I am the caregiver for my 88 year old mom who has diabetes, macular degeneration, heart disease - you name it, honey, she's got it. I'm single and I moved back home to care for her and dad before he died. I love my mom, and I do my best for her, but I am so tired of being treated like an only child by my siblings. My brother and sister rarely call or come over. If I plan far enough in advance my sister will take mom to the doctor, but then she acts like she's an authority on mom's health issues while at the doctor, when she really isn't. She also thinks mom can go to the mall and run around afterward, which she's not able to do. My brother is useless - would it break his back to mow the yard? They are both married but they have no children, and my brother is retired so he has time on his hands. I complained about this once and my sister said I had chosen my life, and it wasn't her fault. True enough, but again it's HER mom too. I'm not sure I even know what my question is, I'm just so tired of handling this all alone. I find myself wishing my mom would die, just so I could have my life back. Then I feel awful for thinking such things. It's been nearly 10 years of this, and I am at the end of my rope. I have lost touch with all my friends and haven't had a date in 8 years. I just feel so alone, and I resent my siblings so much that when mom does die, I really have no intention of keeping in touch with them. I'm sorry for rambling, I just needed to vent.
Mom is actually doing well! She's a trooper! I'm doing well, also! I needed that break and now I'm ready. All we can do is take it one step at a time.
Sallie, I'm not sure if the ones here are thyroid cancer. I have 2 friends (one going through menopause and one as young as 25) who had problem with their thyroid. I think their thyroid is either too high or too low. I think whatever meds they were taking weren't helping because they both had to have surgery on it. Both of them flew to the Philippines to have it done. Insurance covers 100% if you go to Philippines....
(My hysterectomy would have been 100% covered if I went to PI. But my gynecologist told me that if I can give him the name of a very good gyne-oncologist, he will refer me. I didn't have any. So, he sent me to hawaii. I didn't have cancer. But I did have a $10,000 expense which includes the airfare, hotel and hospital bills. Don't get me going on how the insurance refused to cover the pre-surgery and after-surgery check-ups! Hello?! Duh?!!!....I lost, they won. I had to pay for these check-ups.)
...back to my 2 friends...when i found out about their thyroid, I went online to research it. I told one friend that having an operation is not a 100% cure. That it can come back.
Sallie, I recommend getting the the lab results and Googling on it. Or Google other people's experiences of bad thyroid. I did this with my Complex Ovarian cysts, on the Depo Shot, on Severe Endometriosis. I had first surgery, and then 10 months later, the cysts were back - and it grew big too fast. So, I researched for hours on all of it. When doc finally told me hysterectomy is recommended cuz we tried everything to Avoid this but it didn't work. I agreed right away - because I was already informed. Although, it really irritates me when gyne and oncologist surgeon told me that now with hysterectomy, my endometriosis is gone. LIE! I have done enough research to know this is not true.
What I'm trying to say, is Research, Research, Research!! I even went on sites that were into herbal. Not for the herbal medicine but I noticed that people into healthy living are into herbals. I would find these sites because the blogger would tell some of the things they DO to help with their problem. I found some Very useful advice on that - what to eat, not eat, what food and herbals would make my endo grow, etc...Is your thryoid too high or too low (overworking or underworking?)
I am here with Mom. She is in a NH right now and we are planning on some form of Assisted Living next.
One brother has been great, we, I think, are getting along better and are closer and more friendly than ever before. Why? He is nearby and actually visits and is responsible.
Another brother, the Medical POA, is far, far away and really doesn't want to make decisions. He was Moms choice, she has never talked about her choice with me.......
Yet another brother, who lives in Europe, made it clear he doesn't want to hear directly from me ("I am being kept informed")., so, I don't keep him informed. He was here last week to visit Mom, was here for 3 days (after 2 years working overseas), and literally, did not speak to me even tho he was sleeping in the same house.
I think most of this is a continuation of our positions/expectations of our parents and our childhood relationships with each other. The brother who doesn't want to hear from me was a bully when we were kids (he was a bully to anyone who was smaller than he was).
And, Mom is still trying to get us to all get along, one big happy family. We were NEVER one big happy family. We never wanted to hang out with each other. We are simply people who grew up in the same house and have the same parents, everything else is completely separate.
Yes, I wish we were a happy family. I really wish that was possible. I know of a couple of families that are like that and I wish it could be me. But it isn't. I can't change other adults, I can't make them do what I need or want. Did you notice that I spent the most time talking about the absent brother? Hhhmmmm......... I will have to think about that.
I don't want that.
I did everything for my grandmother almost 30 years ago. I don't ever want to have to do that again.
I was expecting to have the Medical POA for my Mom since I am here with her, but she appointed my Eldest Brother.........
At first I didn't understand and was a bit hurt, but, after thinking about it for a day, I realized that she had valid reasons to ask him to do it. Mom saw how hard it was for me to handle all of my grandmothers things (with literally no help from any other family members), thought she was making the best decision (he has some medical background) and I have some personal medical issues that would make it hard for me to always handle this(like my emotional meltdown this week, with crying and panic attacks and mess, emotional emails.....
.I really, really don't want to make the decisions to stop treatments or put in a DNR. Partly because I just plain don't want to do that again, and partly because I have some siblings who may use those decisions to hurt me. However, it would have been nice if Mom had told me her decision before she got real sick........
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Mom wants to give me some money to cover the bills while she is in the hospital/NH. I said no. I have a little money and I can cover the bills myself. I do not want anyone think I am taking money from my poor, sick, elderly mother. It is sad that I have to be so cautious, but I have reason to distrust some family members.
...I have been thru the financial/legal ringer when my husband died, and I do not want to ever do that again. So, while having the POA's would be helpful since I am the one here, I am very glad I do not have to make those medical decisions. I am very glad I do not have to make those financial decisions. I am very glad I will not have to handle the estate.
Oh, interesting tidbit (I shall now rag on my absent brother). He used to send Mom money each month to help with the bills. Now that Mom is between hospital and NH, he stopped sending money. But Moms bills are the same as before, the only change is her grocery bill, which I was already covering myself. I suspect he stopped sending money because he doesn't want me to get any of it. Sweet guy, huh.
For bills that are iffy, is that services needed? Can you cancel and explain your mom's new situation and their services are no longer required? Or if it's services must still be maintained, then you're stuck with the bill.
It's called: "slimming down to the bare essentials." For now, until you get back on your feet and have extra $$, then best to cut the TV cable cost, etc.... My sis also cut back on those fancy coffees (starbucks) and now buys her ice coffee at MacD for $2.85. I'm just mentioning these costs cut back just in case your other siblings won't help you financially which you will still need to pay out of your own pocket...
Thank you for your suggestions. I had not really gotten to that point in my thought process yet - I was busy preparing myself for her death (which was imminent two months ago, until, last week when Mom decided not to die). The communicating family members were all in agreement about selling the house, what to do with Moms "stuff" (the sofa, the dishes), all of that was under control. Final plans are all made and paid for.
.Then, Mom decided to live. Now, she may die tonight, she may live for months or years.
I am paying the utilities since I am living here. Glad to do so, of course.
Mom is still paying for her LifeAlert, car tags and such. When house insurance and taxes come up she will also pay for that since the house is in her name only and she has the money. If she did not have the money I would ask all of the siblings to contribute, and they probably would (much rather send a check than do the day to day stuff). A couple of the siblings have been quite successful so helping on utilities and such would be a very small burden for them.
I have some experience keeping track of money (used to be a bookkeeper, believe it or not) and took care of my grandmother and her estate, so I am comfortable separating out mine vs. hers. I am keeping all receipts and statements. My concern is the unfriendlies (brothers) who can cause me trouble or make everyone run away.
We know that troublemakers can't do too much, but they can cause you to spend money on lawyers and accountants, much stress and heartache, and family discord.
There are a couple of bills I would definately cut out if it was up to me, but I am going back home soon (been gone from my family and grandkids for over 2 years) so will deal with those bills just before I leave. Yes, the cable will be cut off when I leave but we will make sure the lawn gets cut each week. Haven't decided about keeping the utilities on or not.
I have been mostly freaking out this week, and so grateful to have found this site and getting all the good advice, because the NH wanted to send Mom home with me caring for her 24/7. Mom wants to come home, I would too. But, I am in my 50's, have some medical issues which limit me, and frankly, I just plain want to go home.
Again, thank you so much for your ideas and your thoughtfulness - imagine, a perfect stranger reaching out to me to help!
Sorry, when you come online,it's my time to get off cuz of pamper changing/trache cleaning duites. It's about 925pm here. Gotta go!
May I tell you a true story? I had worshiped my oldest bro (lives next door). When he got married, I hated his wife because she took him away. But despite that, I treated her respectfully because we were taught very young to respect those older than us. (So, you really, really do not want to be the youngest! Cuz everyone older than you can order you around and you must obey.)
Anyway, big bro is greedy - it's a given among us. We all know this. He came up with this scheme to build an apartment on our land and we all split the cost of the mortgage but we couldn't live in the apartment. Hello?! I only made $8-some an hour and I was to pay mortgage in a place that I won't be living in? I don't think so!
He had put pressure to everyone until dad, myself, oldest sis and younger sis resisted. He worked on dad - who cave in and started pressuring me. Finally just oldest sis and I were left. Sis gave in then I did. But, we didn't go down without fighting! When the real estate agent sent us papers to sign it, I called up the agent and tearfully told him that my oldest brother pressured me to sign it. That he pressured my other 2 sisters, too. I told him that I just wanted to let him know that I did not willing sign it but out of coercion. What I didn't know was that my oldest sister did the same and called the agent!
Sigh...my oldest brother, in anger, my favorite brother who could do no wrong - hurt me so bad. He cornered me in the room, ordered everyone out, and then blasted me. I was about age 20, very introverted (very shy, quiet, walk looking down so that I don't look at people's eyes and have conversation. I was so nervous talking to people, I stuttered.) He went on and on and just tore what fragile self esteem I had to teeny tiny shreds.
I still remember those words: "You are Nothing! And You Will Always be Nothing!" He had blocked the door so that I couldn't leave - for one hour he just tore me to shreds. We grew up in a very dysfunctional family. Crying was not permitted. Crying results with being punished. One had to have a very good reason to cry. So, as bro tore me apart, I was breaking inside. Once he was done, I walked out, went to my dad's house (our house) and cried and cried in my room. This was the day my love for my favorite brother died.
He can talk to me today about his health, and ...it's so strange NOT to feel anything! He has truly broke my heart to pieces and it can never be repaired by him. He can pay our power bill but...whatever love I had for him, he destroyed it.
So, Sallie, I understand about how you feel about your siblings. Do what you need to do. But Watch Your Back!!!!
I finally got the book 36-hours by mail. Haven't started on it yet.
Reverse, LH had mentioned the book a few pages back. I'm still hesitating on purchasing it. I figured when LH is done reading it and still recommends it, I will give it a try. ;)
I have been very clear, in telephone calls, emails and face to face, to the siblings that I cannot provide the care Mom will need. I have been here, away from my family, for 2 years. I have been very clear that I am burned out and am going home........
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A week ago the NH said they wanted to send Mom home and I freaked.
Mom had told them I would take care of her.
Noone asked me, talked to me, informed me until the Social worker came into the room to say Mom was being released.
I sent emails to the siblings reminding them that I was not able to care for Mom and that I was going home soon. Only one response, which was "what are you going to do?"
Yesterday I calmed down enough to I talk with the Director of Nursing and the social workers, said I could not care for my Mom at home - my medical issues, I cannot lift her, etc - I did not anyone that I am burned out and want to leave town, I felt that information would be too dangerous in their hands. .......... Social worker apologized for putting me in this spot (I had told her weeks ago that Mom needed to be independent before she went home. social worker didn't remember that conversation!) said she would talk to Mom, tell her she needed to go to Assisted Living, and would help me out since she forgot about the Independent Living conversation.
She talked with Mom yesterday.........
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Well, Social worker forgot to talk with the folks in nursing and rehab.....
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So, today, Saturday and the offices are closed for the weekend, Mom is talking with rehab, and rehab is saying "no reason you can't go home". In fact, the folks in rehab, rather than thinking " hhhmmmm, the social worker has changed the plans, maybe I better find out why before I open my big fat mouth", told Mom all about the ins and outs of the system, told her that going to the local Assisted Living was wrong for her, and a few other lovely things, that the social worker was doing this for money, etc.........................
Noone ever asked me if I could care for her.
Noone ever asked me if I wanted to care for her.
No home inspection has been done to see if Mom can even get into the bathroom or the bathtub (it is an old house in a very small retirement town and everyone in town knows these little retirement houses so checking the home for doorways and such is common sense).
Mom is now mad at the social worker, thinks the woman trying to squeeze money out of social security/insurance......
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What a clusterf#^%ck........
I went to the rehab office today. Told them I could not take care of Mom the way she needs - they acknowledged hearing Mom saying that "her daughter is a bit limited", but didn't seem real bothered that noone had actually spoken to me to find out what those limits are.,,.......
And all because we can't talk. All because I can't talk. All because I am afraid of speaking my mind because of reprisals. All because I am afraid my mother will kick me out of her house before I get a new place of my own back home. All because I am afraid of the mean things that can be said. All because I am used to being the one who doesn't count, I am just a girl.
Now, Mom wants me to bring her home and care for her, and doesn't want to talk with my brother, her Medical POA. And the siblings, just aren't too into the whole "taking care of Mom and making decisions"....
I am standing my ground, I will not commit to this level of caregiver. I am still going home (burned out, miss my family terribly, miss my hometown), but now, it is really, really messy and I feel like such a loser. I would prefer this be done based on actual needs, which are real, valid roadblocks, rather than telling my mother that I don't like her, don't want to be here, and want to go home.
I wish we were a normal family. I wish I could speak truthfully to my mother. I wish my siblings would step up, or at least, make a phone call to Mom defending me and reminding her of my physical limitations.
On top of this, my daughter is pregnant, is a high risk pregnancy, has already had to quit work because of the pregnancy (at 4 months pregnant), on bedrest, and has noone else to help care for my other grandchildren. I worry about her, I worry about my grandchildren, and I know I can be helpful, and happy, back home (a few states away from Moms). Mom knows all of this, but still want me to care for her here. Siblings know off of this, but don't really want to get involved.
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I just don't want to have to say to my mother, "No, I will not care for you anymore."
Please go to Lisa's thread:
"Two years this July My Mother Moved in with Me..."
Read it quick and fast! Take NOTES OF ALL pertinent information. You will see that the Social worker Doesn't Care and will do their best to force YOU the family to care for the parent. READ IT QUICK AND FAST!!! Time is running out for you...
Unless you want to be stuck with mom for years and years. And your siblings won't give a d*** cuz it's Not Their Problem!!!!
What is in your heart? Go home? Your conscience should be clear because you took 2 (?) years out of your life to care for mom full time. You will really need to have a heart-to-heart talk with mom. Explain to her how YOU miss your kids/grands (? can't remember if you had grands) and want to be with them.
Would it be possible to do a compromise? Ask mom if she's willing to move to an NH where you live? This way you and your family can go visit mom or take her out on the weekends? If she doesn't want to move, are you able to be firm with her that either way, you will be going back home?
Because this is NOT a time to keep your mouth shut and "go with the flow." If you do, you will be your mother's caregiver officially. This is the time to grow a backbone, bring up whatever self-respect you have hidden inside you - and Stand Up to the pressures and Firmly state that you are going home. Don't make it sound wishy-washy or as if there's a question mark in the end. Be Firm...
I have not told them at the NH I plan to leave because I do not trust them to keep their big fat mouths shut.
So, hypothetical question: I have told the NH that Mom needs to be Independent before she comes home. Let;s say they send her home and she is not Independent. For example, she can not toilet herself, she has incontinence and cannot clean herself. I cannot leave? What if she has some in-home care, but not 24/7 care at that point? Personally, I do not think she should come back here without someone here 24/7, but frankly, I have no authority, just my position as the "potential caregiver".
Oh, interesting tidbit: I mentioned to Mom "what if you fall? I cannot pick you up" She said that is what her LifeAlert is for, they will send an ambulance. The rehab people said the same thing. Ambulances are expensive and a precious commodity, why would anyone want to use the ambulance service that way when other, more realistic options are available?
I am still shocked and angry that anyone would send an 83 year old person home with a caregiver they never met. a caregiver they never screened. What if I was sick myself and barely able to bathe and dress myself?
If I will get roped in by Mom coming home but not Independent, I will pack up my things and leave the house rather than risk becoming legally responsible as a caretaker. They should not be able to send her home if the caretaker says no, but from the postings I have read, this level of caretaking doesn't always play by the rules - hospitals and nursing homes will do just about anything to get rid of a patient that is filling up a bed.
So many of you have been so kind and helpful and encouraging.
You have helped me see that being at my breaking point does not mean that I am crazy, it simply means that my ability to do this job is over.
So, thank you.
Mary, don't do it! If your mom isn't ready to be independent, I believe you can argue that with the NH. Also, if you can't care for her then, don't! If you take her home, the burden will be on you until the end. Book is right! Know what you are getting yourself into! You have a daughter who is on bedrest. It isn't horrible to be selfish! You are a good person!
So how are you all doing?
Paid caregiver came yesterday...my 19yr old niece said that paid caregiver was so bored, she went on a cleaning spree. Heck, our house is so messy. She actually cleaned out our kitchen ...wow, I can actually see more of the floor! She swept the place, cleaned up our dining table and got rid of the boxes all over the floor. (Trash company requires that we tear up the boxes. I usually do that on Sundays.) She even, cleaned our front porch of trash thrown there by visitors (and I never got around to cleaning their mess). She wanted to go out and cut our grass that is growing too close to the house!! But she couldn't find the machete. We - as in the island - do tend to have snake problem. So you always want to keep the grass, vines, etc...away from the house. Anyway, let's see how long she lasts!
Later, have to clean mom's trache...it's now 10:45pm.
I just found out the one sister who shows up about once a month to take mom out to eat is on her third vacation this Summer. She is always telling me she's soooooo busy! Not too busy to go on vacation! I haven't been on vacation since April 2011. And that was for 4 days for my 50th birthday.
Let me know your thoughts on the book. As I said, I had to put it down at times as it was just upsetting me more because in a perfect world, it would be just like it says in the book!
You know the frustration part - I get it!!! When dad was still walking, it's like a major struggle to get him to his annual checkup (needs to get his high blood pressure prescription refill). We make appts, then I take leave from work, call the taxi (I need to stay home with bedriddn mom), and He Refuses To Go! Sigh...
Same applies with his toothaches! He has several but he just absolutely refuses to go to the dentist. He would rather bear the pain than go to the dentist. He gives all kinds of excuses. He just won't leave the house.
Boy, LH, you're already tired of the arguing and fighting and it hasn't even started yet! You have a looooong road to go. Anyway, you must make sure your mom goes. Because once they stay home all the time, they will Never Want to leave the house. Eventually, this will also apply to any of your brother's future parties!!! So, make sure she goes!!! When she does go, see if you can follow up with the AD people on how she did, or enjoyed herself, etc...I guess it's like what a parent does when they have a child and gets feedback with their teacher...but in reversal. You need to know how your mom is doing at AD so that you can make it enjoyable for her.
I wrote my siblings, told them the current issues, and asked them to step in and help me - get me out of the caregiving thing AND helping me avoid telling my mother than I don't want to help her anymore.
Eldest brother called Mom last night and said that she will look into alternatives to going home with me as caregiver.
Another sibling is hoping to get to town today to have a sitdown with Mom.
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I told them I just don't want to have to tell Mom that I don't want to take care of her anymore.
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So, I am very grateful, and have nothing to whine about today. Today is a good day for me, but sadly, a bad day for my mother.
As you can see, we have so much stress in our lives, that funnies are very much appreciated. Know what I mean? Please don't feel bad that you cannot contribute your "whine" of the day... 8-)