Ever just want to tear your hair out, or someone else's? If you cannot restore a sense of balance, you will run away from home? Just want to say some things without the constraints of staying on topic? Well, this thread is for you! If you just need a short break to let it all hang out, be a brat, then come on, you can do it. No holding back! Go for it, you can do it.
My scientific friend is working on a cookie flavored IV right now, bypassing the taste buds, it allows one's brain to think they just had a cookie.
No doubt, it is an In-N-Out night followed by a cream puff. Thanks MsMadge.
Delay in hydrating patient, not good at all. So sorry!
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I don't think the SNF where mom is getting her IV has cookies
In fact, nurse told me I couldn't give her any candy - ha ha
If they think I'm not going to give her a treat now and again, they don't know what a berserker Viking will do when she wants a cookie
That said, mom's skin is breaking down now
She slept 24 hours with no food or water Thursday
Nurse asked doctor for IV fluids yesterday at noon and didn't hear back until today at noon
Sepsis is kickin her butt
I want her back in her full size adjustable bed but sending her back to hoca seems like a bad idea too now
SNF is private pay but a bit less than hoca and no where near as comfortable
Still no frick n frack -
I'm wearing the same clothes I had on yesterday - clean undies and socks - and have to go into the office this afternoon
Wish I had the energy to behave badly
Btw, who ever mentioned that series on FX better life or better things - I did a binge watch and quite enjoyed it - dark comedy but this week's episode about a family trip to Canada to visit English relatives was quite brilliant
Cwillie - do you have a good book ? I just ordered the lilac girls or lilac sisters based on a friend's recommendation but suspect it will sit with all the other books I want to read and never get to enjoy
Make it an in n out night
Hugs MsMadge.
But I've got chocolate covered cream puffs to celebrate hubs and I anniversary, after 17 years. Now, when I ask myself, 'Why am I doing this?', I can be comforted, it's for the dozen cream puffs I bought.
Sharing Cwillie and UpsetSister.
Yep, already had my coffee.
His alarm is going off now....an hour and 1/2 later.
Laundry is done.
The things about the we don't need to turn her because she doesn't have pressure sores, though.
MsMadge, how you have got through the last twelve months without punching somebody I do not know. Hugs of admiration.
And according to my computer it is something like twenty past five in the morning with you?
GO TO BED.
Hugs again.
I'm working so late my head is going to explode - I guess that's for the whine thread
Haven't seen the Viking since Monday evening and so I've added an xtra 2 hour evening caregiver just so she's not alone
The bed issue really bothers me - even two years ago in rehab, the bed was larger and had rails - don't know if it's their stupid rules or the state, but They say they're considered a restraint - I said I'd sign a consent - topic for care meeting next week - at one time, this place was considered the top facility in the area
I have to contact genworth to see how many bed hold days are left on her LTC policy at hoca - I paid hoca for November and will owe them 30 day notice if she can't return - she's on iv antibiotic another 9 days or so
I don't know what her prognosis is just that she's exhausted and is occasionally mumbling and laughing which is better than being anxious at this point - I don't feel good not having control over things now and not knowing staff - or even the doctor
Morning caregiver helped give her a bed bath but now bookluvr has suggested that gets the bed wet??? Great that can't be good
Flipping Frick and frack have made no effort
Don't hold back, we are here for you.
No pressure, but I am waiting on word, as well as your other friends, on your Mom's condition.
Thank you for checking in with us as you have!
No one would blame you if you just went home and slept for three days.
Love,
from Send
I can't believe that a bed in a nursing home doesn't have rails. That's nuts! What are the poor, weak, older folks supposed to use for assistance in turning or from keeping them from falling out of bed?
Can her doctor write an order for them? Surely the NH can find a bed with rails somewhere.
If the idiots can not come up with rails, could they rent a bed with rails from a medical supply company and bill it to the insurance because she has a doctor's order?
There is something called Americans with Disabilities Act which can also protect patient's rights. When one requests staff to make reasonable accommodations under the ADA, that request must be honored. If you bring up reasonable accommodation I doubt you will be struggling to explain to another nurse why anything......
imo, hoping for the best for you and your Mom.
My dad refused to use the air mattress. He said the bubble was too hard (not squishy when you push it down). It was hurting him. He also refused to turn on his sides. 24/7 for 5 years, he stayed on that hospital bed, very rarely getting off it, always on his back, with a 45 degree angle head incline. Since he refused to use the air mattress, I put a lifter blanket (folded twice) on top of the mattress. Then on top of that, I put a washable 32” x 35” waterproof bed pad. It was large enough to cover just where dad’s pillow ended- down to behind his knees. And it did add a tiny bit of cushion over the bed. (They have larger sizes but my dad is small like me.) And then, to prevent the bedsores from appearing on his buttocks, I bought one of those 4sets of square cushion pads that you place on the dining chairs. I would put one pad right where his butt is lying on.
Will they allow you to buy those foam mattress topper (Kmart twin size costs about $20) ? I didn’t use this for dad because when the govt caregivers came to give him a bed bath, they literally pour water over him, and the bed gets wet.
I’m trying to brainstorm for solutions around their unhelpfulness.
The nursing home bed is so small - seems narrower than a twin - and she's a big girl
I asked the DON about rails so she could grab when they change her - was told not allowed
I said others have them
Response - they have air cushions
I said I'm concerned the bed isn't wide enough to reposition her off her back - I'd like her to have an air cushion
Response - she doesn't have bed sores
Yes, and I'd like to keep it that way
Speech therapist saw her yesterday and thought she could swallow well enough but seems to spend a lot of energy chewing and when drowsy the food gets left in her mouth and chokes her when she lays down
Late today doctor decided to keep mom another night in hospital as she was too lethargic
He also reduced her risperidone - I hope that doesn't cause any issues with her in the nursing home if the Viking starts to roar again
I'm glad she is in hospital another night but now discharge on Monday will mean more work missed
Spent 5 hours at the office tonight but I'm still 2 days behind in my deadline
Now sitting bedside with her and she's more alert than earlier today
Asked for a cookie
I think it is a licensing issue for hoca that they cannot handle IV antibiotics so a home health visiting nurse wouldn't work
She will need to be at the nursing home for 14 days - the length of the treatment
One step at a time but if I can get her back to hoca and her full size adjustable bed, how long until the next episode ?
Book theses days they put in a PIC line which does not have to be changed every few days so that is no problem for home IVs. I had mine in for six weeks and no problems
Sending hugs and good thoughts for you and your Mom.
Thank you for keeping us updated on your Mom's progress, and I hope the discharge today happens smoothly and safely for her.
Take care of yourself too, if that is at all even possible with your work schedule.
Hugs, here is another hug, and a pat on the back! Good daughter.
You might be lucky there is no frick and frack appearances, I don't know, siblings are really a pain for many caregivers on here.
{{{ Hugs }}}
Regarding her choking, while she's still in the hospital, is it possible to see if she can have that swallowing test? Was she choking because of the med? If so, then check if that med can be crushed. I remember always having to ask the pharmacist if mom's new Rx was crushable. When they said it must be swallowed, I explained that she can no longer swallow food (stomach tube, trache, suctioning.)
As for the IV antibiotics, if hoca won't do it, are they willing to have an outsider come in? When I had my heart infection, ordered bedrest and IV antibiotic for over 4 weeks, the nurse showed my nephew how to hook up and end the IV for me. He would come in every day to do it. Leave and come back once in a while because that IV takes long to finish. My insurance covered the nurse's visits every 3 days (to change IV site.) It was over $100 per visit. After her 4th visit, I was sore on both arms from her changing the IV site every 3 days. I asked if there's another way of doing this because there's no way I will put up with this for 6 weeks.
I'm glad that your mom is still fighting the sepsis. But I guess, you still have more obstacles to overcome like what to do when she's released from the hospital.
{{Hugs}}