Google 'caregiver burnout' and see what you find...you will find a great deal of sites that want you to 'take care of yourself, rest up and find the time to gather the strength to carry on' Big deal. What about the sites that show how angry you are? What about all those sites that tell you that it's ok to fight and yell and scream and hate your life because everyone around you talks about how great theirs is??? There are a million advice sites that tell you to go take a walk, go get some retails therapy and basically tell you up the wazoo to 'take time for yourself' but what about the sites where you can write about how really miserable you are? The sites about how no matter how much you've done for the person you got stuck caring for that they still tell you that you don't do anything for them, that you are completely selfish and a terrible person for thinking about no one but yourself? Show me the websites that say it's OK to wish the person you're caring for would die because you see no other way out of this life. Where are the sites that say it's ok if you really wanna scream at the person you're caring for about how fucking LUCKY they are to have you there? Show me those. There are a million sites that say, breathe and find your inner strength to carry on but what if you have none left? We're supposed to be moving out in a month and yet nothing has been done and no decisions have been made which is really tangling with the notion of making me stay but I refuse. Show me a site that tells me 1. Not to feel guilty 2.one that tells me that my siblings are rotten selfish individuals for not helping me all these years 3. one that tells me its ok to think about MYSELF for a change 4. one that doesn't tell me what a saint I am for doing this...
Now, it is our mother. Everyone is older. 1 sibling is kind and helpful and supportive. Another sibling is nice and all, but not really into it. Another is far, far away, but likes to stick his finger into things from afar, stir up emotions, and then watch from afar as the mess swirls, all the while being the calm, mature one.....
Then, there are siblings who no longer talk with each other. Frankly, valid reasons, but that doesn't make it any easier.....
And Mom, she just doesn't see any problems.......never has.......
No wonder we want to scream, no wonder we want to run away, no wonder we want it to be over with,already.
Two days ago I was overwhelmed and frozen - that deer in the headlight thing. The only thing spinning in my head was "Oh, My God", just over and over again.....I think part of my guilt comes from unreasonable standards I have for myself-why can't I do everything and make everyone happy and still advance my career and have lunch with my friends - you know, kinda' like how things work out so well on tv......... Part of the guilt is because I come from a family that always trained us to think of others first, but forgot the part about others giving back. Sacrifice is good. Yes, but sacrifice means giving up something that you have, and I don't have anything to give anymore.........and in a family relationship (or business or friendship) sacrifice works best when everyone tries to think of the needs of the othe person first-mutual sacrifice.
Dad worked hard to support us, he worked overtime almost every day to take care of us, but he also went to the coffee shop every night, and he went for walks every day (all by himself), and he and my mom went out to dinner together on a regular basis.
Mom stayed home with the kids. She gave up so much to be there for us. She wore the same clothes for years , she cut her own hair, so that the kids could have what they needed. But she went with Dad to the coffee shop every day. She took a ceramics class once a week......I feel guilty for not being perfect, for not being there 24/7, for not being calm and taking care of things with ease, but I forgot that my parents were not there 24/7 either. They got away from the kids every day. I compare myself to the care they gave me, but I didn't realize until today that I am comparing my adult actions to my child-vision of my parents. I am trying to be what I thought, as a child, my parents were, always there, always calm and controlled, perfect. I forgot that they left the house everyday, they got away from the kids every day, they made time for their own relationship, every day. I forgot that they told me to go outside and play so they could have some peace and quiet. I forgot that they told me to stop complaining because I didn't like what was for dinner......so right now, as I write this......I am realizing that I don't have to be perfect, I don't have to be everything for everybody.
All the advice given is practical if you are not in fast forward mode of just "keeping up." If you are in the "just keeping up phase" all that advice is worthless. Sounds like you are beyond the burned out phase so the advise is also worthless. You need tangible things to work with which isn't happening for you.
I will re read your post and see what i can do. I am in Northern CA; where are you
Yep. All of that..........
I just found this site, too........
Do you feel that you have lost, well, you?.........
If you are at your breaking point, and a weekend off is not going to make it better, then you have to do whatever it takes to protect yourself. Noone else is in your home. Noone else is wearing your shoes..........you won't just pack your clothes and sneak out of the house one night, but you can make changes, you can make plans and follow thru.
It is normal to be angry at times. It is normal to be frustrated. It is normal to want to cry and scream at the same time. it is normal to have times when you feel numb, it is normal to feel trapped and occasionally panicked......but.........not all day, every day.........
Everyone has their own breaking point. Many here seem to be amazingly strong and determined and dedicated. I wish I was like that, but at this point, I am in the freaking out phase........I have been helping Mom for over two years. She is sometimes nice, but sometimes not very nice at all. And, she knows which buttons to push that make me feel horrible. She knows my personal, deep down weaknesses and she uses those personal weaknesses/sensitivities to hurt me, to be mean to me, and to "keep me in my place". I work on Detachment with Love, but I am really struggling with that right now. Well, OK, honestly, I am failing at that.......
In this life there are things we can fix, and things we cannot fix; situations where we can be helpful and situations where we are not helpful. Be honest with yourself, can you fix this family member, make him/her all better? I suspect not. But if you go over the emotional edge you cannot be of help anymore.
You know, deep down inside, what you need to do. You may not realize that. You may be afraid of making a decision, of speaking the truth, but it is there inside you somewhere. You are where you are right now because you want to be helpful, you want to do the right thing. Being honest, with kindness, is a good quality. It takes strength to be honest......It takes character to be honest (with kindness of course) at the difficult points in life.......you are never a failure when you are honest.....you are never a bad person/ungrateful child/lousy wife/whatever when you are honest.....
In addition, you may not get enough physical activity or eat a balanced diet, which only increases your risk of medical problems.
SIGNS OF CAREGIVER STRESS
Feeling tired most of the time
Feeling overwhelmed and irritable
Sleeping too much or too little
Gaining or losing a lot of weight
Losing interest in activities you used to enjoy
STRATEGIES FOR DEALING WITH STRESS
-Accept help. Be prepared with a list of ways that others can help you, and let the helper choose what he or she would like to do.
-Focus on what you are able to provide. Don't give in to guilt. No one is a "perfect" caregiver. You're doing the best you can at any given time. And you don't have to feel guilty about asking for help.
-Get connected. Organizations such as the Red Cross and the Alzheimer's Association offer classes on caregiving, and local hospitals may have classes specifically for the disease your loved one is facing.
-Join a support group. A support group can be a great source for encouragement and advice from others in similar situations. It can also be a good place to make new friends.
-Seek social support. Make an effort to stay emotionally connected with family and friends. Set aside time each week for socializing, even if it's just a walk with a friend. Whenever possible, make plans that get you out of the house.
-Set personal health goals. For example, set a goal to find time to be physically active on most days of the week, or set a goal for getting a good night's sleep. It's also crucial to eat a healthy diet.
-See your doctor. Get recommended immunizations and screenings. Make sure to tell your doctor that you're a caregiver. Don't hesitate to mention any concerns or symptoms you have.
RESPITE CARE:
Day hospitals provide medical care during the day. In the evening, your loved one returns home.
In-Home respite. Health care aids come to your home to provide companionship, nursing services or both.
Short-Term nursing homes. Some assisted living homes, memory care facilities and nursing homes accept people needing care for short stays while caregivers are away.
You aren't alone. If you're like many caregivers, you have a hard time asking for help, believing that you have to do everything by yourself. Unfortunately, this attitude can lead to feeling isolated, frustrated and depressed. Rather than struggling on your own, take advantage of local resources for caregivers.
Contact your local Area Agency on Aging (AAA) to learn about services in your community. Find your local AAA online or in the government section of the telephone directory.
(and was also when she was home) very, very ungrateful for anything anyone has done for her. However, she does seems happy that she is not a burden to us ( so she thinks, and in a way her physical care is not a burden, but now there are other issues) including what to do with her house and the bills on it? A story for another day., her physical needs are taken care of in the nursing home, but what about all the rest? She has lost complete use of her legs and is confined to a wheelchair due to a degenerative disk. She cannot go to the bathroom nor bath herself. She is 86 yr. old.
Her mind also is slipping and while she was home it was difficult becasue she lived alone and each of us would take shifts away from our families ( I live in another state) for 4 days at a time to stay with her. My brother tried to take her in his home, but she demanded he take her back home after a month becasue she said his house was to small, they eat to late, they do this or do that, whatever, there was always constant complaining. He has a pretty decent size rancher. She had her own room, but they only have one bathroom and this was her constant complaint when she was there, my sis-in-law did everything anyone could possibly do to accommodate her but it was not enough.. She DEMANDED to go home only to wind up almost every other day in the emergency room for some reason or another, a fall, an upset stomach, anything! But, one of us always was called to assist her in emergency and stay hours at the hospital with her. It became to much for all of us. I and my sibling are all in our 60's and we have health issues of our own. My brother just had a hip replacement and sis had a knee replacement and I have been dealing with a very difficult case of hypothyroidism and depression which are not responding to treatment. ( I had my thyroid removed in 2009-I had five large benign nodules removed and have since become hypothyroid)
Now, guilt has taken over my life and I have fallen into an even deeper depression one of which I have never felt so badly. Some days, much to my shame, I pray for God to take me home with him. I am a Christian and I feel so guilty about all that has happen to my Mom and our family.I can't get up in the morning. I have no energy and have isolated myself from family and friends and even my own church choosing to worship instead at home, for over a year now.I cannot recover.
I just want YOU to know that YOU ARE NOT ALONE.Thank you for your post becasue it made me know that I too am not alone in the feelings which I have experienced over the past few years. Your 'rant' helped me. I wish for you all good things. I hope your burdens will be lifted and may God bless and keep you.
You are a saint for being honest about your innermost frustrations, I'm sure knowing how you feel has helped others, beside me, cope too. Thank you!
You will find this site keeps us sane. When I post or just read others situations I somehow find it a little easier to deal with caregiving, I feel more patient and loving towards mom. I hope you stay with us and get some relief. It really helps.
You're not alone here, we've all been in your shoes at one time or another. This site has saved my sanity more than one.
Hope this helps.
Suggestions?
I am constantly told how lucky he is to have me and how wonderful I am. I want to throw up each time as I hate my life, or what my life has become. My family is either in denial or does not offer any sort of help but tepid moral support through emails or phone calls. I had to BEG my older brother to keep my dad for 3 to 4 days so I can take a much needed break.
All that is just a tip of the iceberg of what I feel but I want you to know that I anytime you want to vent and scream, please do so right here!!! At least here I don't feel alone!
I am glad you and everyone else is here as we all need each other!
Take care and may God bless you, and take advantage of this site, it will do you good.!