Hello, Caregivers! We were wondering if the flu outbreak has affected any of you. And if so, how has that impacted your role as a caregiver?
(We are working with a reporter to research this topic and would appreciate any stories/experiences you might be willing to share.)
raging in our area. I have had what I call the "crud" twice this winter, my Mom didn't catch it the first time, but made up for it this time I had it. Anytime she gets this bad
cold stuff, it automatically turns to pneumonia because she cannot comprehend how to get the mucus up and the nose blowed and such. So here we go to the ER, me after 10 days of the "crud" and my Mom so weak that I had to dress her and practically carry her to the vehicle, stopping to rest about every 2 feet. We arrived at 12:30 pm. Everything went smooth, x-ray, bloodwork, diagnosis and deciding that she needed to be admitted for treatment because she cannot shake it off on her own. So, at 10:30 PM, we finally arrived to her hospital room! 10 hrs in an ER cubicle with an agitated dementia patient is enough to "frazzle" any sane person's last nerve and that is just about where I stand today. Mom is super, sweet, mild and meek, but yesterday was a different story. She got an "obsession" with the bathroom and thought she should go set on the pot! Kept saying I have to pee. Just in a little bit, I have to poop! So all of the ER staff was
so swamped that I thought I do it all the time at home, why not here?! So I do and she is so weak and tottery and confused that she and we ended up in the bathroom floor. Luckily, I caught her with my body and she had a light landing, with me being her padding. Hopefully, the good Lord will heal my neck and shoulder, so that I can continue caring for her. It took a PA and 2 nurses to get her up and back to bed and I got orders, DO NOT let her out of that bed. If necessary, let her use her Depends. So then she decided they were talking about her and on and on and on about I have to go to the bathroom. I said I will call if you are sure you have to go, "well, I don't know", "I just passed gas", and I said "Mom, you cannot run the staff back here every time you let a fart"! My apologies to whoever heard me! The around 4 in the eve, she started "sundowning" which she doesn't do, but because of a strange place, she made up for lost time! This lady has slept from Friday until Monday morning almost non-stop and I'm guessing that she is making up for lost time of being asleep, because there is NO way she was even close to closing her eyes. If I am around, she will NOT rest at all. Why, I do not know! So today, I am dreading even setting foot back in the hospital to set on my "rearend" for the day. She will either be asleep all day or agitated again. I am so far behind on bills, laundry, grocery shopping and everything else in my life that I don't know what to do. All I do is pray! This scenerio has been going on for 2 years and 4 months now, like every other month. I am an only child and have one child myself, who tries to help me out as much as she can, but I am wondering how much longer I can last. Mom turns 94 this month and I am 57 and feel like I am the one going down hill. Two years make a big difference on one's health and activeness during a stressful time. Does anyone have any helpful tips or ideas that might be able to relieve a little of my stress level so that I won't have a pre-mature heart attack or nervous breakdown before my time?? Thanks for listening to me and know that you are not alone in caring for your loved ones and going through a rough time. All we can
do is PRAY, PRAY, PRAY! All tips will be greatly appreciated! Thanks! Plus, I feel guilty leaving her at the hospital by herself, but she will NOT rest with me there.
==When did The Flu Season change time-frame so drastically?
For many years, media hyped the start of flu season back in August, "hurry and get your shots!!!!" --Flu season is upon us imminently...[referring to the Fall season].
SUDDENLY this year, "flu season" is now Late Winter/Spring?
==What are the existing conditions of those who die from The Flu?
==How many get the flu shot, and die anyway?
==Exactly what do those who do die from "flu" actually die from?
==HOW MANY people PER POPULATION, die from Flu?
==Why do people get sick with flu symptoms, from the flu shot???
A Doc finally explained why I seem to get the flu after flu shots:
"Your immune system goes into overdrive responding to that killed virus; your system does not know it is a killed virus, it simply responds..."
....Which would give foundation for some people who used to come to our old office, who got their Flu Shot divided into 4 mini-shots delivered subcutaneously, at the rate of 1 per week for 4 weeks.
Those patients had NO adverse reactions, yet still got benefits of the flu shot.
When I tried that one year, it was the ONLY time I -never- got sick from a flu shot or any time over that winter.
Why?
PERHAPS, some folks immune systems too easily go hyper-active, and do better with smaller bits repeated over a period of time. Those with immune oddities also can have Fibromyalgia, Chronic Fatigue, Arthritis, and many other auto-immune dysfunctions that have hyperactive immune function reactions.
Mine seems to be one of those.
BUT...I no longer work where the Doc will do that.
IF I could get the doses drawn up, from a Doc, I could do them at home.
But none are doing that, either.
This process is sort of done with a few vaccines.
It may be time to evaluate this seriously, to learn if this would help other basic vaccines work better with less adverse effects.
I've just returned from being with my mom in the NH in TX. She as well as all the other residents are current with flu & pneumonia shots and all staff are required to be current on that too; still they have about a 10% - 15% outbreak. The ones who get really sick get moved to the rehab wing of the NH for it seems about 3 -4 days and a couple have gone to the hospital. Dehydration is a huge issue in all this and those that get checked out over the holidays to be with family seem to have a higher rate of flu symptoms. This I gathered from family visiting the NH for the New Year's Eve party. Two with the same story...."they took mom home for Xmas for a 3 day stay and now she is just so sick since she is back @ the NH.."
In TX, flu shots still available for adults, run $ 20 - 30 @ Target & HEB.
When I started this long dementia journey with my mom, I was told to get a pneumonia shot by my mom's gerontologist, this even though she is in a NH. This is totally different from the flu shot and seems rarely is routinely given or available. I think it is a live vaccine, so may be due to that. Got mine about 5 years ago and it is good for 10 and ran about $ 50 and I got it at a public health clinic and had a whole disclaimer that needed to be filled out. Had a sore & swollen arm for about a week afterwards. I am the only one in my family with a pneumonia shot and I think that whomever is the default caregiver for their household should have one. They last like 10 years too. There needs to be more information on the pneumonia shot.
Our whole family has gotten their flu shots: my DH's building does flu shot week for all firms in the building (but not their families) and I think you have to be in an insurance program to get it; my son's school does them and sends a routine form on it with all the starting of school paperwork bundle and cost is $ 10.00 but his school has an actual RN and LPRN on staff. I get mine annually at either the public health clinic $ 15.00 or Target $ 28.00 and just pay for it and do not file insurance as they pay only $ 5 - 8 and is just not worth the followup time and paperwork bs to file insurance.
I don't think cost is the big issue in why more don't get the flu shot but rather the it's not going to happen to me and fear of getting the flu from it. And I bet that's about 30% of the population and they aren't changing their mindset. We live in the Hurricane Katrina zone and after the storm for about 3 years, the public health clinics were doing all immunizations, flu shots, etc for free as so many people had lost their medical records and their physicians were gone. EVEN THEN people just didn't go and do it or take their kids unless they had to for school or work.
Tamiflu has been a good and bad thing. ALot of folks feel they don't need the flu shot as they can just get Tamiflu and be just fine. Which is total loco.
We spent the entire day in a mobbed ER yesterday, and only two people came in that were NOT there for flu and respiratory symptoms. Dad's in an overflow wing and the hospital is over-full...Lisbeth