my area...it's the best thing I've ever done. I have four siblings but I'm carrying the full load. I'm her primary caregiver, which I say she treats me one step above a slave...I don't even smile around her anymore, just taking one order after another. I find myself telling her the kitchen's closed! This isn't the Ritz! I will go to my second caregiver meeting on Tuesday...I can't wait! I need to breath, I need to be around other people. I seem to dream about just having one day to myself, one day to do absolutely nothing!
If you have a local daycare, getting her in would give you time to yourself. Mom goes 3 days a week for 6 hours a day. If you have an area elder care service, they may pay for most of the cost if your mom qualifies. Your computer is a good place to start finding local services. They can guide you through different avenues that will get you some help, and time to yourself. I find my hobbies help keep me sane. I knit, make jewelry, and paint. I obviously can't spend as much time on my projects, but doing a little something for myself helps relieve the stress.
Glad to meet you and welcome! I'm sure you will find lots of help here.
Almost seems like you sold your soul when you bought that condo in exchange for that promise to take care of her.
My hat is off to you because you have a long road ahead of you.
I look forward to hearing more from you. Pam
I will have to disagree with your insurance agent that people are living longer. Back in the OT people lived 800-900 years. Amazingly, God provided for them. But that's besides the point.
Caregiving can be different for everyone. I think God makes provisions for everyone if they do it with excellence and beyond. I know that as an only child, it was very difficult to do. But beyond that difficulty for the temporary time I had to do it.... I watch how God provided. I can't doubt or even question how God provided during that whole time. What I do know is that I am accountable for how I handle things presently.
This sounds crazy, but I am fortunate that I am able to see aging with the disease of dementia compared to aging ungracefully due to self-induced behavior. It is sad both ways. But it helps provide the grace necessary to accomplish the tasks necessary.
Thanks for sharing your experience!
My mother who is 87 came to live with us at the end of January; (husband, 12 year old son & two dogs). She has always been demanding & selfish but full of energy. Now she sits in the kitchen on the laptop playing games & doesn't lift a finger to wash a dish, fold a towel, get herself a glass of water. What's up? She also doesn't hear. And the other day she insisted that I had said something that my husband & son, also verify that I never said. Then she got mad at me for refusing to say that I said it. ANyway. I guess I need suggestions for how to communicate with her. She wears her hearing aids but I think those things don't work.
It doesn't sound like the hearing aids. She could be having memory issues. To avoid the stress, sometimes its just as easy to nod and agree and move on. Have you had her tested for dementia?
I think you just need to put them in retirement homes and get on with your lives, before they destroy what little you have left of family joy.
Everytime my phone rings I'm hoping it's not my mom because I know she will want me to come over and do something, even though she has a primary care giver 12 hours a day.
I told her that my sonz were taking me to dinner at my oldest sons restaurant. What does she say: "bring me something back". Didn't she understand this was an outing for US.
I'm not saying a NH is the answer but we are not professionals and atleast she would have 24 hour care.
"you have just entered The Twilight Zone"
Her long term care insurance has accepted her claim and soon I will have a helper 30 hours a week. If you haven't heard my story, Mom is in constant motion. No napping, no resting no peace! I have to use restraints on her so I can get things done. With Parkinsons, dementia, depression and anxiety, she's a real handful. It's going to be hard to place her when the time finally comes.
So for all of you out there that are going crazy, you have plenty of us to keep you company!!
jazzy...join the club...the We Are Going Crazy club! Yup a lot of us here know what you are going through...especially the ones that have NDP moms...(narcissistic personality disorders)