This seems to be a question that is not asked enough or we think what we are feeling is not as important as what our loved one is going through. This job we have taken on is a tough one and there are days when I think my "stress rope" cannot be pulled any tighter. Then there are other times that make those bad days just a memory. Do you feel like banging your head against a wall one day? And then the next day your loved one is attentive and loving and comprehends whatever you say? There are some who keep those feelings bottled up within themselves; others take the time for outside resources and others who look at sites such as this for some understanding. I do better when I have someone else to bounce my feelings off of. Let's face it....we aren't superhuman and besides ourselves and perhaps a family to take care of we now have taken on the responsibility of another human who is incapable of taking care of themselves. Do you breeze through the care giving without a problem? If so, I would like to know how you do it, maybe you can offer some new ideas; do you have feelings of frustration and need to talk about those? Come and talk and know that you can speak freely and without judgement and without finger pointing.
I am caring for my mother-in-law and have been for about 1 1/2 years. She has moderate dementia and incontinence. Other than that she is very healthy. Sometimes that short amount of time feels like 10 years and I wonder how long I will be able to do this job. I get so very tired of hearing the same thing day in and day out, but I have to remind myself that to her, each time she sees me, she is offering new information. At times I have no problems communicating with her, but it seems like more and more she cannot retain a thought longer than 5 minutes. We have had to make signs for her so she will know what she can and cannot do. So far it's working, but for how long? Maybe I will have to end up making her a "Book of Do Nots". She is on memory drugs, which don't seem to make a difference. So why do I continue to dole them out to her? I guess I'm afraid of what might happen or how she might act without them. I might have to rent a boat or buy a helmet! Sometimes I see something in her that leads me to believe that she could get aggressive and what would be my reaction to that? At the end of each and every day, after she is tucked into bed, I breathe such a sigh of relief. The "inner beast" is quiet at last, or at least for a few hours.
Pull up a chair and visit........I would like to know how you are coping everyday..be it good or with handfuls of stress.
So dad gave the SIL a hunting knife to sharpen, it got put with his tings and he took to his parents house. Dad keeps asking for it. I actually bought it for him many years ago (with moms help). As I told him it will take time to get it back and I have asked for it and the SIL agreed to send it back, no worries. That is all dad can be concerned about, not the fact that his grand daughter lost her marriage.... nope, nothing about anyone else, just his things....
Dad is yacking to anyone who can hear about how bad his back pain it. I have never heard him complain about his back ever until now. He says it is from an accident over 50 years ago. Yes he was in an accident but all of a sudden he needs surgery, he hasn't even seen the back Dr about it yet! All of a sudden he is dependent on the cane, tell everyone he sees how much pain he is in. The man can scurry to the nearest piece of pie with no problem! If he needs surgery he will have to go to my sisters house (the nurse) I dealt with the last one, she can deal with this one.
Edited after reading the post again - Jim - from what you describe of your mother, despite whatever else her problems are, the dementia is worsening Paranoia is part of that. She is a sick woman and needs medical help. Please document her behaviours and send them to her new doctor and ask for a referral. I suspect the time is approaching when she cannot live alone alone anymore. She needs a full geriatric psych evaluation and to get that she needs to be seen by a specialist - a geriatric psychiatrist. There are meds which help the paranoia. My own mother, who was always a difficult person, went through this. It was only when the geri psychs became involved that things started being done to help her. This is way past the scope of a pcp. Do you have POA/health and financial? Assisted living may not be enough for her. She may need memory care.
I know you are on a very difficult journey. Please try to get the professionals who can help, involved. Blessings
Since when do parents become so cunning? Like children, seeing how far they can get. Made him his favorite cake today. So I am still the bad son?
My dad's new apartment is quite nice, just the right size, there is some daily oversight from building staff and there are parties and such where he can socialize. There are shuttles 3x a week to shopping, on-demand rides to doctors. I wish I had such a life! He has it made and he isn't beholden to anyone. What more could a narcissist want? :-)
Maybe just do some checking into HUD places in your area and go do a drive by. They're pretty nice, imo. It took me several years to accomplish getting my dad moved into his new place but wow, been the best thing ever for everyone, especially my dad.
You have got one big headache taken care of - finally - so now move on to Dad.
However much responsibility you feel for Dad if you want to continue to have a wife find him somewhere else to live. Get him on a list for HUD, Section 8 or an elder apartment if he is capable of living alone. You can still help him out on your own schedule. Some places rounf here have nice apartments and a resident warden and have their own bus which takes them shopping.
It can be done you just have to persevere.
Well. That makes sense. 😉🙃
Just explaining that -- I know we mean well around here when we push for people to stand up for themselves, but if you're doing exactly what you want to be doing given the situation, and you only wish to complain about it and have a moment of indulging in that and then go back to more of the same... then by all means, of course, it's your life and AC is here to be a support to the caregiver, whatever form that support is.
Yes I did laugh when he told me about AA. Just like when he was at a winery and had a special hamburger named after "James Beard". He told me "They named the hamburger after the guy who started the boy scouts"..... Hmmmm, I told my wife, "more like maybe the award winning chef you might think"? Again, I had to laugh.....
Its been a difficult weekend getting the SIL out. I felt like I got hit by a bus from all the adrenaline coming down. Its been tough. knowing someone, and tossing them out. Its not that I didn't like him, I just didn't like the person he was. Hopefully he will get the help he needs. He needed to be with his family so they can help him and take is problems with him. Already the house is calmer. Still finding booze bottles tho...
Getting tired of bailing people out......
"If I didn't pay for it he would be here and go nowhere then I would have to drive him..."
No You Wouldn't.
If you didn't pay for the car repairs, he wouldn't be able to get the car repaired. He could sell it as a doer-upper and use the cash for taxi rides or bus rides or whatever, or it can sit in the garage until he's got the wherewithal together. Meanwhile, back at the ranch...
Then he would be here and go nowhere... Well, that's up to him. He can sit and feel sorry for himself. Or he can call a friend and arrange a lift. Or he can get off his arse and take his poor old dog for a walk. But the point is, it's Up To Him.
and I would have to drive him. Why?
I'll tell you why. Because you insist on taking responsibility for solving his problems, that's why. But you have the same binary choice that you have always had, and are STILL not getting.
a) Your father is a competent adult who is responsible for his own welfare and can make his own decisions. His problems are his problems, not yours to solve - or bloody pay for!!!
OR
b) Your father is your dependant, who is beginning to lose competence, and you are responsible for his welfare and that of his belongings including the dog. In which case, your house, your family, your rules. Get him a cheaper car. Get him a bicycle. Stop funding things that aren't good for him and that you don't approve of and that make your life difficult. Best idea of all: find him a good facility.
But please correct that error in thinking. You do not HAVE to do anything. You make choices about what you want to achieve based on what you believe is the right thing to do. Stop leading yourself up blind alleys.
Hugs!
As far as daughter she is back to her normal self, even better. I know she will yo yo but from what she tells us a huge weight was lifted. He was a complete drunk, hammered every day. We knew it was bad but not as bad as she has told us. I am so glad she was here and we could help her through this. She has already moved on in her mind and is planning to get her own place quickly. She needed this. I tried to tell her long before but she was nose blind. Now her eyes are open!
As for dad, not sure, we will just be day to day with him. He is a narcissist, his sister called yesterday and advised she was in the hospital with a kidney stone, he immediately went into how bad his were. No mention of how was she healing etc.... Its all about him. The other day he watched his dog piss all over the living room rug and didn't even move. He let my daughter and wife clean it up and didn't even move out of his chair. He wont let his dog out more than once a day. We tell him every day let your dog out even at night he wont do it. It is like living with a child.... I have 3 dogs now..... only one is mine....
I asked my father not to tell anyone about this until our daughter is ready. he immediately goes into I mode, "I know the guy who started AA"... how can anyone be so self centered when his granddaughter is going though this, not one question on how she is doing....
So now a little less tension in the house. Now to deal with dad, take him to the repair shop so I can pay for his car repair... "happy birthday dad"...... Lets see what next issue he comes up with...... Oh yeah, he claims he will need back surgery...... as the siren wales.......
Today, I needed to buy a 20lb bag of rice. I struggled to get it up into the cart, then out of the cart into the trunk and then from the trunk up the porch stairs and into the house - all using mainly my right arm. I used my left hand as little as possible. Even just using my right hand, I felt it pulling my pulled muscle, causing pain on my left side. But I did it!
Now if I can just talk for over 3 minutes without getting into a coughing fit. My bosses will be going off island at the end of this week. I will be by myself manning the phones. I sooo dread this because the cough medicine doesn't work if I talk too much. I was talking to oldest sis today telling her a story. Not even 5 minutes, I started struggling to breathe, panting, coughing. I swear it feels like I'm asthmatic. (Not that I know what an asthmatic person does...only what I see on TV.) I have weaned myself off the cough medicine this weekend. But I will have to take it tomorrow - every work day morning. Can't afford to break into uncontrollable coughing. Not very professional. Other than that, I think I'm getting better. {knocking on wood. Let's not jinx it.}
My brother got married. Both of them don't know the meaning of monogamy. Both get hurts when the other fools around. But.. they still got married. When she finally found a better man (more money and willing to spoil her), she walked out of my brother and their 4 kids. My brother kept hinting to us how so expensive it will cost to get a divorce. He claimed thousands of dollars. None of us offered. He made the decision to marry. He can just as well find the money for the divorce. (She ended up paying for it because she wanted to marry her new man.)
Also. Do you think your wife is joking, too? I wouldn't be too sure about that. There's many a true word spoken in jest, and you don't want to wake up one day and discover she's moved herself into a nice little one-person apartment somewhere because she got tired of waiting for you to listen.
His latest issue is his back, complains of pain from his accident 50 years ago. He cant stand for long periods of time, yet he will go to his club and cook all day (so he says). My wife advised him "why dont you get people to help?" Now he is going to see a surgeon about his back and have surgery. How about you stop eating out all the time, exercise and lose some weight? His clothes dont fit, his belly is popping his shirt buttons. his weight is the issue, not his back although one effects the other. Now if he has surgery we will have to be the nurse again, nope! He can go to his daughters to have it. I suffered through one, not doing that again.....
I have been trying to be the nicer son and talk to him but nothing changes. Wife keeps telling me we should sell and move into a one bedroom condo...... There are days!
tg - good to have sil out of the house. Is dd still proceeding with the house purchase? I agree with what ali said - you don't have to do any of that. You can choose to but you don't have to. If you were hit by a bus tomorrow they would find a way.
alii - very well put. "I've found that for myself, personally, when I would own my choices, it made things more clear as to what my choices were, exactly. I would still choose to do the things that were easiest and best, the choices to take care of others and do things myself, but it helped to affirm often that I did have a choice, and I better understood the role I played in the bigger picture." Yes!!!
This was just the thought that went through my head when I read your post, nothing more, definitely not a criticism of you. :-) Caregiving snares some of us in a mental way, and while you may never find your way clear of doing the physical or financial things that you feel need doing, you can be very clear with yourself that this is your choice. And you're a darn good person for doing these things for your family. :-)