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Nhwm, I guess I was fortunate that when my mom started to need assistance, I was solely responsible for my mortgage and support. I didn't have the option of leaving my job.

I know very few people who have made a success of caring for elders at home. The two women who did were both daughters in law who continued to work; full time aides were brought in to do the hands on care.
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Barb,

I hear what you’re saying and you’re right.

Caregiving for our parents when we have our own responsibilities is asking for too much. It really is.

We could be stinking rich though and not have any desire to become a full time caregiver for our parents. It’s the toughest job ever! It’s physically and emotionally exhausting.

Yet, I was one of the foolish people who felt like they had to be available for my parents. It cost me to do this, I regret quitting work and devoting so much time to my mom that I missed out on some of my own family time and time with friends.

I was one of the examples that the therapist referred to in the article that I posted above. I was the ‘reliable’ one who couldn’t let others down.

For some reason, I thought I had to be the one who did the hands on care. No, I didn’t! Just because I was the only daughter. Just because I had a husband who had a good paying job. Just because I was the child that was dependable. I wish that I could have known like you did to say, “No.”

I had a terrible fear of disappointing my parents. I felt so badly for all of the times that my oldest drug addicted brother hurt them. So, I felt that I had to be the good child. I wish I had gone to therapy sooner than I did, because I truly needed it.

I suffered from being a full time caregiver. Plus, I really don’t feel that it’s the best thing for our parents either. It teaches them to become fully dependent upon us.

Deep down, mom hated being a burden on us. She shared many things with me before she died.
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I was thinking yesterday of the consequences of not ever saying no..

For me, what if I had been truly unable to say no to that rediculous child pickup roster? What would my boss say as I left work early..? Or the school Principal as my own children were left stranded at the school gates..? Unrealiable worker & unsafe parent is what.

Taking on a family caregiving role if you have capacity to do so is a very different thing.

But it still needs limits. Otherwise the 'mission creep' takes over.
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Beatty,

You said it. Every situation requires setting realistic limits!

Even if a parent is in a facility, and has their basic care needs met, and they are demanding that their child fulfill all of their desires, their child has the right to say, “No!, I am not willing to do that.”

I am not the same person that I was. I now know that I should have said, “No.” Plus, if I had it to do over I would have not been so ready to offer as much help as I did.

My friend oversees her uncle’s care at a skilled nursing facility. He is her mom’s brother and in his late 90’s. She visits him once a week and checks in with the staff. She takes care of his necessities. He is a kind and considerate man who isn’t demanding in any way. She looks forward to spending time with him.
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Yes Need, I just saw you replied! Was still finishing my long thought.. Yes, even when in care, limits are very much needed.

I believe I am seeing a dynamic like Mid's inlaws too. Didn't wish to hijack her thread.. Someone wants whatever, people refuse to say no, help is hired, help is declined/refused, potential for neglect is created.

When someone CARES so much, is conditioned to care & give... Continues to give freedom of choice but without limits. Where does this go?

Control on one end of a spectrum - Freedom on the other.

Too much control = abuse
Too much freedom = neglect

If I had let my children eat cake & icecream for every meal, go to the playground at night on their own..? Neglect.
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Beaty,

You said that beautifully! I couldn’t agree more! It’s really sad when these things occur.
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I was all of the above in the post for a long time. I was always trying to please my mother and everyone else.

Until I finally decided to start pleasing myself. Sure, I care. I want to help if I want to help if I can, but if I don't then that's fine too.

I realized a long time ago that I'm not the only person in the world who can do a job or who can help. The world will not end if I say 'no' to something or someone.
I have yet to see a black helicopter land on my front lawn. No secret service agents flooding out of it to haul me off to an unknown location because I said 'no' to babysitting your kid or your elder.
No tear in the space-time continuum occured because I don't meet every want and need personally.

Helping is great if a person wants to do it. Caregiving for an elder doesn't always have to be a miserable experience. If someone wants to take it on and try it out, they should.
Just make sure it's done on the caregiver's terms. Not the care recipient's.
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Burnt,

I truly admire your strength. Sometimes, we find our strength from going through our toughest battles.

I know that you chose BurntCaregiver as your screen name but I feel that it should be ‘Surviver’ or ‘Warrior’ because you may have battle wounds like all of us have from caregiving, but you lead the way now!

It took so long for me to find my strength. Oh my gosh, never in my life will I ever again be the broken woman that I was.

I know that you and I dealt with heartbreaking family dynamics at times and it is a life changing experience, for sure. I’m still a work in progress.

I am so happy for you that your caregiving years are behind you. 25 years is a very long time, indeed!

You deserve all the joy in the world now.
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@NHWM

Thank-you for your praise and wonderful words. I chose my screen name BurntCaregiver because at the time that is what I was. This group helped me so much because I was living in hell.
We are all still 'a work in progress' every one of us. Nothing wrong with that because it means we are still capable of progress and change.
You deserve all the joy in the world too, my friend. I think we both deserve a hurricane as well. I'm making a pitcher of them tonight for me and the old man. Why not? So what if it's Monday. It's Friday somewhere in the world LOL
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Burnt,

😊 Absolutely!
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